Patient-public engagement interventions for health system improvement in Sub-Saharan Africa: A systematic scoping review protocol.
health interventions
health system improvement
patient-public engagement
sub-Saharan Africa
Journal
The International journal of health planning and management
ISSN: 1099-1751
Titre abrégé: Int J Health Plann Manage
Pays: England
ID NLM: 8605825
Informations de publication
Date de publication:
Mar 2021
Mar 2021
Historique:
revised:
04
10
2020
received:
03
03
2020
accepted:
05
10
2020
pubmed:
15
10
2020
medline:
30
9
2021
entrez:
14
10
2020
Statut:
ppublish
Résumé
Research has found health system improvement cannot be achieved without continuously engaging patients, their families and all stakeholders in the design, management and delivery of health care services. Following the Alma Ata declaration on Primary Health Care in 1978, the focus of health system improvement has tended to shift from physician or hospital-centric approaches to a more democratic vision of engaging the public and/or patients in the commissioning, planning, organisation, operation and control of the health care system. Thus, patient-public engagement (PPE) has become an important tool in health system improvement particularly for countries with poor health outcomes including countries in sub-Saharan Africa which carries an estimated 24% of the global burden of diseases in both human and financial costs. The aim of this scoping review is to describe and systematically map PPE research in sub-Saharan Africa, and then to synthesise this research in relation to key theories of PPE, identify the key drivers and barriers of PPE and to identify the knowledge gaps that may usefully be addressed by future research. This scoping review will follow Arksey and O'Malley's best guidelines for conducting scoping reviews and also follow the standard guidelines for reporting using the Reporting Items for Systematic Reviews and Meta-Analysis extension for scoping reviews checklist. A systematic search of peer-reviewed English language literature published between January 1999 and December 2019 will be conducted on four databases: Scopus, CINAHL, Medline (Ovid) and Embase. The initial screening of titles and abstracts will be undertaken independently by two reviewers, followed by full text screening involving three independent reviewers. A thematic framework synthesis will be employed in the analysis of data to identify the various PPE interventions, and outcomes mapped to a framework of engagement continuum to understand its overall effect on health system improvement in sub-Saharan Africa. To our knowledge, this scoping review will be the first to systematically investigate PPE interventions implemented across sub-Saharan Africa, map the outcomes of identified interventions to a framework of engagement continuum and to understand its overall effect on health system improvement. Findings of this review will be published in an open-access peer review journal and disseminated at scientific conferences.
Sections du résumé
BACKGROUND
BACKGROUND
Research has found health system improvement cannot be achieved without continuously engaging patients, their families and all stakeholders in the design, management and delivery of health care services. Following the Alma Ata declaration on Primary Health Care in 1978, the focus of health system improvement has tended to shift from physician or hospital-centric approaches to a more democratic vision of engaging the public and/or patients in the commissioning, planning, organisation, operation and control of the health care system. Thus, patient-public engagement (PPE) has become an important tool in health system improvement particularly for countries with poor health outcomes including countries in sub-Saharan Africa which carries an estimated 24% of the global burden of diseases in both human and financial costs. The aim of this scoping review is to describe and systematically map PPE research in sub-Saharan Africa, and then to synthesise this research in relation to key theories of PPE, identify the key drivers and barriers of PPE and to identify the knowledge gaps that may usefully be addressed by future research.
METHODS
METHODS
This scoping review will follow Arksey and O'Malley's best guidelines for conducting scoping reviews and also follow the standard guidelines for reporting using the Reporting Items for Systematic Reviews and Meta-Analysis extension for scoping reviews checklist. A systematic search of peer-reviewed English language literature published between January 1999 and December 2019 will be conducted on four databases: Scopus, CINAHL, Medline (Ovid) and Embase. The initial screening of titles and abstracts will be undertaken independently by two reviewers, followed by full text screening involving three independent reviewers. A thematic framework synthesis will be employed in the analysis of data to identify the various PPE interventions, and outcomes mapped to a framework of engagement continuum to understand its overall effect on health system improvement in sub-Saharan Africa.
DISCUSSION
CONCLUSIONS
To our knowledge, this scoping review will be the first to systematically investigate PPE interventions implemented across sub-Saharan Africa, map the outcomes of identified interventions to a framework of engagement continuum and to understand its overall effect on health system improvement. Findings of this review will be published in an open-access peer review journal and disseminated at scientific conferences.
Types de publication
Journal Article
Langues
eng
Pagination
273-281Informations de copyright
© 2020 John Wiley & Sons Ltd.
Références
World Health Organisation. Everybody's Business-Strengthening Health Systems to Improve Health Outcomes. Geneva, Switzerland : WHO's framework for action; 2007.
World Health Organisation. WHO Gobal Strategy on People-Centred and Integrated Health Services: Interim Report. Geneva, Switzerland : World Health Organization; 2015.
Hall JJ , Taylor H . Health for all beyond 2000: the demise of the Alma-Ata Declaration and primary health care in developing countries. Med J Aust. 2003;178(1):17-20.
Alhassan RK , Nketiah-Amponsah E , Arhinful DK . Design and implementation of community engagement interventions towards healthcare quality improvement in Ghana: a methodological approach. Health economics review. 2016;6(1):49.
Gustavsson S , Gremyr I , Kenne Sarenmalm E . Designing quality of care-contributions from parents: parents’ experiences of care processes in paediatric care and their contribution to improvements of the care process in collaboration with healthcare professionals. J Clin Nurs. 2016;25(5-6):742-751.
Kettunen T , Poskiparta M , Gerlander M . Nurse-patient power relationship: preliminary evidence of patients’ power messages. Patient Educ Couns. 2002;47(2):101-113.
Paterson R . The Good Doctor: What Patients Want. Auckland, New Zealand: Auckland University Press; 2013.
Cornwell J . Exploring how to improve patients’ experience in hospital at both national and local levels. Nurs Times. 2009;105(26):12-15.
Coulter A , Elwyn G . What do patients want from high-quality general practice and how do we involve them in improvement?. Br J Gen Pract. 2002;52(suppl):S22-S26.
Goodrich J , Cornwell J . Seeing the person in the patient. The Point of Care review paper. London, UK: King's Fund; 2008.
Atinga RA , Agyepong IA , Esena RK . Willing but unable? Extending theory to investigate community capacity to participate in Ghana's community-based health planning and service implementation. Eval program Plan. 2019;72:170-178.
Hibbard JH . Engaging health care consumers to improve the quality of care. Medical care. 2003;41(1). I-61-I-70.
Johnson B , Abraham M , Conway J , et al. Partnering with Patients and Families to Design a Patient-and Family-Centered Health Care System. Bethesda, MD: Institute for Patient-and Family-Centered Care and Institute for Healthcare Improvement; 2008.
Schwappach DL . Engaging patients as vigilant partners in safety: a systematic review. Med Care Res Rev. 2010;67(2):119-148.
Uding N , Kieckhefer GM , Trahms CM . Parent and community participation in program design. Clin Nurs Res. 2009;18(1):68-79.
Vincent CA , Coulter A . Patient safety: what about the patient?. BMJ Qual Saf. 2002;11(1):76-80.
Kumah E , Ankomah SE , Kesse FO . The impact of patient feedback on clinical practice. Br J Hosp Med. 2018;79(12):700-703.
Rifkin SB . Examining the links between community participation and health outcomes: a review of the literature. Health Pol Plann. 2014;29(suppl_2):ii98-ii106.
Alhassan RK , Nketiah-Amponsah E , Ayanore MA , et al. Impact of a bottom-up community engagement intervention on maternal and child health services utilization in Ghana: a cluster randomised trial. BMC Publ Health. 2019;19(1):791.
Gyapong M , Gyapong JO , Owusu-Banahene G . Community-directed treatment: the way forward to eliminating lymphatic filariasis as a public-health problem in Ghana. Ann Trop Med Parasitol. 2001;95(1):77-86.
Baatiema L , Skovdal M , Rifkin S , Campbell C . Assessing participation in a community-based health planning and services programme in Ghana. BMC Health Serv Res. 2013;13(1):233.
Musesengwa R , Chimbari MJ . Community engagement practices in Southern Africa: review and thematic synthesis of studies done in Botswana, Zimbabwe and South Africa. Acta Trop. 2017;175:20-30.
George AS , Mehra V , Scott K , Sriram V . Community participation in health systems research: a systematic review assessing the state of research, the nature of interventions involved and the features of engagement with communities. PLoS One. 2015;10(10):e0141091.
Molyneux S , Atela M , Angwenyi V , Goodman C . Community accountability at peripheral health facilities: a review of the empirical literature and development of a conceptual framework. Health Pol Plann. 2012;27(7):541-554.
Berlan D , Shiffman J . Holding health providers in developing countries accountable to consumers: a synthesis of relevant scholarship. Health Pol Plann. 2012;27(4):271-280.
Cleary SM , Molyneux S , Gilson L . Resources, attitudes and culture: an understanding of the factors that influence the functioning of accountability mechanisms in primary health care settings. BMC Health Serv Res. 2013;13(1):1-11.
Atkinson J-A , Vallely A , Fitzgerald L , Whittaker M , Tanner M . The architecture and effect of participation: a systematic review of community participation for communicable disease control and elimination. Implications for malaria elimination. Malar J. 2011;10(1):225.
Ntshanga SP , Ngcobo PS , Mabaso MLH . Establishment of a community advisory board (CAB) for tuberculosis control and research in the Inanda, Ntuzuma and KwaMashu (INK) area of KwaZulu-Natal, South Africa. Health Pol. 2010;95(2-3):211-215.
Brear M , Hammarberg K , Fisher J . Community participation in research from resource-constrained countries: a scoping review. Health Promot Int. 2018;33(4):723-733.
Tricco AC , Lillie E , Zarin W , et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467-473.
Burnam MA , Watkins KE . Substance abuse with mental disorders: specialized public systems and integrated care. Health Aff. 2006;25(3):648-658.
Grant MJ , Booth A . A typology of reviews: an analysis of 14 review types and associated methodologies. Health Inf Libr J. 2009;26(2):91-108.
Levac D , Colquhoun H , O'Brien KK . Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69.
Arnstein SR . A ladder of citizen participation. J Am Inst planners. 1969;35(4):216-224.
Charles C , DeMaio S . Lay participation in health care decision making: a conceptual framework. Journal of health politics, policy and law. 1993;18(4):881-904.
Bombard Y , Baker GR , Orlando E , et al. Engaging patients to improve quality of care: a systematic review. Implement Sci. 2018;13(1):98.
Ocloo J , Matthews R . From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Qual Saf. 2016;25(8):626-632.
Bate P , Robert G . Experience-based design: from redesigning the system around the patient to co-designing services with the patient. BMJ Qual Saf. 2006;15(5):307-310.
Gurung G , Richardson A , Wyeth E , Edmonds L , Derrett S . Child/youth, family and public engagement in paediatric services in high-income countries: a systematic scoping review. Health Expect. 2020;23(2):261-273.
Arksey H , O'Malley L . Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19-32.
Peters MD , Godfrey CM , Khalil H , McInerney P , Parker D , Soares CB . Guidance for conducting systematic scoping reviews. Int J evidence-based Healthc. 2015;13(3):141-146.
World Bank Group. The World Bank Annual Report 2012. The World Bank Group; 2012. http://elibrary.worldbank.org/content/book/9780821395684.