Optimizing the Meaningful Engagement of Older Adults With Multimorbidity and Their Caregivers as Research Partners: A Qualitative Study.

chronic conditions geriatrics morbidity nursing patient and public engagement in health care research patient research partners qualitative methods user-centered design

Journal

Journal of applied gerontology : the official journal of the Southern Gerontological Society
ISSN: 1552-4523
Titre abrégé: J Appl Gerontol
Pays: United States
ID NLM: 8606502

Informations de publication

Date de publication:
12 2021
Historique:
pubmed: 8 11 2020
medline: 22 1 2022
entrez: 7 11 2020
Statut: ppublish

Résumé

It is widely recognized that the engagement of older adults with multimorbidity and their caregivers as partners in health care research is important and invaluable. The objective of this study was to examine how researchers can best engage and support older adults with multimorbidity and informal friend or family caregivers of older adults with multimorbidity as research partners in health care research teams. The persona-scenario method was used for participants to create fictional stories. These stories were analyzed to shed light on specific strategies that can support older adults and caregivers as partners on health care research teams, such as a patient-centered approach, identifying and addressing barriers to engagement, and clarifying roles and responsibilities on the research team. The results from this study can be used to inform research, policy, and education on supporting older adults with multimorbidity and caregivers of older adults with multimorbidity as research partners.

Identifiants

pubmed: 33158386
doi: 10.1177/0733464820970811
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1807-1817

Auteurs

Kristina Chang (K)

School of Nursing, McMaster University, Hamilton, Ontario, Canada.
University Health Network, Toronto, Ontario, Canada.

Maureen Markle-Reid (M)

School of Nursing, McMaster University, Hamilton, Ontario, Canada.
Aging, Community and Health Research Unit (ACHRU), McMaster University, Hamilton, Ontario, Canada.

Ruta Valaitis (R)

School of Nursing, McMaster University, Hamilton, Ontario, Canada.
Aging, Community and Health Research Unit (ACHRU), McMaster University, Hamilton, Ontario, Canada.

Carrie McAiney (C)

School of Nursing, McMaster University, Hamilton, Ontario, Canada.
Schlegel-UW Research Institute for Aging, School of Public Health and Health Systems, University of Waterloo, Ontario, Canada.

Nancy Carter (N)

School of Nursing, McMaster University, Hamilton, Ontario, Canada.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH