Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer's and Dementia Research.
bias
dementia
recruitment science
research recruitment
undue influence
Journal
Journal of empirical research on human research ethics : JERHRE
ISSN: 1556-2654
Titre abrégé: J Empir Res Hum Res Ethics
Pays: United States
ID NLM: 101273949
Informations de publication
Date de publication:
Historique:
pubmed:
27
11
2020
medline:
18
9
2021
entrez:
26
11
2020
Statut:
ppublish
Résumé
The urgent need to expand enrollment in Alzheimer's disease and related dementia (ADRD) research has synergized calls for an empiric science of research recruitment, yet, progress in this area is hindered by challenges to measuring views toward ADRD research. This paper reports ethical and methodological considerations identified through a prospective qualitative study investigating ADRD patient and caregiver views on research recruitment and participation surrounding acute illness. Ethical and methodological considerations were identified through a combination of memoing, collaboration with a Community Advisory Board (CAB), and analysis of interview data from ADRD patients (
Identifiants
pubmed: 33238781
doi: 10.1177/1556264620974898
pmc: PMC8035267
mid: NIHMS1685877
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Langues
eng
Sous-ensembles de citation
IM
Pagination
88-104Subventions
Organisme : NIA NIH HHS
ID : K76 AG060005
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG062715
Pays : United States
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