Benefits of pulmonary rehabilitation in patients with advanced lymphangioleiomyomatosis (LAM) compared with COPD - a retrospective analysis.


Journal

Orphanet journal of rare diseases
ISSN: 1750-1172
Titre abrégé: Orphanet J Rare Dis
Pays: England
ID NLM: 101266602

Informations de publication

Date de publication:
22 09 2020
Historique:
received: 17 06 2020
accepted: 10 09 2020
entrez: 23 9 2020
pubmed: 24 9 2020
medline: 19 5 2021
Statut: epublish

Résumé

Lymphangioleiomyomatosis (LAM) is a rare and progressive cystic lung disease with limited therapeutic options. We retrospectively analyzed the effects of a comprehensive 4-week inpatient pulmonary rehabilitation (PR) program in 58 patients with advanced LAM (FEV1: 45 ± 34%predicted, 6-min walk distance (6MWD): 338 ± 167 m). Exercise performance (6MWD: + 49 ± 50 m; p < 0.001) and quality of life (SF-36 physical component: + 2.4 ± 7.8 points; p = 0.049 and mental component: + 5.2 ± 12.1 points; p < 0.001) increased significantly after PR comparable to an COPD cohort. There were no clinical parameters that predicted changes in outcomes following PR. PR seems to be an effective therapeutic option even in patients with advanced LAM. TRIAL REGISTRATION: Clinical-Trials registration number: NCT04184193 ; date of registration: December 3, 2019.

Identifiants

pubmed: 32962746
doi: 10.1186/s13023-020-01540-3
pii: 10.1186/s13023-020-01540-3
pmc: PMC7507679
doi:

Banques de données

ClinicalTrials.gov
['NCT04184193']

Types de publication

Letter

Langues

eng

Sous-ensembles de citation

IM

Pagination

255

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Auteurs

Rainer Gloeckl (R)

Department of Pulmonary Rehabilitation, Philipps - University of Marburg, German Center for Lung Research (DZL), Marburg, Germany. RGloeckl@Schoen-Klinik.de.
Institute for Pulmonary Rehabilitation Research, Schoen Klinik Berchtesgadener Land, Malterhoeh 1, 83471, Schoenau am Koenigssee, Germany. RGloeckl@Schoen-Klinik.de.

Christoph Nell (C)

Department of Internal Medicine, Division of Pulmonary Diseases, Philipps University of Marburg, Marburg, Germany.

Tessa Schneeberger (T)

Department of Pulmonary Rehabilitation, Philipps - University of Marburg, German Center for Lung Research (DZL), Marburg, Germany.
Institute for Pulmonary Rehabilitation Research, Schoen Klinik Berchtesgadener Land, Malterhoeh 1, 83471, Schoenau am Koenigssee, Germany.

Inga Jarosch (I)

Department of Pulmonary Rehabilitation, Philipps - University of Marburg, German Center for Lung Research (DZL), Marburg, Germany.
Institute for Pulmonary Rehabilitation Research, Schoen Klinik Berchtesgadener Land, Malterhoeh 1, 83471, Schoenau am Koenigssee, Germany.

Martina Boensch (M)

Department of Pulmonary Rehabilitation, Philipps - University of Marburg, German Center for Lung Research (DZL), Marburg, Germany.
Institute for Pulmonary Rehabilitation Research, Schoen Klinik Berchtesgadener Land, Malterhoeh 1, 83471, Schoenau am Koenigssee, Germany.

Henrik Watz (H)

Pulmonary Research Institute at Lungen Clinic Grosshansdorf, Airway Research Center North (ARCN), Member of the German Center for Lung Research (DZL), Grosshansdorf, Germany.

Hubert Wirtz (H)

Department of Respiratory Medicine, University of Leipzig AöR, Leipzig, Germany.

Tobias Welte (T)

Department of Respiratory Medicine, Hannover Medical School, Hannover, Germany.

Klaus Kenn (K)

Department of Pulmonary Rehabilitation, Philipps - University of Marburg, German Center for Lung Research (DZL), Marburg, Germany.
Institute for Pulmonary Rehabilitation Research, Schoen Klinik Berchtesgadener Land, Malterhoeh 1, 83471, Schoenau am Koenigssee, Germany.

Andreas Rembert Koczulla (AR)

Department of Pulmonary Rehabilitation, Philipps - University of Marburg, German Center for Lung Research (DZL), Marburg, Germany.
Institute for Pulmonary Rehabilitation Research, Schoen Klinik Berchtesgadener Land, Malterhoeh 1, 83471, Schoenau am Koenigssee, Germany.
Teaching Hospital, Paracelsus Medical University, Salzburg, Austria.

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Classifications MeSH