Impact of COVID-19 pandemic in pediatric patients with epilepsy with neuropsychiatric comorbidities: A telemedicine evaluation.


Journal

Epilepsy & behavior : E&B
ISSN: 1525-5069
Titre abrégé: Epilepsy Behav
Pays: United States
ID NLM: 100892858

Informations de publication

Date de publication:
02 2021
Historique:
received: 21 08 2020
revised: 14 09 2020
accepted: 20 09 2020
pubmed: 2 12 2020
medline: 23 2 2021
entrez: 1 12 2020
Statut: ppublish

Résumé

The objective of this study was to evaluate care needs, emotional and behavioral changes, and parental stress indices in a cohort of pediatric patients with epilepsy with neurocognitive and emotional comorbidities at the time of the coronavirus disease 2019 (COVID-19) pandemic. This is a prospective observational study involving pediatric patients with epilepsy with neurocognitive and emotional comorbidities. Included patients were admitted to our hospital between August 2019 and February 2020 for epilepsy and neuropsychiatric assessment, and Child Behavior Checklist (CBCL) questionnaires were filled in by parents. Those patients and their families accepted to participate in a phone follow-up visit in April-May 2020 and to refill CBCL and Parenting Stress Index-Short Form (PSI-SF) questionnaires. Descriptive statistics for demographic and clinical data, CBCL questionnaire scores before and during the COVID-19 pandemic, and PSI-SF scores have been computed. Moreover, results of a short phone survey on the psychological burden during COVID lockdown have been reported. This study provides the parental-proxy report of emotional and behavioral profile changes of 23 pediatric patients with epilepsy and neurocognitive and emotional comorbidities during the COVID-19 pandemic. Concerns for therapy monitoring at the time of lockdown emerged in 43% of families, and 30% of patients showed worries for an altered contact with the referring medical team. Patients with neurocognitive comorbidities were more likely to exhibit behavioral problems, especially externalizing problems compared with patients with a diagnosis of anxiety/depression. Our data suggest the importance to monitor disease trajectory and behavior and affective symptoms with telehealth strategies to provide effective care to patients and their families.

Identifiants

pubmed: 33257293
pii: S1525-5050(20)30699-5
doi: 10.1016/j.yebeh.2020.107519
pmc: PMC7695947
pii:
doi:

Types de publication

Journal Article Observational Study

Langues

eng

Sous-ensembles de citation

IM

Pagination

107519

Informations de copyright

Copyright © 2020 Elsevier Inc. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of competing interest None of the authors has any conflict of interest to disclose.

Références

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Auteurs

Ludovica Pasca (L)

Department of Child Neurology and Psychiatry, IRCSS Mondino Foundation, Pavia, Italy; Department of Brain and Behaviour Neuroscience, University of Pavia, Pavia, Italy. Electronic address: ludovica.pasca01@universitadipavia.it.

Martina Paola Zanaboni (MP)

Department of Child Neurology and Psychiatry, IRCSS Mondino Foundation, Pavia, Italy. Electronic address: martinapaola.zanaboni@mondino.it.

Serena Grumi (S)

Department of Child Neurology and Psychiatry, IRCSS Mondino Foundation, Pavia, Italy.

Martina Totaro (M)

Department of Child Neurology and Psychiatry, IRCSS Mondino Foundation, Pavia, Italy; Department of Brain and Behaviour Neuroscience, University of Pavia, Pavia, Italy. Electronic address: martina.totaro01@universitadipavia.it.

Elena Ballante (E)

BioData Science Center, IRCCS Mondino Foundation, Pavia, Italy. Electronic address: elena.ballante01@universitadipavia.it.

Costanza Varesio (C)

Department of Child Neurology and Psychiatry, IRCSS Mondino Foundation, Pavia, Italy. Electronic address: costanza.varesio@mondino.it.

Valentina De Giorgis (V)

Department of Child Neurology and Psychiatry, IRCSS Mondino Foundation, Pavia, Italy. Electronic address: valentina.degiorgis@mondino.it.

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