Modifiable factors related to transition readiness in adolescents and young adults with epilepsy.
AYA
Chronic illness
Disease knowledge
Neurological disorders
Transfer
Journal
Epilepsy & behavior : E&B
ISSN: 1525-5069
Titre abrégé: Epilepsy Behav
Pays: United States
ID NLM: 100892858
Informations de publication
Date de publication:
02 2021
02 2021
Historique:
received:
08
09
2020
revised:
25
11
2020
accepted:
14
12
2020
pubmed:
14
1
2021
medline:
20
4
2021
entrez:
13
1
2021
Statut:
ppublish
Résumé
To characterize transition readiness in adolescents and young adults (AYAs) with epilepsy and validate the social-ecological model of AYA readiness to transition (SMART) in a sample of AYAs with epilepsy. This cross-sectional study included typically developing youth with epilepsy 13-25 years old seen in a comprehensive epilepsy center. Adolescents and young adults completed measures of transition readiness (Transition Readiness Assessment Questionnaire; TRAQ), epilepsy knowledge, epilepsy self-management, developmental factors, and emotional and behavioral functioning. Adolescents and young adults also completed a measure of their relationship quality with healthcare providers. Caregiver report was included when available. Participants included 82 AYAs (M Transition readiness in AYAs with epilepsy was predicted by non-modifiable (e.g., age) and correlated with modifiable factors (e.g., knowledge, psychosocial/cognitive functioning). Providers must better prepare patients prior to transfer, and future research should use an epilepsy-specific measure of transition readiness to identify targets for intervention.
Identifiants
pubmed: 33440273
pii: S1525-5050(20)30898-2
doi: 10.1016/j.yebeh.2020.107718
pii:
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
107718Informations de copyright
Copyright © 2021 Elsevier Inc. All rights reserved.