Parents' and caregivers' satisfaction with community-based rehabilitation (CBR) services for children with disability in east coast states in Peninsular Malaysia.


Journal

Health & social care in the community
ISSN: 1365-2524
Titre abrégé: Health Soc Care Community
Pays: England
ID NLM: 9306359

Informations de publication

Date de publication:
01 2021
Historique:
received: 06 12 2018
revised: 12 05 2020
accepted: 10 06 2020
pubmed: 15 11 2020
medline: 20 8 2021
entrez: 14 11 2020
Statut: ppublish

Résumé

The Community-Based Rehabilitation (CBR) services under the Malaysian Ministry of Women, Family and Community Development have provided two types of services for disabled children: centre-based and home-based care since 1984. A cross-sectional study was conducted among parents and caregivers with children receiving treatment at CBRs on the east coast of Peninsular Malaysia, to determine the level of satisfaction with the services provided. Respondents were recruited via multi-staged sampling, and simple randomisation at CBR level. Respondents self-administered the Physical Therapy Satisfaction Questionnaire (PTSQ) and provided sociodemographic data. A total of 297 respondents were recruited and all the questionnaires were returned complete, making the response rate 100%. Total satisfaction scores and factors influencing respondents' satisfaction for both groups were analysed. The mean total satisfaction score for centre-based and home-based were 84.69 (SD = 10.01) and 75.30 (SD = 12.23; t = 7.160, p ≤ .001) respectively. Ninety-eight per cent of centre-based and 89% of home-based respondents were satisfied with the current services. There were significantly mean differences in the satisfaction level of respondents of different states respectively (Kelantan mean 84.92 10.83, Terengganu mean 77.49 11.16 and Pahang mean 77.47 12.93, p ≤ .001). Factors associated with satisfaction were education (p = .002), occupation (p = <0.001), monthly income (p = .001) and source of income (p = .001). In conclusion, majority of parents and caregivers were satisfied with current services provided at CBR and satisfaction with services was dependent on CBR centre location and education and financial earning capacity.

Identifiants

pubmed: 33189086
doi: 10.1111/hsc.13084
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

215-226

Informations de copyright

© 2020 John Wiley & Sons Ltd.

Références

Alsem, M. W., Verhoef, M., Gorter, J. W., Langezaal, L. C. M., Visser-Meily, J. M. A., & Ketelaar, M. (2016). Parents' perceptions of the services provided to children with cerebral palsy in the transition from preschool rehabilitation to school-based services. Child: Care, Health and Development, 42(4), 455-463. https://doi.org/10.1111/cch.12341
Brown, T. W., van Urk, F. C., Waller, R., & Mayo-Wilson, E. (2014). Centre-based day care for children younger than five years of age in low- and middle-income countries. The Cochrane Database of Systematic Reviews, 9, CD010543. https://doi.org/10.1002/14651858.CD010543.pub2
Beattie, P. F., Pinto, M. B., Nelson, M. K., & Nelson, R. (2002). Patient satisfaction with outpatient physical therapy: Instrument validation. Physical Therapy, 82(6), 557-565. https://doi.org/10.1093/ptj/82.6.557
Carman, J. M. (2000). Patient perceptions of service quality. Combining the dimensions. Journal of Management in Medicine, 14(5-6), 339-356. https://doi.org/10.1108/08876040010334565
Chen, A. H., Jaafar, S. N., & Noor, A. R. M. (2012). Comparison of job satisfaction among eight health care professions in private (non-government) settings. Malaysian Journal of Medical Sciences, 19(2), 19-26.
Christian Medical College (2010). Community-based rehabilitation - The Vellore experience. India, India: Christian Medical College.http://ebookbrowse.com/implementing-a-community-based-rehabilitation-cbr-doc-d405228202
Christiansen, A. S., & Lange, C. (2008). Intermittent versus continuous physiotherapy in children with cerebral palsy. Developmental Medicine and Child Neurology, 50(4), 290-293. https://doi.org/10.1111/j.1469-8749.2008.02036.x
Dambi, J. M., & Jelsma, J. (2014). The impact of hospital-based and community based models of cerebral palsy rehabilitation: Aquasi-experimental study. BMC Pediatrics, 14(1), 301. https://doi.org/10.1186/s12887-014-0301-8
Department of Socail Welfare. (2013). Pemulihan Dalam Komuniti (PDK). Retrieved from http://www.jkm.gov.my/content.php?pagename=program_pemulihan_dalam_komuniti_pdk&lang=bm
Dhillon, P. K., Jeemon, P., Arora, N. K., Mathur, P., Maskey, M., Sukirna, R. D., & Prabhakaran, D. (2012). Status of epidemiology in the WHO South-East Asia region : burden of disease , determinants of health and epidemiological research, workforce and training capacity. International Journal of Epidemiology, 41(3), 847-860. https://doi.org/10.1093/ije/dys046
Donabedian, A. (1997). The quality of care. How can it be assessed? The Journal of the American Medical Association, 260(12), 1743-1748. https://doi.org/10.1001/jama.260.12.1743
Escolar-Reina, P., Medina-Mirapeix, F., Gascón-Cánovas, J. J., Montilla-Herrador, J., Jimeno-Serrano, F. J., de Oliveira Sousa, S. L., … Lomas-Vega, R. (2010). How do care-provider and home exercise program characteristics affect patient adherence in chronic neck and back pain: A qualitative study. BMC Health Services Research, 10, 60. https://doi.org/10.1186/1472-6963-10-60
Gannotti, M. E., Law, M., Bailes, A. F., O’Neil, M. E., Williams, U., & DiRezze, B. (2016). Comparative effectiveness research and children with cerebral palsy: Identifying a conceptual framework and specifying measures. Pediatric Physical Therapy, 28(1), 58-69. https://doi.org/10.1097/PEP.0000000000000203
Grandisson, M., Thibeault, R., Hébert, M., & Templeton, A. (2015). Community-Based Rehabilitation Programme Evaluations: Lessons Learned in the Field. Disability, CBR & Inclusive Development, 25(1), 55-71. https://doi.org/10.5463/DCID.v25i1.240
Goldstein, M. S., Elliott, S. D., & Andrew, A. (2000). The development of an instrument to measure satisfaction with physical therapy. Physical Therapy, 80, 853-863. https://doi.org/10.1093/ptj/80.9.853
Goldstein, M. S., Elliott, S. D., & Guccione, A. A. (1993). The development of an instrument to measure satisfaction with physical therapy. Dissertation Abstracts, 80(9), 761-4700. https://doi.org/10.16953/deusbed.74839
Hwang, M., Kuroda, M. M., Tann, B., & Gaebler-spira, D. J. (2011). Measuring care and comfort in children with cerebral palsy: The care and comfort caregiver questionnaire. Pharmaceutical and Medical Device Regulatory Science Society of Japan, 3(10), 912-919. https://doi.org/10.1016/j.pmrj.2011.05.017
Khamlub, S., Harun-Or-Rashid, M., Sarker, M. A. B., Hirosawa, T., Outavong, P., & Sakamoto, J. (2013). Job satisfaction of health-care workers at health centers in Vientiane Capital and Bolikhamsai Province, Lao PDR. Nagoya Journal of Medical Science, 75(3-4), 233-241.
King, G., Cathers, T., King, S., & Rosenbaum, P. (2001). Major elements of parents' satisfaction and dissatisfaction with pediatric rehabilitation services. Children's Health Care, 30(2), 111-134. https://doi.org/10.1207/S15326888CHC3002
Lagerkvist, B. (1992). Community-based rehabilitation-outcome for the disabled in the Philippines and Zimbabwe. Disability and Rehabilitation, 14(1), 44-50. https://doi.org/10.3109/09638289209166427
Lukersmith, S., Hartley, S., Kuipers, P., Madden, R., Gwynnyth, L., & Dune, T. (2014). Community-based rehabilitation (CBR ) monitoring and evaluation methods and tools : A literature review. Disability and Rehabilitation: An International, Multidisciplinary Journal, https://doi.org/10.3109/09638288.2013.770078
Mannan, H., MacLachlan, M., & McAuliffe, E. (2012). The human resources challenge to community based rehabilitation: The need for a scientific, systematic coordinated global response. Disability, CBR & Inclusive Development, 23, 6https://doi.org/10.5463/dcid.v23i4.157
Murray, C. J., & Frenk, J. (2000). A framework for assessing the performance of health systems. Bulletin of the World Health Organization, 78(6), 717-731. https://doi.org/10.1590/S0042-96862000000600004
Myburgh, N. G., Solanki, G. C., Smith, M. J., & Lalloo, R. (2005). Patient satisfaction with health care providers in South Africa: The influences of race and socioeconomic status. International Journal for Quality in Health Care, 17(6), 473-477. https://doi.org/10.1093/intqhc/mzi062
Ngubane, M., & Chetty, V. (2017). Caregiver satisfaction with a multidisciplinary community-based rehabilitation programme for children with cerebral palsy in South Africa. South African Family Practice, 59(1), 35-40. https://doi.org/10.1080/20786190.2016.1254929
Olaogun, M., Nyante, G., & Ajediran, A. (2010). Overcoming the Barriers for Participation by the Disabled: An appraisal and global view of community-based rehabilitation in community development. African Journal of Physiotherapy and Rehabilitation Sciences, 1(1), 24-29. https://doi.org/10.4314/ajprs.v1i1.51312
Osvat, C., & Baltatescu, S. (2011). Social and institutional support for families of children with disabilities. Influence on subjective well-being of carers. Sociologie Româneasca, 9(4), 85-101.
Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., & Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), e626-e636. https://doi.org/10.1542/peds.2004-1689
Roush, S. E., & Sonstroem, R. J. (1999). Development of the physical therapy outpatient satisfaction survey (PTOPS). Physical Therapy, 79(2), 159-170. https://doi.org/10.1093/ptj/79.2.159
Wang, B., Chen, Y., Zhang, J., Li, J., Guo, Y., & Hailey, D. (2008). A preliminary study into the economic burden of cerebral palsy in China. Health Policy, 87(2), 223-234. https://doi.org/10.1016/j.healthpol.2008.01.001
Wirz, S., & Thomas, M. (2002). Evaluation of community-based rehabilitation programmes: a search for appropriate indicators. International Journal of Rehabilitation Research, 25(3), 163-171. https://doi.org/10.1097/00004356-200209000-00001
World Health Organization. (2013). Disability and rehabilitation. Retrieved from http://www.who.int/disabilities/cbr/en/
World Health Organization. (2018). Maternal, newborn, child and adolescent. Retrieved from http://www.who.int/maternal_child_adolescent/topics/quality-of-care/definition/en/

Auteurs

Haliza Hasan (H)

Department of Special Care Nursing, Kulliyyah of Nursing, International Islamic University Malaysia, Kuantan, Pahang, Malaysia.
International Centre for Casemix and Clinical Coding, Faculty of Medicine, Universiti Kebangsaan Malaysia (National University of Malaysia), Cheras, Kuala Lumpur, Malaysia.

Aznida Firzah Abdul Aziz (AF)

International Centre for Casemix and Clinical Coding, Faculty of Medicine, Universiti Kebangsaan Malaysia (National University of Malaysia), Cheras, Kuala Lumpur, Malaysia.
Department of Family Medicine, Faculty of Medicine, National University of Malaysia, Kuala Lumpur, Malaysia.

Syed Mohamed Aljunid (SM)

International Centre for Casemix and Clinical Coding, Faculty of Medicine, Universiti Kebangsaan Malaysia (National University of Malaysia), Cheras, Kuala Lumpur, Malaysia.
Department of Health Policy & Management, Faculty of Public Health, Kuwait University, Kuwait.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH