Prenatal counseling: Guidelines for the care of people with spina bifida.


Journal

Journal of pediatric rehabilitation medicine
ISSN: 1875-8894
Titre abrégé: J Pediatr Rehabil Med
Pays: Netherlands
ID NLM: 101490944

Informations de publication

Date de publication:
Historique:
pubmed: 9 12 2020
medline: 9 10 2021
entrez: 8 12 2020
Statut: ppublish

Résumé

As the diagnosis of Spina Bifida (SB) is often made prenatally, SB-specific prenatal counseling is needed. It is essential to provide information about medical care and lifelong impact of this diagnosis, treatment options available to women carrying fetuses affected, and resources that will assist in the care of individuals with SB. This article outlines the SB Prenatal Counseling Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB prenatal counseling is warranted.

Identifiants

pubmed: 33285644
pii: PRM200735
doi: 10.3233/PRM-200735
pmc: PMC7838969
doi:

Types de publication

Journal Article Research Support, U.S. Gov't, P.H.S. Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

461-466

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Auteurs

Paige Terrien Church (PT)

Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.
Department of Paediatrics, University of Toronto, Toronto, ON, Canada.
Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.

Heidi Castillo (H)

Meyer Center for Developmental Pediatrics, Texas Children's Hospital/BMC, Houston, TX, USA.
Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.

Jonathan Castillo (J)

Meyer Center for Developmental Pediatrics, Texas Children's Hospital/BMC, Houston, TX, USA.
Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.

Anne Berndl (A)

Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.
Department of Paediatrics, University of Toronto, Toronto, ON, Canada.

Timothy Brei (T)

Developmental Pediatrics, Seattle Children's Hospital, Seattle, WA, USA.

Gregory Heuer (G)

Division of Neurosurgery, Children's Hospital of Philadelphia, Philadelphia, PA, USA.

Lori J Howell (LJ)

Center for Fetal Diagnosis and Treatment, Children's Hospital of Philadelphia, Philadelphia, PA, USA.

Mark Merkens (M)

Developmental Pediatrics, Portland, Oregon Health and Science University, OR, USA.

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