Exploring service user and family perspectives of a Culturally adapted Family Intervention (CaFI) for African-Caribbean people with psychosis: A qualitative study.
African-Caribbean
Black Caribbean
acceptability
culturally adapted
family intervention
feasibility trial
psychosis
qualitative study
Journal
The British journal of clinical psychology
ISSN: 0144-6657
Titre abrégé: Br J Clin Psychol
Pays: England
ID NLM: 8105533
Informations de publication
Date de publication:
Jun 2021
Jun 2021
Historique:
revised:
18
09
2020
received:
11
02
2020
pubmed:
3
3
2021
medline:
21
5
2021
entrez:
2
3
2021
Statut:
ppublish
Résumé
In the UK, people of African-Caribbean background have the highest rates of psychosis and greatest inequity in mental health services of all ethnicities. National policies have highlighted the lack of evidence-based psychological interventions for this group. The aim of this study was to examine the acceptability of a novel Culturally adapted Family Intervention (CaFI) for African-Caribbean individuals diagnosed with non-affective psychosis and their relatives. A qualitative design. Semi-structured interviews conducted with 22 service users and 12 family members following participation in CaFI. The interview topic guide included perceptions of the needs and benefits of CaFI; usefulness, cultural specificity and accessibility of CaFI therapy and supporting materials; content and delivering of CaFI sessions; views and experiences of working with CaFI therapists; and perceived barriers and facilitators to implementation. Deductive framework analysis identified three main themes for service users: perceived benefits, barriers and limitations, and delivery of the therapy. Four themes were identified for family members: perceived benefits, perceptions of therapists, delivery of therapy, and accessibility of therapy content, supporting materials, and cultural appropriateness. CaFI was found to be an acceptable intervention for African-Caribbean service users with psychosis and their relatives. Family interventions considering the needs of ethnic and cultural groups have the potential to improve the mental health care and experiences of service users and their families. The Culturally adapted Family Intervention (CaFI) was viewed as acceptable to African-Caribbean service users with psychosis and their families. Through adapting interventions to be more culturally sensitive, it is possible to enhance the care of those who typically have poor engagement with mental health services. In-keeping with their ethos of individualized care delivery, mental health services should place more emphasis on being able to offer appropriate, culturally adapted interventions to their service users.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
270-289Subventions
Organisme : Department of Health
ID : 12/5001/62
Pays : United Kingdom
Organisme : National Institute for Health Research (NIHR) Health Service and Delivery Research (HS&DR) Programme
ID : 12/5001/62
Informations de copyright
© 2021 The Authors. British Journal of Clinical Psychology published by John Wiley & Sons Ltd on behalf of British Psychological Society.
Références
Afuwape, S. A., Craig, T. K., Harris, T., Clarke, M., Flood, A., Olajide, D., … Thornicroft, G. (2010). The Cares of Life Project (CoLP): An exploratory randomised controlled trial of a community-based intervention for black people with common mental disorder. Journal of Affective Disorders, 127, 370-374. https://doi.org/10.1016/j.jad.2010.05.017
Allen, J., Burbach, F. R., & Reibstein, J. (2013). ‘A different world’: Individuals’ experience of an integrated family intervention for psychosis and its contribution to recovery. Psychology and Psychotherapy: Theory, Research and Pratice, 86(2), 212-228. https://doi.org/10.1111/j.2044-8341.2011.02057.x
American Psychiatric Association (1994). Diagnostic criteria from the DSM-IV. Washington, DC: American Psychiatric Association.
Barnett, P., Mackay, E., Matthews, H., Gate, R., Greenwood, H., Ariyo, K., … Smith, S. (2019). Ethnic variations in compulsory detention under the Mental Health Act: A systematic review and meta-analysis of international data. The Lancet, 6, 305-317. https://doi.org/10.1016/S2215-0366(19)30027-6
Barrio, C., & Yamada, A. M. (2010). Culturally based intervention development: The case of Latino families dealing with schizophrenia. Research on Social Work Practice, 20, 483-492. https://doi.org/10.1177/1049731510361613
Barrowclough, C., & Tarrier, N. (1992). Families of schizophrenic patients: Cognitive behavioural interventions. London, UK: Chapman & Hall.
Bernal, B., & Saez-Santiago, E. (2006). Culturally centered psychosocial interventions. Journal of Community Psychology, 34, 121-132. https://doi.org/10.1002/jcop.20096
Bernal, G., Jiménez-Chafey, M. I., & Domenech-Rodríguez, M. M. (2009). Cultural adaptation of treatments: A resource for considering culture in evidence-based practice. Professional Psychology: Research and Practice, 40, 361-368. https://doi.org/10.1037/a0016401
Berry, K., Day, C., Muligan, L. D., Seed, T., Degnan, A., & Edge, D. (2018). Culturally adapted Family Intervention (CaFI): Case examples from therapists’ perspectives. The Cognitive Behaviour Therapist, 11(13), 1-18. https://doi.org/10.1017/S1754470X18000156
Berry, K., & Haddock, G. (2008). The implementation of the NICE guidelines for schizophrenia: Barriers to the implementation of psychological interventions and recommendations for the future. Psychological Psychotherapy, 81, 419-436. https://doi.org/10.1348/147608308X329540
Bhui, K., Mccabe, R., Weich, S., Singh, S., Johnson, M., & Szczepura, A. (2013). THERACOM: A systematic review of the evidence base for interventions to improve therapeutic communications between black and minority ethnic populations and staff in specialist mental health services. Systematic Reviews, 2(1), 1-11. https://doi.org/10.1186/2046-4053-2-15
Burke, E., Plye, M., Machin, K., Varses, F., & Morrison, A. P. (2019). The effects of peer support on empowerment, self-efficacy, and internalized stigma: A narrative synthesis and meta-analysis. Stigma and Health, 4, 337-356. https://doi.org/10.1037/sah0000148
Burnard, P. (1991). A method of analysing interview transcripts in qualitative research. Nurse Education Today, 11, 461-466. https://doi.org/10.1016/0260-6917(91)90009-Y
Campbell, A. S. (2004). How was it for you? Families’ experiences of receiving behavioural therapy. Journal of Psychiatric and Mental Health Nursing, 11, 261-267. https://doi.org/10.1111/j.1365-2850.2003.00696.x
Chowdhary, N., Jotheeswaran, A. T., Nadkami, A., Hollon, S. D., King, M., Jordans, M. J. D., … Patel, V. (2014). The methods and outcomes of cultural adaptations of psychological treatments for depressive disorders: A systematic review. Psychological Medicine, 44, 1131-1146. https://doi.org/10.1017/S0033291713001785
Degnan, A., Baker, S., Edge, D., Nottidge, W., Noke, M., Press, C. J., … Drake, R. J. (2017). The nature and efficacy of culturally-adapted psychosocial interventions for schizophrenia: A systematic review and meta-analysis. Psychological Medicine, 48, 714-727. https://doi.org/10.1017/S0033291717002264
Del Vecchio, V., Luciano, M., Sampogna, G., De Rosa, C., Giacco, D., Tarricone, I., … Fiorillo, A. (2015). The role of relatives in pathways to care of patients with a first episode of psychosis. International Journal of Social Psychiatry, 61, 631-637. https://doi.org/10.1177/0020764014568129
Edge, D., Degnan, A., Cotterill, S., Berry, K., Baker, J., Drake, R., & Abel, K. (2018). Culturally-adapted Family Intervention (CaFI) for African-Caribbean people diagnosed with schizophrenia and their families: A mixed methods feasibility study of development, implementation and acceptability. Health Services and Delivery Research, 6(32), 1-316. https://doi.org/10.3310/hsdr06320
Edge, D., Degnan, A., Cotterill, S., Berry, K., Drake, R., Baker, J., … Abel, K. (2016). Culturally-adapted Family Intervention (CaFI) for African-Caribbeans diagnosed with schizophrenia and their families: A feasibility study protocol of implementation and acceptability. Pilot and Feasibility Studies, 2(1), 39. https://doi.org/10.1186/s40814-016-0070-2
Edge, D., & Rogers, A. (2005). Dealing with it: Black Caribbean women’s response to adversity and psychological distress associated with pregnancy, childbirth, and early motherhood. Social Science & Medicine, 61(1), 15-25. https://doi.org/10.1016/j.socscimed.2004.11.047
Falloon, I. R. H. (1981). Communication and problem solving skills training with relapsing schizophrenics and their families. In M. R. Lansky (Ed.), Family therapy and majorpsy-chopathology (pp. 35-56). New York, NY: Grune and Stratton.
Furber, C. (2013). Framework analysis: A method for analysing qualitative data. African Journal of Midwifery and Women's Health, 4(2), 97-100. https://doi.org/10.12968/ajmw.2010.4.2.47612
Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BM Medical Research Methodology, 13. https://doi.org/10.1186/1471-2288-13
Guitierrez-Maldonado, J., & Caqueo-Urizar, A. (2007). Effectiveness of a psycho-educational intervention for reducing burden in Latin American families of patient with schizophrenia. Quality of Life Research, 16, 739-747. https://doi.org/10.1007/s11136-007-9173-9
Hendrix, C. C., Fournier, D. G., & Briggs, K. (2001). Impact of co-therapy teams on client outcomes and therapist training in marriage and family therapy. Contemporary Family Therapy, 23(1), 63-82. https://doi.org/10.1023/A:1007824216363
Jankovic, J., Yeeles, K., Katsakou, C., Amos, T., Morriss, R., Rose, D., … Priebe, S. (2011). Family caregivers’ experiences of involuntary psychiatric hospital admissions of their relatives- a qualitative study. PLoS One, 6, e25425. https://doi.org/10.1371/journal.pone.0025425
Jones, L., & Wells, K. (2007). Strategies for academic and clinician engagement in community-participatory partnered research. JAMA, 297, 407. https://doi.org/10.1001/jama.297.4.407
Keating, F., & Robertson, D. (2004). Fear, black people and mental illness: A vicious circle? [comparative study]. Health Social Care Community, 12, 439-447. https://doi.org/10.1111/j.1365-2524.2004.00506.x
Kopelowicz, A., Zarate, R., Wallace, C. J., Liberman, R. P., Lopez, S. R., & Mintz, J. (2012). The ability of multifamily groups to improve treatment adherence in Mexican Americans with schizophrenia. Archives of General Psychiatry, 69(3), 265-273.
Kovandžić, M., Chew-Graham, C., Reeve, J., Edwards, S., Peters, S., Edge, D., … Dowrick, C. (2011). Access to primary mental health care for hard-to-reach groups: From ‘silent suffering’ to ‘making it work’. Social Science & Medicine, 72, 763-772. https://doi.org/10.1016/j.socscimed.2010.11.027
Kulhara, P., Chakrabarti, S., Avasthi, A., Sharma, A., & Sharma, A. (2008). Psychoeducational intervention for caregivers of Indian patients with schizophrenia: A randomised controlled trial. Acta Psychiatrica Scandinavica, 119, 472-483. https://doi.org/10.1111/j.1600-0447.2008.01304.x
Kung, W. W., Tseng, Y., Wang, Y., Hsu, P. C., & Chen, D. (2012). Pilot study of ethically sensitive family psychoeducation for Chinese-American patients with schizophrenia. Social Work in Mental Health, 10, 384-408.
Macdonald, E. M., Hayes, R. L., & Baglioni, A. J. (2000). The quantity and quality of the social networks of young people with early psychosis compared with closely matched controls. Schizophrenia Research, 46(1), 25-30. https://doi.org/10.1016/S0920-9964(00)00024-4
McCabe, R., & Priede, S. (2004). Explanatory models of illness in schizophrenia: Comparison of four ethnic groups. British Journal of Psychiatry, 185, 25-30. https://doi.org/10.1192/bjp.185.1.25
McLean, C., Campbell, C., & Cornish, F. (2003). African-Caribbean interactions with mental health services: Experiences and expectations of exclusion as (re)productive of health inequalities. Social Science & Medicine, 56, 657-669. https://doi.org/10.1016/S0277-9536(02)00063-1
Morgan, C., Mallett, R., Hutchinson, G., & Leff, J. (2004). Negative pathways to psychiatric care and ethnicity: The bridge between social science and psychiatry. Social Science & Medicine, 58, 739-752. https://doi.org/10.1016/S0277-9536(03)00233-8
National Institute for Health and Care Excellence (2014). Schizophrenia: The NICE Guideline on core interventions in the treatment and management of schizophrenia in adults in primary and secondary care. London, UK: The British Psychological Society and the Royal College of Psychiatrists.
NHS (2016). The Five Year Forward View for Mental Health. Retrieved from https://www.england.nhs.uk/wp-content/uploads/2016/02/Mental-Health-Taskforce-FYFV-final.pdf
Nilsen, L., Frich, J. C., Friis, S., & Rossberg, J. I. (2014). Patients’ and family members’ experiences of a Psychoeducational Family Intervention after a first episode psychosis: A qualitative study. Issues in Mental Health Nursing, 35, 58-68. https://doi.org/10.3109/01612840.2013.837992
Okpokoro, U., Adams, C. E., & Sampson, S. (2014). Family intervention (brief) for schizophrenia. Cochrane Database of Systematic Reviews, 3. https://doi.org/10.1002/14651858.CD009802.pub2
Pharoah, F., Mari, J. J., Rathbone, J., & Wong, W. (2010). Family intervention for schizophrenia. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD000088.pub3
Qaseem, T., Bebbington, P., Spiers, N., McManus, S., Jenkins, R., & Dein, S. (2015). Prevalence of psychosis in black ethnic minorities in Britain: Analysis based on three national surveys. Social Psychiatry and Psychiatric Epidemiology, 50, 1057-1064. https://doi.org/10.1007/s00127-014-0960-7
Ran, M. S., Xiang, M. Z., Chan, C. L., Leff, J., Simpson, P., Huang, M. S., … Li, S. G. (2003). Effectiveness of psychoeducational intervention for rural Chinese families experiencing schizophrenia. A randomised controlled trial. Social Psychiatry and Psychiatric Epidemiology, 38, 69-75. https://doi.org/10.1007/s00127-003-0601-z
Rathod, S., Gega, L., Degnan, A., Pikard, J., Khan, T., Husain, N., … Naeem, F. (2018). The current status of culturally adapted mental health interventions: A practice focused review of meta-analyses. Neuropsychiatric Disease and Treatment, 14, 165-178. https://doi.org/10.2147/NDT.S138430
Rathod, S., Kingdon, D., Phiri, P., & Gobbi, M. (2010). Developing culturally sensitive cognitive behaviour therapy for psychosis for ethnic minority patients by exploration and incorporation of service users’ and health professionals’ views and opinions. Behavioural and Cognitive Psychotherapy, 38, 511-533. https://doi.org/10.1017/S1352465810000378
Ritchie, J., & Lewis, J. (2003). Qualitative research practice: A guide for social science students and researchers. London, UK: Sage.
Shin, S. K. (2004). Effects of culturally relevant psychoeducation for Korean American families of persons with chronic mental illness. Research on Social Work Practice, 14(4), 231-239. https://doi.org/10.1177/1049731503262130
Smith, J., & Firth, J. (2011). Qualitative data analysis: Application of the framework approach. Nurse Researcher, 18(2), 52-62. https://doi.org/10.7748/nr2011.01.18.2.52.c8284
Tobin, G. A., & Begley, C. M. (2004). Methodological rigour within a qualitative framework. Journal of Advanced Nursing, 48, 377-396. https://doi.org/10.1111/j.1365-2648.2004.03207.x
World Health Organisation (1992). The ICD-20 classification and behavioural disorders: Clinical descriptions and diagnostic guidelines. Geneva, Switzerland: World Health Organisation.