Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study.
Adults
Autism spectrum disorder
Diagnosis
Services
Journal
Journal of autism and developmental disorders
ISSN: 1573-3432
Titre abrégé: J Autism Dev Disord
Pays: United States
ID NLM: 7904301
Informations de publication
Date de publication:
Nov 2021
Nov 2021
Historique:
accepted:
04
01
2021
pubmed:
28
1
2021
medline:
15
10
2021
entrez:
27
1
2021
Statut:
ppublish
Résumé
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
Identifiants
pubmed: 33502713
doi: 10.1007/s10803-021-04873-5
pii: 10.1007/s10803-021-04873-5
pmc: PMC8510906
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
4129-4146Subventions
Organisme : European Parliament and managed by the European Union, DGSANCO
ID : SANCO/2014/C2/035
Organisme : Italian Ministry of Health
ID : 1S49
Organisme : Italian Ministry of Health
ID : 2S57
Informations de copyright
© 2021. The Author(s).
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