Barriers and Facilitators to Physical Activity for People With Scleroderma: A Scleroderma Patient-Centered Intervention Network Cohort Study.


Journal

Arthritis care & research
ISSN: 2151-4658
Titre abrégé: Arthritis Care Res (Hoboken)
Pays: United States
ID NLM: 101518086

Informations de publication

Date de publication:
08 2022
Historique:
revised: 22 12 2020
received: 16 07 2020
accepted: 28 01 2021
pubmed: 3 2 2021
medline: 28 7 2022
entrez: 2 2 2021
Statut: ppublish

Résumé

To support physical activity among people with systemic sclerosis (SSc [scleroderma]), we sought to determine the prevalence and importance of barriers and the likelihood of using possible facilitators. We invited 1,707 participants from an international SSc cohort to rate the importance of 20 barriers (14 medical, 4 social or personal, 1 lifestyle, and 1 environmental) and the likelihood of using 91 corresponding barrier-specific and 12 general facilitators. Among 721 respondents, 13 barriers were experienced by ≥25% of participants, including 2 barriers (fatigue and Raynaud's phenomenon) rated "important" or "very important" by ≥50% of participants, 7 barriers (joint stiffness and contractures, shortness of breath, gastrointestinal problems, difficulty grasping, pain, muscle weakness and mobility limitations, and low motivation) by 26-50%, and 4 barriers by <26%. Overall, 23 of 103 facilitators (18 medical-related) were rated by ≥75% of participants as "likely" or "very likely" to use among those who experienced corresponding barriers. These facilitators focused on adapting exercise (e.g., using controlled, slow movement), taking care of one's body (e.g., stretching), keeping warm (e.g., wearing gloves), and protecting skin (e.g., covering ulcers). Among those participants who had previously tried the facilitator, all facilitators were rated by ≥50% as "likely" or "very likely" to use. Among those participants with the barrier who had not tried the facilitator, only 12 of 103 facilitators were rated by >50% of participants as "likely" or "very likely" to use. Medical-related physical activity barriers were common and considered important. Facilitators considered as most likely to be used involved adapting exercise, taking care of one's body, keeping warm, and protecting skin.

Identifiants

pubmed: 33527717
doi: 10.1002/acr.24567
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1300-1310

Subventions

Organisme : CIHR
ID : 157064
Pays : Canada

Informations de copyright

© 2021 American College of Rheumatology.

Références

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Auteurs

Sami Harb (S)

Jewish General Hospital and McGill University, Montreal, Quebec, Canada.

Sandra Peláez (S)

Jewish General Hospital and Centre Hospitalier Universitaire Sainte-Justine, Montreal, Quebec, Canada.

Marie-Eve Carrier (ME)

Jewish General Hospital, Montreal, Quebec, Canada.

Linda Kwakkenbos (L)

Radboud University, Nijmegen, The Netherlands.

Susan J Bartlett (SJ)

McGill University, Montreal, Quebec, Canada.

Marie Hudson (M)

Jewish General Hospital and McGill University, Montreal, Quebec, Canada.

Luc Mouthon (L)

Hôpitaux de Paris, Université Paris Descartes and Service de Médecine Interne, Hôpital Cohin, Paris, France.

Maureen Sauvé (M)

Scleroderma Canada and Scleroderma Society of Ontario, Hamilton, Ontario, Canada.

Joep Welling (J)

Federation of European Scleroderma Associations, Brussels, Belgium.

Ian Shrier (I)

Jewish General Hospital, Montreal, Quebec, Canada.

Brett D Thombs (BD)

Jewish General Hospital and McGill University, Montreal, Quebec, Canada.

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