Patient-Centered Outcomes in an Interdisciplinary Clinic for Complex Children with Autism.
Journal
Journal of developmental and behavioral pediatrics : JDBP
ISSN: 1536-7312
Titre abrégé: J Dev Behav Pediatr
Pays: United States
ID NLM: 8006933
Informations de publication
Date de publication:
01 04 2021
01 04 2021
Historique:
received:
01
03
2020
accepted:
01
09
2020
pubmed:
22
10
2020
medline:
29
10
2021
entrez:
21
10
2020
Statut:
ppublish
Résumé
To compare the perspectives of caregivers of children with autism receiving care at the Neurobehavior Healthy Outcomes Medical Excellence (HOME) Program, an interdisciplinary clinic that provides primary care and behavioral/mental health services for patients with autism and other developmental disabilities, with those responding to the 2016 National Survey of Children's Health (NSCH). We focused on ratings related to shared decision-making, care coordination, family-centered care, and care within a medical home. We administered a subset of items from the 2016 NSCH to caregivers of children with autism enrolled in HOME and compared responses with the same items from a nationally representative group of caregivers of children with autism who completed the 2016 NSCH. We compared the proportions that reported receiving shared decision-making, care coordination, family-centered care, care within a medical home, and unmet needs among the 2 study groups using Poisson regression, controlling for age, sex, race/ethnicity, payor, autism severity, and intellectual disability (ID). Compared with the NSCH cohort (n = 1151), children enrolled in HOME (n = 129) were older, more often female, had severe autism, and had co-occurring ID. Caregivers perceived that children receiving care within HOME more often received family-centered, coordinated care within a medical home compared with a national sample of children with autism. HOME enrollees also reported increased access to behavioral treatments and adult transition services with less financial burden compared with the national sample. An interdisciplinary clinic model may best serve children with autism, especially those with higher severity symptoms and co-occurring conditions.
Identifiants
pubmed: 33086336
pii: 00004703-202104000-00002
doi: 10.1097/DBP.0000000000000877
pmc: PMC7990680
mid: NIHMS1627934
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
182-190Subventions
Organisme : NCRR NIH HHS
ID : UL1 RR025764
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002538
Pays : United States
Organisme : NHLBI NIH HHS
ID : R38 HL143605
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR000105
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR001067
Pays : United States
Informations de copyright
Copyright © 2020 Wolters Kluwer Health, Inc. All rights reserved.
Déclaration de conflit d'intérêts
Part of P. S. Carbone's clinical effort is supported by the University of Utah Department of Psychiatry that administers the Neurobehavior Healthy Outcomes Medical Excellence (HOME) Program. P. S. Carbone also receives support from the Maternal and Child Health Bureau through the Utah Regional Leadership Education in Neurodevelopmental Disabilities Program and the Simons Foundation through Simons Powering Autism Research with Knowledge (SPARK). The remaining authors declare no conflict of interest.
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