Discordant Patient and Clinician Perspectives on the Potential Value of Genetic Services in Safety-Net Clinics.


Journal

Journal of health care for the poor and underserved
ISSN: 1548-6869
Titre abrégé: J Health Care Poor Underserved
Pays: United States
ID NLM: 9103800

Informations de publication

Date de publication:
2020
Historique:
entrez: 8 1 2021
pubmed: 9 1 2021
medline: 28 9 2021
Statut: ppublish

Résumé

As new genetic services become available, their implementation in safety-net settings must be studied. We interviewed stakeholders (patients and primary care clinicians) from federally qualified health centers to discuss the utility, acceptability, and priority of new genetic services. We presented scenarios tailored for each audience describing carrier testing, diagnostic testing for a developmental delay, and hereditary cancer syndrome testing. We summarized transcripts using the framework method and compared patient and clinician perspectives. Clinicians questioned the relevance and priority of genetic services. Hereditary cancer testing was perceived most favorably by clinicians, who focused on actionability, cost, and access to downstream care. Patients stated that access to genetic services was important and that there should be parity across safety-net and higher-resourced settings. Genetic services with clear clinical impact are more acceptable to clinicians in safety-net clinics. Clinicians may be underestimating patients' interest in expanded genetic services.

Identifiants

pubmed: 33416699
pii: S1548686920300231
doi: 10.1353/hpu.2020.0099
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Pagination

1347-1363

Auteurs

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