Parents' perspectives, information needs and healthcare preferences when consulting for their children with bronchiolitis: A qualitative study.
bronchiolitis
information
parental perspectives
qualitative research
support
Journal
Acta paediatrica (Oslo, Norway : 1992)
ISSN: 1651-2227
Titre abrégé: Acta Paediatr
Pays: Norway
ID NLM: 9205968
Informations de publication
Date de publication:
03 2021
03 2021
Historique:
received:
10
05
2020
revised:
23
06
2020
accepted:
28
09
2020
pubmed:
3
10
2020
medline:
15
5
2021
entrez:
2
10
2020
Statut:
ppublish
Résumé
Bronchiolitis is the leading cause of hospitalisation in infants, but parental experiences have not been well described. This study explored parents' experiences and asked them how they wanted to receive information. A qualitative study was conducted in a tertiary paediatric hospital in Québec, Canada. It consisted of semi-structured interviews with 15 parents of 13 children with bronchiolitis. The interview guide was constructed by a multidisciplinary team that included a parent. The interviews, which were transcribed verbatim, were conducted until no new themes emerged. We interviewed eight mothers, three fathers and two couples for 22-70 minutes: six were carried out in person during the bronchiolitis episode, and seven were phone interviews after a median interval time of 107 days. Parents were very worried about their child's health and their lack of knowledge about bronchiolitis contributed to their anxiety. They found education resources informative, but expressed a strong need for support and reassurance from healthcare teams. The two groups provided similar feedback, regardless of when they were interviewed or whether their child was admitted. Although bronchiolitis is common in infancy, parental knowledge was low. Standardised educational tools were useful, but insufficient to meet all their needs.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
944-951Commentaires et corrections
Type : CommentIn
Type : CommentIn
Informations de copyright
©2020 Foundation Acta Paediatrica. Published by John Wiley & Sons Ltd.
Références
Meissner HC. Viral bronchiolitis in children. N Engl J Med. 2016;374(18):1793-1794.
Florin TA, Plint AC, Zorc JJ. Viral bronchiolitis. Lancet. 2017;389(10065):211-224.
Lapillonne A, Regnault A, Gournay V, et al. Impact on parents of bronchiolitis hospitalization of full-term, preterm and congenital heart disease infants. BMC Pediatr. 2012;12:171.
Lapillonne A, Regnault A, Gournay V, et al. Development of a questionnaire to assess the impact on parents of their infant's bronchiolitis hospitalization. BMC Health Serv Res. 2013;13:272.
Rolfsjord LB, Skjerven HO, Carlsen KH, et al. The severity of acute bronchiolitis in infants was associated with quality of life nine months later. Acta Paediatr. 2016;105(7):834-841.
Peeler A, Fulbrook P, Kildea S. The experiences of parents and nurses of hospitalised infants requiring oxygen therapy for severe bronchiolitis: a phenomenological study. J Child Health Care. 2015;19(2):216-228.
Jones J, Nowacki AS, Greene A, Traul C, Goldfarb J. Investigating parent needs, participation, and psychological distress in the children's hospital. Hosp Pediatr. 2017;7(7):385-394.
Power N, Franck L. Parent participation in the care of hospitalized children: a systematic review. J Adv Nurs. 2008;62(6):622-641.
Shields L, Kristensson-Hallstrom I, O'Callaghan M. An examination of the needs of parents of hospitalized children: comparing parents' and staff's perceptions. Scand J Caring Sci. 2003;17(2):176-184.
Norwood A, Mansbach JM, Clark S, Waseem M, Camargo CA Jr. Prospective multicenter study of bronchiolitis: predictors of an unscheduled visit after discharge from the emergency department. Acad Emerg Med. 2010;17(4):376-382.
Feigenbaum P, Neuwirth E, Trowbridge L, et al. Factors contributing to all-cause 30-day readmissions: a structured case series across 18 hospitals. Med Care. 2012;50(7):599-605.
Herzig SJ, Schnipper JL, Doctoroff L, et al. Physician perspectives on factors contributing to readmissions and potential prevention strategies: a multicenter survey. J Gen Intern Med. 2016;31(11):1287-1293.
Leppin AL, Gionfriddo MR, Kessler M, et al. Preventing 30-day hospital readmissions: a systematic review and meta-analysis of randomized trials. JAMA Intern Med. 2014;174(7):1095-1107.
Howard-Anderson J, Busuttil A, Lonowski S, Vangala S, Afsar-Manesh N. From discharge to readmission: understanding the process from the patient perspective. J Hosp Med. 2016;11(6):407-412.
Doupnik SK, Hill D, Palakshappa D, et al. Parent coping support interventions during acute pediatric hospitalizations: a meta-analysis. Pediatrics. 2017;140(3):e20164171.
Kamban SW, Svavarsdottir EK. Does a therapeutic conversation intervention in an acute paediatric setting make a difference for families of children with bronchiolitis caused by respiratory syncytial virus (RSV)? J Clin Nurs. 2013;22(19-20):2723-2733.
Gates M, Shulhan-Kilroy J, Featherstone R, MacGregor T, Scott SD, Hartling L. Parent experiences and information needs related to bronchiolitis: a mixed studies systematic review. Patient Educ Couns. 2018.102(5):864-878.
Hendry GD. Constructivism and educational practice. Aust J Educ. 1996;40(1):19-45.
Mackenzie N, Knipe S. Research delemmas: paradigms, methods and methodology. Issues Educ Res. 2006;16:2006.
Corbin JM, Strauss AJQS. Grounded theory research: procedures, canons, and evaluative criteria. Qual Sociol. 1990;13(1):3-21.
Ralston SL, Lieberthal AS, Meissner HC, et al. Clinical practice guideline: the diagnosis, management, and prevention of bronchiolitis. Pediatrics. 2014;134(5):e1474-e1502.
Guest G, Arwen B, Laura J. How many interviews are enough? An experiment with data saturation and variability. Field Methods. 2006;18(1):59-82.
Mason M. Sample size and saturation in PhD studies using qualitative interviews. Forum Qual Soc Res. 2010;11(3):1-19.
Onwuegbuzie A, Sechelski A. A call for qualitative power analyses. Qual Quant. 2007;41(1):105-121.
Robbins JM, Kotagal UR, Kini NM, Mason WH, Parker JG, Kirschbaum MS. At-home recovery following hospitalization for bronchiolitis. Ambul Pediatr. 2006;6(1):8-14.
Committee On Hospital C, Institute For P, Family-Centered C. Patient- and family-centered care and the pediatrician's role. Pediatrics. 2012;129(2):394-404.
Campbell A, Hartling L, Louie-Poon S, Scott SD. Parents' information needs and preferences related to bronchiolitis: a qualitative study. CMAJ Open. 2019;7(4):E640-E645.
Traeger AC, Hubscher M, Henschke N, Moseley GL, Lee H, McAuley JH. Effect of primary care-based education on reassurance in patients with acute low back pain: systematic review and meta-analysis. JAMA Intern Med. 2015;175(5):733-743.
Cabral C, Ingram J, Hay AD, Horwood J; team T. "They just say everything's a virus"-parent's judgment of the credibility of clinician communication in primary care consultations for respiratory tract infections in children: a qualitative study. Patient Educ Couns. 2014;95(2):248-253.
LA Reis SMG, Alvarenga WA, Araújo JS, Zago MMF, Nascimento LC. Meta-synthesis about man as a father and caregiver for a hospitalized child. Rev Latino-Am Enfermagem. 2017;25:e2922-e2922.
Garcia-Maurino C, Moore-Clingenpeel M, Wallihan R, et al. Discharge criteria for bronchiolitis: an unmet need. Pediatr Infect Dis J. 2018;37(6):514-519.