The Swedish National Airway Register (SNAR): development, design and utility to date.
Asthma
COPD
asthma control
health status
quality register
treatment
Journal
European clinical respiratory journal
ISSN: 2001-8525
Titre abrégé: Eur Clin Respir J
Pays: United States
ID NLM: 101662134
Informations de publication
Date de publication:
23 Oct 2020
23 Oct 2020
Historique:
entrez:
23
11
2020
pubmed:
24
11
2020
medline:
24
11
2020
Statut:
epublish
Résumé
The Swedish National Airway Register (SNAR) was initiated in 2013 to ensure and improve the quality of care for patients with asthma and COPD. To describe the development and design of SNAR, and to study the 2019 data to evaluate its potential utility related to improvement of quality of care. SNAR includes data from patients with asthma (both children and adults) and COPD from primary, secondary and tertiary care, and also, for COPD inpatient care. Data on diagnostic investigations (e.g. spirometry, blood sample, skin prick test), symptom-scores, comorbidities and prescribed treatments are registered. The registrations are entered manually by healthcare professionals, or directly transferred from electronic medical records to a web-based platform. In 2019, 1000 clinics participated and data were directly transferred by about 88% of them. The register included data on 205,833 patients with asthma and 80,372 with COPD (of these, 5% had both diagnoses). Registrations of new patients and follow-up visits from primary and secondary/tertiary care in 2019 were completed for 75,707 patients with asthma (11,818 children <12 yr, 6545 adolescents 12-17 yr, and 57,344 adults >17 yr) and 38,117 with COPD. Depending on age and disease group, 43-77% had performed spirometry, 36-65% Asthma Control Test, and 60% COPD Assessment Test. The prevalence of current smoking was about 2% in adolescents, 10% in adults with asthma, and 34% in COPD. For these, smoking cessation support was offered to 27%, 38% and 51%, respectively. Overall, limited data were available on investigation of allergy, 6-min walk test, patient education and written treatment plans. Regarding asthma, sex-differences in disease management were evident. SNAR has cumulatively registered data from over 270,000 individuals, and the register is important for patients, caregivers, authorities, politicians and researchers to evaluate the effect of treatment and to ensure high and equal quality of care nationwide.
Sections du résumé
BACKGROUND
BACKGROUND
The Swedish National Airway Register (SNAR) was initiated in 2013 to ensure and improve the quality of care for patients with asthma and COPD.
AIM
OBJECTIVE
To describe the development and design of SNAR, and to study the 2019 data to evaluate its potential utility related to improvement of quality of care.
METHODS
METHODS
SNAR includes data from patients with asthma (both children and adults) and COPD from primary, secondary and tertiary care, and also, for COPD inpatient care. Data on diagnostic investigations (e.g. spirometry, blood sample, skin prick test), symptom-scores, comorbidities and prescribed treatments are registered. The registrations are entered manually by healthcare professionals, or directly transferred from electronic medical records to a web-based platform.
RESULTS
RESULTS
In 2019, 1000 clinics participated and data were directly transferred by about 88% of them. The register included data on 205,833 patients with asthma and 80,372 with COPD (of these, 5% had both diagnoses). Registrations of new patients and follow-up visits from primary and secondary/tertiary care in 2019 were completed for 75,707 patients with asthma (11,818 children <12 yr, 6545 adolescents 12-17 yr, and 57,344 adults >17 yr) and 38,117 with COPD. Depending on age and disease group, 43-77% had performed spirometry, 36-65% Asthma Control Test, and 60% COPD Assessment Test. The prevalence of current smoking was about 2% in adolescents, 10% in adults with asthma, and 34% in COPD. For these, smoking cessation support was offered to 27%, 38% and 51%, respectively. Overall, limited data were available on investigation of allergy, 6-min walk test, patient education and written treatment plans. Regarding asthma, sex-differences in disease management were evident.
CONCLUSION
CONCLUSIONS
SNAR has cumulatively registered data from over 270,000 individuals, and the register is important for patients, caregivers, authorities, politicians and researchers to evaluate the effect of treatment and to ensure high and equal quality of care nationwide.
Identifiants
pubmed: 33224453
doi: 10.1080/20018525.2020.1833412
pii: 1833412
pmc: PMC7594834
doi:
Types de publication
Journal Article
Langues
eng
Pagination
1833412Informations de copyright
© 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
Déclaration de conflit d'intérêts
No potential conflict of interest was reported by the authors.
Références
Scand J Prim Health Care. 2018 Mar;36(1):5-13
pubmed: 29334861
Respir Med. 2020 Feb;162:105860
pubmed: 32056670
Clin Res Cardiol. 2019 Mar;108(3):324-332
pubmed: 30167806
Am J Respir Crit Care Med. 2007 Sep 15;176(6):532-55
pubmed: 17507545
COPD. 2015 Aug;12(4):381-9
pubmed: 25415366
Am J Respir Crit Care Med. 2018 Oct 15;198(8):1012-1020
pubmed: 29756989
Pediatr Pulmonol. 2017 Jul;52(7):866-872
pubmed: 28444980
Eur Respir J. 2014 Dec;44(6):1428-46
pubmed: 25359355
COPD. 2018 Oct;15(5):454-463
pubmed: 30475654
Diabet Med. 2005 Oct;22(10):1420-6
pubmed: 16176206
J Allergy Clin Immunol. 2004 Jan;113(1):59-65
pubmed: 14713908
J Asthma. 2010 May;47(4):345-61
pubmed: 20528586
Int J Chron Obstruct Pulmon Dis. 2016 Oct 26;11:2681-2690
pubmed: 27822030
BMC Pulm Med. 2009 May 19;9:24
pubmed: 19454036
Eur Respir Rev. 2013 Mar 1;22(127):37-43
pubmed: 23457163
Allergy. 2008 Aug;63(8):1054-60
pubmed: 18691307
Clin Exp Allergy. 2017 Nov;47(11):1426-1435
pubmed: 28608416
Acta Paediatr. 2017 Jan;106(1):75-80
pubmed: 27102081
J Allergy Clin Immunol. 2006 Mar;117(3):549-56
pubmed: 16522452
Mayo Clin Proc. 2016 Apr;91(4):411-21
pubmed: 26944837
Int J Chron Obstruct Pulmon Dis. 2018 Jan 11;13:275-285
pubmed: 29391785
Clin Exp Allergy. 2019 Jun;49(6):819-828
pubmed: 30817038
J Alzheimers Dis. 2018;66(1):185-194
pubmed: 30248059
Eur J Epidemiol. 2019 Apr;34(4):423-437
pubmed: 30929112
Respir Med. 2016 May;114:103-10
pubmed: 27109819
Pediatrics. 2016 Jan;137(1):
pubmed: 26712860
Int J Chron Obstruct Pulmon Dis. 2017 Jul 20;12:2095-2100
pubmed: 28790812
Eur Clin Respir J. 2018 Jul 31;5(1):1500073
pubmed: 30083305
Eur Respir J. 2009 Sep;34(3):648-54
pubmed: 19720809
Eur Clin Respir J. 2016 Apr 21;3:31090
pubmed: 27105945
J Allergy Clin Immunol. 2007 Apr;119(4):817-25
pubmed: 17353040
Am J Respir Crit Care Med. 2018 Nov 1;198(9):1130-1139
pubmed: 29979608
BMC Public Health. 2012 Mar 19;12:204
pubmed: 22429515
Am J Respir Crit Care Med. 2019 Oct 15;200(8):e70-e88
pubmed: 31613151
Eur Clin Respir J. 2016 May 27;3:31459
pubmed: 27238360
J Am Med Dir Assoc. 2017 Dec 1;18(12):1097.e11-1097.e24
pubmed: 29169740