End-user perspectives on the development of an online intervention for parents of children on the autism spectrum.
autism
eHealth
family caregiver
online intervention
parents
Journal
Autism : the international journal of research and practice
ISSN: 1461-7005
Titre abrégé: Autism
Pays: England
ID NLM: 9713494
Informations de publication
Date de publication:
07 2021
07 2021
Historique:
pubmed:
12
1
2021
medline:
14
8
2021
entrez:
11
1
2021
Statut:
ppublish
Résumé
Parent caregivers play an essential role in the lives of individuals on the autism spectrum. The demands of caregiving can have negative effects on the mental and physical wellbeing of parents. Different types of formal support have been developed to help parents to cope with caregiving; however, many parents struggle to access services due to limited availability and busy schedules. The Internet could offer parents more accessible and flexible support. We asked 17 parents what content they would like to include in an online resource. Parents told us about their experiences trying to access and use existing formal support and websites. They overwhelmingly supported the development of an online resource informed by their suggestions. Parents emphasised the need for easier access to information through educational components and direct access to healthcare professionals online. Parents also wanted help with finding existing services and reliable, locally relevant information. Parents stressed the need for a safe environment to meet and chat with other parents online. This research forms the first stage in the development process of an online health resource for parents.
Identifiants
pubmed: 33423522
doi: 10.1177/1362361320984895
pmc: PMC8264643
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
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