Parent Experiences Caring for a Child With Bronchiolitis: A Qualitative Study.
bronchiolitis
parent experiences
pediatrics
qualitative methods
Journal
Journal of patient experience
ISSN: 2374-3735
Titre abrégé: J Patient Exp
Pays: United States
ID NLM: 101688338
Informations de publication
Date de publication:
Dec 2020
Dec 2020
Historique:
entrez:
18
1
2021
pubmed:
19
1
2021
medline:
19
1
2021
Statut:
ppublish
Résumé
Bronchiolitis is an acute lower respiratory infection, with significant impacts on children and families and strains on the health care system. Understanding parents' experiences and information needs caring for a child with bronchiolitis is crucial to highlight misconceptions or issues contributing to the high burden. The objective of this qualitative study was to describe parents' experiences caring for a child with bronchiolitis. Qualitative description guided this study. Participants were recruited from the Stollery Children's Hospital emergency department (ED), a specialized pediatric ED in a major Canadian urban center. Semi-structured interviews were conducted with 15 parents. Five major themes were identified: (a) their children's symptoms and behaviors, (b) bronchiolitis affects the entire family, (c) factors influencing parent's decision to go to ED, (d) ED experience for parents and their children, and (e) bronchiolitis treatment and management. Interviews revealed bronchiolitis has significant effects on both children and families and parents are generally unaware of bronchiolitis symptoms, treatment, and management. Our study highlights that parents have knowledge deficits when it comes to recognizing the presence and severity of bronchiolitis symptoms. Parents would benefit from having more evidence-based resources to enhance their knowledge about the nature of bronchiolitis.
Sections du résumé
BACKGROUND
BACKGROUND
Bronchiolitis is an acute lower respiratory infection, with significant impacts on children and families and strains on the health care system. Understanding parents' experiences and information needs caring for a child with bronchiolitis is crucial to highlight misconceptions or issues contributing to the high burden. The objective of this qualitative study was to describe parents' experiences caring for a child with bronchiolitis.
METHODS
METHODS
Qualitative description guided this study. Participants were recruited from the Stollery Children's Hospital emergency department (ED), a specialized pediatric ED in a major Canadian urban center. Semi-structured interviews were conducted with 15 parents.
RESULTS
RESULTS
Five major themes were identified: (a) their children's symptoms and behaviors, (b) bronchiolitis affects the entire family, (c) factors influencing parent's decision to go to ED, (d) ED experience for parents and their children, and (e) bronchiolitis treatment and management. Interviews revealed bronchiolitis has significant effects on both children and families and parents are generally unaware of bronchiolitis symptoms, treatment, and management.
CONCLUSIONS
CONCLUSIONS
Our study highlights that parents have knowledge deficits when it comes to recognizing the presence and severity of bronchiolitis symptoms. Parents would benefit from having more evidence-based resources to enhance their knowledge about the nature of bronchiolitis.
Identifiants
pubmed: 33457588
doi: 10.1177/2374373520924526
pii: 10.1177_2374373520924526
pmc: PMC7786786
doi:
Types de publication
Journal Article
Langues
eng
Pagination
1362-1368Informations de copyright
© The Author(s) 2020.
Déclaration de conflit d'intérêts
Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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