A mixed-methods feasibility study of a goal-focused manualised intervention to support people with dementia to stay living independently at home with support from family carers: NIDUS (New Interventions for Independence in Dementia Study) Family.


Journal

Aging & mental health
ISSN: 1364-6915
Titre abrégé: Aging Ment Health
Pays: England
ID NLM: 9705773

Informations de publication

Date de publication:
08 2021
Historique:
pubmed: 24 11 2020
medline: 7 8 2021
entrez: 23 11 2020
Statut: ppublish

Résumé

To examine the feasibility and acceptability of NIDUS-Family, a 6-8 session manualised, individually tailored, modular intervention supporting independence at home for people with dementia; and explore participants' and facilitators' experiences of the intervention. In this single group multi-site feasibility study, trained, supervised non-clinically qualified graduates (facilitators) delivered NIDUS-Family to family carer and people living with dementia dyads. We recruited participants from GP practices and memory services in London and Bradford. We completed quantitative outcomes pre- and post-intervention; and conducted qualitative interviews with participants and facilitators. Our pre-specified main outcomes were proportion of potential participants approached who agreed to participate, intervention adherence and acceptability to family carers, and facilitator fidelity to the manual. We recruited 16 dyads (57% of those approached); 12 (75%) completed the intervention. Of 12 participants rating intervention acceptability, 9 (75%) agreed or strongly agreed that it had helped; 2 (18%) neither agreed nor disagreed and 1 (8%) disagreed. Mean facilitator fidelity was high (81.5%). Dyads set on average 3.9 goals; these most commonly related to getting out and about and increasing activity/hobby participation ( NIDUS-Family was feasible and acceptable to participants. Following refinements, testing in a pragmatic trial is underway.

Identifiants

pubmed: 33222498
doi: 10.1080/13607863.2020.1845299
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1463-1474

Subventions

Organisme : Department of Health
ID : 08/14/06
Pays : United Kingdom
Organisme : Department of Health
ID : 08/14/99
Pays : United Kingdom
Organisme : Marie Curie
ID : MCCC-FCO-11-U
Pays : United Kingdom

Auteurs

Penny Rapaport (P)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Alexandra Burton (A)

Research Department of Behavioural Science and Health, UCL, Institute of Epidemiology & Health Care , London , United Kingdom of Great Britain and Northern Ireland.

Marina Palomo (M)

Camden and Islington NHS Foundation Trust , London , United Kingdom of Great Britain and Northern Ireland.

Jessica Griffiths (J)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Daniel Kelleher (D)

Centre for Applied Dementia Studies, University of Bradford , Bradford , United Kingdom of Great Britain and Northern Ireland.

Monica Leverton (M)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Victoria Vickerstaff (V)

Division of Psychiatry, UCL Marie Curie Palliative Care Research Unit , London , United Kingdom of Great Britain and Northern Ireland.

Julie Barber (J)

Statistical Sciences, UCL , London , United Kingdom of Great Britain and Northern Ireland.
Priment Clinical Trials Unit, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Megan Bird (M)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Jessica Budgett (J)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Jodie Birch (J)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Kenneth Rockwood (K)

MRC Unit for Lifelong Health and Aging, UCL , London , United Kingdom of Great Britain and Northern Ireland.

Murna Downs (M)

Centre for Applied Dementia Studies, University of Bradford , Bradford , United Kingdom of Great Britain and Northern Ireland.

Kathryn Lord (K)

Centre for Applied Dementia Studies, University of Bradford , Bradford , United Kingdom of Great Britain and Northern Ireland.

Helen C Kales (HC)

Department of Psychiatry and Behavioural Sciences, UC Davis , Davis , CA , USA.

Gill Livingston (G)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.
Camden and Islington NHS Foundation Trust , London , United Kingdom of Great Britain and Northern Ireland.

Peter Riley (P)

Alzheimer's Society Research Network Volunteers , London , United Kingdom of Great Britain and Northern Ireland.

Claudia Cooper (C)

Division of Psychiatry, UCL , London , United Kingdom of Great Britain and Northern Ireland.
Camden and Islington NHS Foundation Trust , London , United Kingdom of Great Britain and Northern Ireland.

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Classifications MeSH