The experience of living with a chronic disease in pediatrics from the mothers' narratives: The Clinical Interview on Parental Sense of Grip on the Disease.
adjustment
children
chronic disease
clinical interview
narrative analysis
narratives
parents
qualitative analysis
Journal
Health psychology open
ISSN: 2055-1029
Titre abrégé: Health Psychol Open
Pays: England
ID NLM: 101642883
Informations de publication
Date de publication:
Historique:
entrez:
21
12
2020
pubmed:
22
12
2020
medline:
22
12
2020
Statut:
epublish
Résumé
The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.
Identifiants
pubmed: 33343914
doi: 10.1177/2055102920971496
pii: 10.1177_2055102920971496
pmc: PMC7727074
doi:
Types de publication
Journal Article
Langues
eng
Pagination
2055102920971496Informations de copyright
© The Author(s) 2020.
Déclaration de conflit d'intérêts
Declaration of conflicting interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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