Gaps in Hospice and Palliative Care Research: A Scoping Review of the North American Literature.
Journal
Journal of aging research
ISSN: 2090-2204
Titre abrégé: J Aging Res
Pays: United States
ID NLM: 101543460
Informations de publication
Date de publication:
2020
2020
Historique:
received:
10
05
2020
revised:
07
09
2020
accepted:
16
09
2020
entrez:
18
11
2020
pubmed:
19
11
2020
medline:
19
11
2020
Statut:
epublish
Résumé
The demand for hospice and palliative care is growing as a result of the increase of an aging population, which is most prominent in North America. Despite the importance of the topic and an increase in hospice and palliative care utilization, there still are gaps in research and evidence within the field. To determine what gaps currently exist in hospice and palliative/end-of-life care research within the context of a North American setting to ensure that future directions are grounded in appropriate evidence. Using Arksey and O'Malley's scoping review framework, six peer-reviewed, and four grey electronic literature databases in healthcare and the social sciences were searched in mid-2019. 111 full-text articles were retrieved, with 25 articles and reports meeting the inclusion criteria. Major themes were identified through thematic context analysis: (1) clinical, (2) system access to care, (3) research methodology, and (4) caregiving-related research gaps. Findings include strategies for engaging stakeholder organizations and funding agencies, implications for other stakeholder groups such as clinicians and researchers, and highlight implications for policy (e.g., national framework discussion) and practice (e.g., healthcare provider education and training and public awareness). Reviewing and addressing targeted research gaps is essential to inform future directions in Canada and beyond.
Sections du résumé
BACKGROUND
BACKGROUND
The demand for hospice and palliative care is growing as a result of the increase of an aging population, which is most prominent in North America. Despite the importance of the topic and an increase in hospice and palliative care utilization, there still are gaps in research and evidence within the field.
AIM
OBJECTIVE
To determine what gaps currently exist in hospice and palliative/end-of-life care research within the context of a North American setting to ensure that future directions are grounded in appropriate evidence.
METHODS
METHODS
Using Arksey and O'Malley's scoping review framework, six peer-reviewed, and four grey electronic literature databases in healthcare and the social sciences were searched in mid-2019. 111 full-text articles were retrieved, with 25 articles and reports meeting the inclusion criteria. Major themes were identified through thematic context analysis: (1) clinical, (2) system access to care, (3) research methodology, and (4) caregiving-related research gaps.
RESULTS
RESULTS
Findings include strategies for engaging stakeholder organizations and funding agencies, implications for other stakeholder groups such as clinicians and researchers, and highlight implications for policy (e.g., national framework discussion) and practice (e.g., healthcare provider education and training and public awareness).
CONCLUSION
CONCLUSIONS
Reviewing and addressing targeted research gaps is essential to inform future directions in Canada and beyond.
Identifiants
pubmed: 33204532
doi: 10.1155/2020/3921245
pmc: PMC7661142
doi:
Types de publication
Journal Article
Langues
eng
Pagination
3921245Informations de copyright
Copyright © 2020 Rebecca Antonacci et al.
Déclaration de conflit d'intérêts
The authors have no conflicts of interest to disclose.
Références
BMJ Support Palliat Care. 2020 Jun;10(2):216-220
pubmed: 31302599
Soc Work Health Care. 2013;52(6):558-77
pubmed: 23865972
Am J Hosp Palliat Care. 2008 Aug-Sep;25(4):328-38
pubmed: 18463408
Can J Aging. 2017 Mar;36(1):108-119
pubmed: 28052780
Death Stud. 2019 Jul 11;:1-11
pubmed: 31293223
Am J Hosp Palliat Care. 2017 Feb;34(1):79-84
pubmed: 26430135
BMJ Support Palliat Care. 2016 Mar;6(1):2-4
pubmed: 26893386
J Pain Symptom Manage. 2010 May;39(5):803-19
pubmed: 20471542
Palliat Med. 2017 Mar;31(3):247-257
pubmed: 27317412
J Palliat Med. 2013 Aug;16(8):843-7
pubmed: 23777331
J Pain Symptom Manage. 2020 Feb;59(2):365-371
pubmed: 31610273
J Palliat Med. 2005;8 Suppl 1:S79-87
pubmed: 16499472
J Pain Symptom Manage. 2017 Jul;54(1):27-34
pubmed: 28479409
BMJ Support Palliat Care. 2015 Mar;5(1):4-6
pubmed: 25713220
Nurs Health Sci. 2013 Sep;15(3):398-405
pubmed: 23480423
Oncol Nurs Forum. 2011 Nov;38(6):711-7
pubmed: 22037333
J Palliat Med. 2013 Dec;16(12):1503-8
pubmed: 24147877
Palliat Med. 2013 Dec;27(10):883-4
pubmed: 24259475
Cancer Nurs. 2006 Jan-Feb;29(1):49-57
pubmed: 16557121
J Palliat Med. 2014 May;17(5):506-11
pubmed: 24694096
J Pain Symptom Manage. 2011 Mar;41(3):522-34
pubmed: 21123026