Obtaining Patient Priorities in a Multiple Sclerosis Comprehensive Care Center: Beyond Patient-Reported Outcomes.

clinician–patient relationship communication learning health system patient perspectives/narratives quantitative methods relationships in health care

Journal

Journal of patient experience
ISSN: 2374-3735
Titre abrégé: J Patient Exp
Pays: United States
ID NLM: 101688338

Informations de publication

Date de publication:
Aug 2020
Historique:
entrez: 16 10 2020
pubmed: 17 10 2020
medline: 17 10 2020
Statut: ppublish

Résumé

In order to provide patient center care, our multiple sclerosis (MS) clinic assesses patient concerns before clinical encounters, first by asking the optional qualitative question "What is the most important thing you what your health-care provider to know today" (most important concern of the patient [MIPC]) and then completing quantitative patient-reported outcome measures (PROMs) including Quality of Life in Neurological Disorders (Neuro-QoL). Both sets of questions are designed to facilitate encounters that address patients' values and preferences. Determine whether the qualitative MIPC responses provided unique information not included in PROMs or clinical assessments. We randomly selected 400 first-time MIPC responders and 400 first-time MIPC nonresponders from 2788 participants in our database. We categorized MIPC responses by content and number of unique concerns and appended them to the Neuro-QoL framework. Nonresponders were compared to those who provided 1 and 2 or more responses. Several MIPCs MS symptoms categories were added to the Neuro-QoL Physical domain. Most important concern of the patients work and cost-of-care categories were added to the Social Domain. Domains regarding treatment satisfaction and disease management were added. Two hundred thirty (58%) MIPC respondents reported 1 concern, 140 (35%) expressed 2 to 6 concerns, and 30 (7%) reported MS-unrelated concerns and not analyzed. Physical symptoms were the most common MIPC (69.9%). Respondents with more concerns were more likely African American, lacked private insurance, and worse disability. Importantly, MIPC responders described idiosyncratic symptoms, disease management, and social concerns not included in the PROMS, suggesting the MIPC question offered patients a unique opportunity to share specific concerns with their providers.

Sections du résumé

BACKGROUND BACKGROUND
In order to provide patient center care, our multiple sclerosis (MS) clinic assesses patient concerns before clinical encounters, first by asking the optional qualitative question "What is the most important thing you what your health-care provider to know today" (most important concern of the patient [MIPC]) and then completing quantitative patient-reported outcome measures (PROMs) including Quality of Life in Neurological Disorders (Neuro-QoL). Both sets of questions are designed to facilitate encounters that address patients' values and preferences.
OBJECTIVE OBJECTIVE
Determine whether the qualitative MIPC responses provided unique information not included in PROMs or clinical assessments.
METHODS METHODS
We randomly selected 400 first-time MIPC responders and 400 first-time MIPC nonresponders from 2788 participants in our database. We categorized MIPC responses by content and number of unique concerns and appended them to the Neuro-QoL framework. Nonresponders were compared to those who provided 1 and 2 or more responses.
RESULTS RESULTS
Several MIPCs MS symptoms categories were added to the Neuro-QoL Physical domain. Most important concern of the patients work and cost-of-care categories were added to the Social Domain. Domains regarding treatment satisfaction and disease management were added. Two hundred thirty (58%) MIPC respondents reported 1 concern, 140 (35%) expressed 2 to 6 concerns, and 30 (7%) reported MS-unrelated concerns and not analyzed. Physical symptoms were the most common MIPC (69.9%). Respondents with more concerns were more likely African American, lacked private insurance, and worse disability.
CONCLUSIONS CONCLUSIONS
Importantly, MIPC responders described idiosyncratic symptoms, disease management, and social concerns not included in the PROMS, suggesting the MIPC question offered patients a unique opportunity to share specific concerns with their providers.

Identifiants

pubmed: 33062876
doi: 10.1177/2374373519864011
pii: 10.1177_2374373519864011
pmc: PMC7534123
doi:

Types de publication

Journal Article

Langues

eng

Pagination

541-548

Informations de copyright

© The Author(s) 2019.

Déclaration de conflit d'intérêts

Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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Auteurs

Deborah M Miller (DM)

Mellen Center, Cleveland Clinic, OH, USA.
Lerner College of Medicine, Cleveland Clinic, OH, USA.

Brandon Moss (B)

Mellen Center, Cleveland Clinic, OH, USA.

Susannah Rose (S)

Lerner College of Medicine, Cleveland Clinic, OH, USA.
Office of Patient Experience, Cleveland Clinic, OH, USA.

Hong Li (H)

Quantitative Health Science, Cleveland Clinic, OH, USA.

David Schindler (D)

Quantitative Health Science, Cleveland Clinic, OH, USA.

Malory Weber (M)

Mellen Center, Cleveland Clinic, OH, USA.

Sarah M Planchon (SM)

Mellen Center, Cleveland Clinic, OH, USA.
Lerner College of Medicine, Cleveland Clinic, OH, USA.

Jay Alberts (J)

Biomedical Engineering, Cleveland Clinic, OH, USA.

Adrienne Boissy (A)

Office of Patient Experience, Cleveland Clinic, OH, USA.

Robert Bermel (R)

Mellen Center, Cleveland Clinic, OH, USA.

Classifications MeSH