Impact of COVID-19 pandemic on pediatric patients with epilepsy - The caregiver perspective.
COVID-19
Lockdown
Pediatric epilepsy
Remote consultation
Telehealth
Telemedicine
Journal
Epilepsy & behavior : E&B
ISSN: 1525-5069
Titre abrégé: Epilepsy Behav
Pays: United States
ID NLM: 100892858
Informations de publication
Date de publication:
12 2020
12 2020
Historique:
received:
17
09
2020
revised:
29
09
2020
accepted:
01
10
2020
pubmed:
27
11
2020
medline:
30
12
2020
entrez:
26
11
2020
Statut:
ppublish
Résumé
The recent COVID-19 pandemic has disrupted care systems around the world. We assessed how the COVID-19 pandemic affected children with epilepsy in Italy, where lockdown measures were applied from March 8 to May 4, 2020. We compiled an Italian-language online survey on changes to healthcare and views on telehealth. Invitations were sent to 6631 contacts of all patients diagnosed with epilepsy within the last 5 years at the BambinoGesù Children's Hospital in Rome. Of the 3321 responses received, 55.6% of patients were seizure-free for at least 1 year before the COVID-19-related lockdown, 74.4% used anti-seizure medications (ASMs), and 59.7% had intellectual disability. Only 10 patients (0.4%) became infected with Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2). Seizure frequency remained stable for most patients during the lockdown period (increased in 13.2%; decreased in 20.3%), and seizure duration, use of rescue medications, and adherence to treatment were unchanged. Comorbidities were more affected (behavioral problems worsened in 35.8%; sleep disorder worsened in 17.0%). Visits were canceled/postponed for 41.0%, but 25.1% had remote consultation during the lockdown period (93.9% were satisfied). Most responders (67.2%) considered continued remote consultations advantageous. Our responses support that patients/caregivers are willing to embrace telemedicine for some scenarios.
Identifiants
pubmed: 33242768
pii: S1525-5050(20)30707-1
doi: 10.1016/j.yebeh.2020.107527
pmc: PMC7683298
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
107527Informations de copyright
Copyright © 2020 Elsevier Inc. All rights reserved.
Références
Epilepsia. 2005 May;46(5):767-70
pubmed: 15857445
J Child Neurol. 2020 Nov;35(13):924-933
pubmed: 32666891
Epilepsia. 2020 Jun;61(6):1312-1314
pubmed: 32420620
Pediatr Infect Dis J. 2020 Sep;39(9):e221-e225
pubmed: 32639459
Epilepsia. 2002;43 Suppl 4:3-9
pubmed: 12059995
Neurology. 2020 Jun 9;94(23):1032-1037
pubmed: 32327490
Epilepsy Behav. 2020 Nov;112:107376
pubmed: 32882627
Epileptic Disord. 2015 Jun;17(2):117-23
pubmed: 25895502
Front Pediatr. 2020 Jul 03;8:431
pubmed: 32719759
Pediatr Neurol. 2016 Nov;64:32-37
pubmed: 27742162
Epilepsia. 2007 Dec;48(12):2336-44
pubmed: 17662062
Lancet. 2012 Dec 15;380(9859):2197-223
pubmed: 23245608
Curr Neurol Neurosci Rep. 2014 May;14(5):444
pubmed: 24652452
Epilepsy Behav. 2020 Jul;108:107122
pubmed: 32361677
Epilepsia. 2019 Dec;60 Suppl 3:S17-S24
pubmed: 31904117
Epilepsia. 2005 May;46(5):614-5
pubmed: 15857424
Epilepsia. 2008 Apr;49(4):573-85
pubmed: 18076644