Identification and operationalisation of indicators to monitor successful uptake of advance care planning policies: a modified Delphi study.

methodological research service evaluation

Journal

BMJ supportive & palliative care
ISSN: 2045-4368
Titre abrégé: BMJ Support Palliat Care
Pays: England
ID NLM: 101565123

Informations de publication

Date de publication:
12 Feb 2021
Historique:
received: 03 11 2020
revised: 11 01 2021
accepted: 15 01 2021
entrez: 13 2 2021
pubmed: 14 2 2021
medline: 14 2 2021
Statut: aheadofprint

Résumé

In 2014, the province of Alberta, Canada implemented a province-wide policy and procedures for advance care planning (ACP) and goals of care designation (GCD) across its complex, integrated public healthcare system. This study was conducted to identify and operationalise performance indicators for ACP/GCD to monitor policy implementation success and sustainment of ACP/GCD practice change. A systematic review and environmental scan was conducted to identify potential indicators of ACP/GCD uptake (n=132). A purposive sample of ACP/GCD stakeholders was invited to participate in a modified Delphi study to evaluate, reduce and refine these indicators through a combination of face-to-face meetings and online surveys. An evidence-informed Donabedian by Institute of Medicine (IOM) framework was adopted as an organising matrix for the indicators in an initial face-to-face meeting. Three online survey rounds reduced and refined the 132 indicators to 18. A final face-to-face meeting operationalised the indicators into a measurable format. Nine indicators, covering 11 of the 18 Donabedian×IOM domains, were operationalised. Nine ACP/GCD evidence-informed indicators mapping to 11 of 18 Donabedian×IOM domains were endorsed, and have been operationalised into an online ACP/GCD dashboard. The indicators provide a characterisation of ACP/GCD uptake that could be generalised to other healthcare settings, measuring aspects related to ACP/GCD documentation, patient satisfaction and agreement between medical orders and care received. The final nine indicators reflect the stakeholders' expressed intent to strike a balance between comprehensiveness and feasibility within a large provincial healthcare system.

Sections du résumé

BACKGROUND BACKGROUND
In 2014, the province of Alberta, Canada implemented a province-wide policy and procedures for advance care planning (ACP) and goals of care designation (GCD) across its complex, integrated public healthcare system. This study was conducted to identify and operationalise performance indicators for ACP/GCD to monitor policy implementation success and sustainment of ACP/GCD practice change.
METHODS METHODS
A systematic review and environmental scan was conducted to identify potential indicators of ACP/GCD uptake (n=132). A purposive sample of ACP/GCD stakeholders was invited to participate in a modified Delphi study to evaluate, reduce and refine these indicators through a combination of face-to-face meetings and online surveys.
RESULTS RESULTS
An evidence-informed Donabedian by Institute of Medicine (IOM) framework was adopted as an organising matrix for the indicators in an initial face-to-face meeting. Three online survey rounds reduced and refined the 132 indicators to 18. A final face-to-face meeting operationalised the indicators into a measurable format. Nine indicators, covering 11 of the 18 Donabedian×IOM domains, were operationalised.
CONCLUSIONS CONCLUSIONS
Nine ACP/GCD evidence-informed indicators mapping to 11 of 18 Donabedian×IOM domains were endorsed, and have been operationalised into an online ACP/GCD dashboard. The indicators provide a characterisation of ACP/GCD uptake that could be generalised to other healthcare settings, measuring aspects related to ACP/GCD documentation, patient satisfaction and agreement between medical orders and care received. The final nine indicators reflect the stakeholders' expressed intent to strike a balance between comprehensiveness and feasibility within a large provincial healthcare system.

Identifiants

pubmed: 33579796
pii: bmjspcare-2020-002780
doi: 10.1136/bmjspcare-2020-002780
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© Author(s) (or their employer(s)) 2021. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: JS is the Physician Consultant for Advance Care Planning and Goals of Care, Calgary Zone, Alberta Health Services. TLWM. was the Provincial Lead for Palliative End of Life Care Practice Development, Alberta Health Services at the time of this work.

Auteurs

Konrad Fassbender (K)

Department of Oncology, University of Alberta Faculty of Medicine and Dentistry, Edmonton, Alberta, Canada konrad.fassbender@ualberta.ca.

Patricia Biondo (P)

Department of Oncology, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Jayna Holroyd-Leduc (J)

Department of Medicine, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.
Department of Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Alexei Potapov (A)

Department of Oncology, University of Alberta Faculty of Medicine and Dentistry, Edmonton, Alberta, Canada.

Tracy Lynn Wityk Martin (TL)

Palliative / End of Life Care, Alberta Health Services, Edmonton, Alberta, Canada.

Eric Wasylenko (E)

Department of Oncology, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.
John Dossetor Health Ethics Centre, University of Alberta, Edmonton, Alberta, Canada.

Neil Angus Hagen (NA)

Department of Oncology, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Jessica Simon (J)

Department of Oncology, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.
Department of Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.

Classifications MeSH