Family functioning guidelines for the care of people with spina bifida.
Spina bifida
family functioning
myelomeningocele
neural tube defects
Journal
Journal of pediatric rehabilitation medicine
ISSN: 1875-8894
Titre abrégé: J Pediatr Rehabil Med
Pays: Netherlands
ID NLM: 101490944
Informations de publication
Date de publication:
Historique:
pubmed:
9
12
2020
medline:
9
10
2021
entrez:
8
12
2020
Statut:
ppublish
Résumé
Research supports a resilience-disruption model of family functioning in families with a child with spina bifida. Guidelines are warranted to both minimize disruption to the family system and maximize family resilience and adaptation to multiple spina bifida-related and normative stressors. This article discusses the spina bifida family functioning guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, and reviews evidence-based directions with the intention of helping individuals with spina bifida achieve optimal mental health throughout their lifespan. Guidelines address clinical questions pertaining to the impact of having a child with spina bifida on family functioning, resilience and vulnerability factors, parenting behaviors that may facilitate adaptive child outcomes, and appropriate interventions or approaches to promote family functioning. Gaps in the research and future directions are discussed.
Identifiants
pubmed: 33285643
pii: PRM200720
doi: 10.3233/PRM-200720
pmc: PMC7838971
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Research Support, U.S. Gov't, P.H.S.
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
535-542Subventions
Organisme : NICHD NIH HHS
ID : R01 HD048629
Pays : United States
Organisme : NINR NIH HHS
ID : R01 NR016235
Pays : United States
Organisme : NCBDD CDC HHS
ID : U01 DD001077
Pays : United States
Organisme : ACL HHS
ID : U01DD001077
Pays : United States
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