Assessing the health-related management of people with differences of sex development.
Benchmark
Differences of sex development
Health care system
Nonbinary concept of sex
Quality indicator
Journal
Endocrine
ISSN: 1559-0100
Titre abrégé: Endocrine
Pays: United States
ID NLM: 9434444
Informations de publication
Date de publication:
03 2021
03 2021
Historique:
received:
01
11
2020
accepted:
09
01
2021
pubmed:
31
1
2021
medline:
9
7
2021
entrez:
30
1
2021
Statut:
ppublish
Résumé
Health care requirements and perception of people with differences of sex development (DSD) have changed enormously since the "Chicago Consensus Conference" in 2005. Therefore, new standards of care and evaluation of care have to be developed. We summarize the social and legal approach to care for DSD during the last two decades and report the main results of European research activities. The last two decades were accompanied by legal and societal discussion regarding how to deal with a nonbinary concept of sex. This leads to the necessity to assess health care requirements for individuals with DSD in an objective manner. We briefly review the results of the recently funded European research projects dealing with health-related issues in DSD like EU COST Action DSD, I-DSD, and dsd-LIFE, and address the compilation of quality indicators that will be needed to benchmark health care provision and health care-related outcomes. The benchmarking process has to be implemented among health care providers for individuals with DSD within the European Reference Networks for Rare Conditions.
Identifiants
pubmed: 33515437
doi: 10.1007/s12020-021-02627-y
pii: 10.1007/s12020-021-02627-y
pmc: PMC8016813
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
675-680Références
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