Functioning in adult patients with idiopathic inflammatory myopathy: Exploring the role of environmental factors using focus groups.
Journal
PloS one
ISSN: 1932-6203
Titre abrégé: PLoS One
Pays: United States
ID NLM: 101285081
Informations de publication
Date de publication:
2021
2021
Historique:
received:
15
04
2020
accepted:
19
12
2020
entrez:
11
2
2021
pubmed:
12
2
2021
medline:
29
7
2021
Statut:
epublish
Résumé
Health-related quality of life is impaired in idiopathic inflammatory myopathies. This study aimed to identify the main areas of the health-related quality of life environment domain that are affected in patients with myositis. A qualitative study was performed using focus groups and applying the International Classification of Functioning, Disability, and Health. Participants were recruited from a cohort of 323 adult inflammatory myopathy patients consulting at a reference center for idiopathic inflammatory myopathy in Spain, selected by the maximum variation strategy, and placed in focus groups with 5 to 7 patients per group. The number of focus groups required was determined by data saturation. Twenty-five patients distributed in 4 focus groups were interviewed. The verbatim provided 54 categories directly related with environmental factors. Those associated with products or substances for personal consumption (e110), health professionals (e355), health services, systems and policies (e580), products and technology for personal use in daily living (e115), and immediate family (e310) were the ones most frequently reported. The results of this study led to identification of several environmental factors that affect the health-related quality of life of patients with myositis. Remedial interventions should be designed to address some of these factors.
Identifiants
pubmed: 33571213
doi: 10.1371/journal.pone.0244959
pii: PONE-D-20-10513
pmc: PMC7877601
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e0244959Déclaration de conflit d'intérêts
The authors have declared that no competing interests exist.
Références
J Rehabil Med. 2002 Sep;34(5):205-10
pubmed: 12392234
Br J Dermatol. 2015 Jan;172(1):169-74
pubmed: 24909747
Lancet. 2007 Oct 20;370(9596):1453-7
pubmed: 18064739
Rheumatol Int. 2019 Jul;39(7):1213-1220
pubmed: 31028452
Neurology. 2018 Oct 16;91(16):760
pubmed: 30323070
Ann Rheum Dis. 2017 Dec;76(12):1955-1964
pubmed: 29079590
J Am Acad Dermatol. 2011 Dec;65(6):1107-16
pubmed: 21722989
N Engl J Med. 1975 Feb 13;292(7):344-7
pubmed: 1090839
Adm Policy Ment Health. 2015 Sep;42(5):533-44
pubmed: 24193818
Disabil Rehabil. 2017 Jun;39(13):1262-1270
pubmed: 27342814
Arthritis Res Ther. 2009;11(3):R67
pubmed: 19442275
BMJ Open. 2017 Sep 5;7(9):e015927
pubmed: 28877943
PLoS One. 2016 Aug 09;11(8):e0160753
pubmed: 27504827
J Rehabil Med. 2005 Jul;37(4):212-8
pubmed: 16024476
Clin Rheumatol. 2014 Aug;33(8):1119-25
pubmed: 24894104
Disabil Rehabil. 2019 Mar;41(5):574-583
pubmed: 26984720
Arthritis Care Res (Hoboken). 2017 Nov;69(11):1743-1750
pubmed: 28118525
PLoS One. 2017 Dec 19;12(12):e0189840
pubmed: 29261752
Disabil Rehabil. 2016;38(4):337-45
pubmed: 25924018
Arthritis Care Res (Hoboken). 2015 Jul;67(7):1031-40
pubmed: 25623494
Lancet Neurol. 2018 Sep;17(9):816-828
pubmed: 30129477
Int J Neurosci. 2017 Jun;127(6):516-523
pubmed: 27412148
Biometrics. 1977 Mar;33(1):159-74
pubmed: 843571
N Engl J Med. 1975 Feb 20;292(8):403-7
pubmed: 1089199