Family members' expressions of dignity in palliative care: a qualitative study.
dignity
family members
interviews
palliative care
Journal
Scandinavian journal of caring sciences
ISSN: 1471-6712
Titre abrégé: Scand J Caring Sci
Pays: Sweden
ID NLM: 8804206
Informations de publication
Date de publication:
Sep 2021
Sep 2021
Historique:
revised:
12
08
2020
received:
17
02
2020
accepted:
31
08
2020
pubmed:
7
10
2020
medline:
16
10
2021
entrez:
6
10
2020
Statut:
ppublish
Résumé
Living and dying with dignity are fundamental values in palliative care, not only for the patient but also for family members. Although dignity has been studied from the different perspectives of patients in need of palliative care and their family members, family members' thoughts and feelings of dignity have not been given sufficient attention. Therefore, the aim was to describe family members' expressions of dignity in palliative care. The study had a qualitative design; semi-structured individual interviews were conducted with 15 family members of patients in palliative care in a county with a specialist palliative advisory team. Data were analysed using inductive content analysis. The results showed that family members' expressions of dignity are multifaceted and complex. For family members in palliative care, dignity means living as a respected human being in relation to oneself and others. Dignity also includes being able to maintain one's identity, feeling connected to significant others, and being comfortable with the new situation. Two contextual aspects affect family members' dignity: the two-headed paradox and reciprocal impact. The two-headed paradox means that family members want to stay close to and care for the ill person, at the same time want to escape the situation, but when they escape, they want to be close again. Reciprocal impact means that family members' feelings and experiences of the situation are closely intertwined with those of the ill person. These results may increase healthcare professionals' understanding and be used in dignified care practices that do not threaten, but instead aim to preserve family members' sense of dignity.
Identifiants
pubmed: 33022762
doi: 10.1111/scs.12913
pmc: PMC8451814
doi:
Types de publication
Journal Article
Langues
eng
Pagination
937-944Subventions
Organisme : The Kamprad Family Foundation for Entrepreneurship, Research and Charity
ID : 20152002
Informations de copyright
© 2020 Nordic College of Caring Science.
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