Improving the quality of person-centred healthcare from the patient perspective: development of person-centred quality indicators.


Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
29 10 2020
Historique:
entrez: 30 10 2020
pubmed: 31 10 2020
medline: 15 5 2021
Statut: epublish

Résumé

International efforts are being made towards a person-centred care (PCC) model, but there are currently no standardised mechanisms to measure and monitor PCC at a healthcare system level. The use of metrics to measure PCC can help to drive the changes needed to improve the quality of healthcare that is person centred. To develop and validate person-centred care quality indicators (PC-QIs) measuring PCC at a healthcare system level through a synthesis of the evidence and a person-centred consensus approach to ensure the PC-QIs reflect what matters most to people in their care. Existing indicators were first identified through a scoping review of the literature and an international environmental scan. Focus group discussions with diverse patients and caregivers and interviews with clinicians and experts in quality improvement allowed us to identify gaps in current measurement of PCC and inform the development of new PC-QIs. A set of identified and newly developed PC-QIs were subsequently refined by Delphi consensus process using a modified RAND/UCLA Appropriateness Method. The international consensus panel consisted of patients, family members, community representatives, clinicians, researchers and healthcare quality experts. From an initial 39 unique evidence-based PC-QIs identified and developed, the consensus process yielded 26 final PC-QIs. These included 7 related to structure, 16 related to process, 2 related to outcome and 1 overall global PC-QI. The final 26 evidence-based and person-informed PC-QIs can be used to measure and evaluate quality incorporating patient perspectives, empowering jurisdictions to monitor healthcare system performance and evaluate policy and practice related to PCC.

Identifiants

pubmed: 33122312
pii: bmjopen-2020-037323
doi: 10.1136/bmjopen-2020-037323
pmc: PMC7597468
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e037323

Subventions

Organisme : Canadian Institutes for Health Research
ID : 201709PJT
Pays : International
Organisme : Canadian Institutes for Health Research
ID : 201810CGV
Pays : International

Informations de copyright

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Maria-Jose Santana (MJ)

Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada mjsantan@ucalgary.ca.
Alberta Strategy for Patient-oriented Research, Calgary, Alberta, Canada.

Kimberly Manalili (K)

Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Sandra Zelinsky (S)

Alberta Strategy for Patient-oriented Research, Calgary, Alberta, Canada.
University of Calgary, Calgary, Alberta, Canada.

Susan Brien (S)

Health Quality Ontario, Toronto, Ontario, Canada.

Elizabeth Gibbons (E)

Oxford University, Oxford, Oxfordshire, UK.

Jenny King (J)

Picker Institute Europe, Oxford, Oxfordshire, UK.

Lori Frank (L)

RAND Corporation, Arlington, Virginia, USA.

Sara Wallström (S)

Center for Person Centered Care, Gothenburg, Sweden.
University of Gothenburg, Gothenburg, Sweden.

Paul Fairie (P)

Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Kira Leeb (K)

Victorian Agency for Health Information, Melbourne, Victoria, Australia.

Hude Quan (H)

Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Richard Sawatzky (R)

Trinity Western University School of Nursing, Langley, British Columbia, Canada.

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