NAM-help or burden? Intercultural evaluation of parental stress caused by nasoalveolar molding: a retrospective multi-center study.
Burden
Cleft lip palate
Intercultural evaluation
Nasoalveolar molding
Parental stress
Questionnaire
Journal
Clinical oral investigations
ISSN: 1436-3771
Titre abrégé: Clin Oral Investig
Pays: Germany
ID NLM: 9707115
Informations de publication
Date de publication:
Sep 2021
Sep 2021
Historique:
received:
30
10
2020
accepted:
18
02
2021
pubmed:
6
3
2021
medline:
20
8
2021
entrez:
5
3
2021
Statut:
ppublish
Résumé
Nasoalveolar molding (NAM) was developed to facilitate easier treatment and better outcomes for cleft lip and palate (CLP) patients. The aim of this study was to investigate the parental burden and possible intercultural differences of this treatment modality, which is often argued to burden parents to an extraordinary amount. Standardized questionnaires (available in English, Mandarin, and German) with 15 non-specific and 14 NAM-specific items to be retrospectively answered by Likert scales by parents of unilateral CLP patients with completed NAM treatment. The parents of 117 patients from two treatment centers in Taiwan and Germany were included. A very high level of overall satisfaction was found in both countries with significant intercultural differences in prenatal parent information, feeding problems, dealing with 3rd party's perception, and experienced personal effort. NAM is an effective treatment tool for children's CLP deformities and their caregivers in overcoming the feeling of helplessness. Intercultural differences may be due to infrastructural reasons, cultural attitudes and habits, or different public medical education. In addition to facilitating easier surgical treatment, NAM can be seen as a powerful coping strategy for parents dealing with a CLP deformity of their child and does not seem to burden them extraordinarily.
Identifiants
pubmed: 33665684
doi: 10.1007/s00784-021-03850-7
pii: 10.1007/s00784-021-03850-7
pmc: PMC8370945
doi:
Types de publication
Journal Article
Multicenter Study
Langues
eng
Pagination
5421-5430Informations de copyright
© 2021. The Author(s).
Références
Plast Reconstr Surg. 2010 Mar;125(3):112e-3e
pubmed: 20195090
Plast Reconstr Surg. 2011 Apr;127(4):1659-1667
pubmed: 21460673
Braz J Otorhinolaryngol. 2016 Sep-Oct;82(5):602-9
pubmed: 26997574
J Craniofac Surg. 2013 Sep;24(5):1515-20
pubmed: 24036717
Birth. 2015 Sep;42(3):242-8
pubmed: 26095672
Paediatr Perinat Epidemiol. 2007 Jul;21(4):319-29
pubmed: 17564588
Fam Syst Health. 2012 Sep;30(3):265-77
pubmed: 22709322
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2014 Jul;57(7):849-59
pubmed: 24950834
Cleft Palate Craniofac J. 2009 Sep;46(5):545-8
pubmed: 20052796
Gesundheitswesen. 2009 Jun;71(6):332-8
pubmed: 19530058
J Craniofac Surg. 2014 Mar;25(2):441-5
pubmed: 24481167
Plast Reconstr Surg. 1993 Dec;92(7):1422-3
pubmed: 8248436
Sci Rep. 2018 Aug 14;8(1):12084
pubmed: 30108232
J Craniomaxillofac Surg. 2015 Dec;43(10):2100-5
pubmed: 26541749
PLoS One. 2015 Mar 03;10(3):e0118103
pubmed: 25734535
Ann Plast Surg. 2010 Jun;64(6):780-3
pubmed: 20061939
Cleft Palate Craniofac J. 2015 Nov;52(6):640-50
pubmed: 25225840
Sci Rep. 2018 Aug 7;8(1):11845
pubmed: 30087378
Ann Maxillofac Surg. 2016 Jul-Dec;6(2):195-203
pubmed: 28299257
Sci Rep. 2017 Aug 29;7(1):9901
pubmed: 28852137
Plast Reconstr Surg. 2004 Sep 15;114(4):858-64
pubmed: 15468390
Midwifery. 2010 Feb;26(1):109-15
pubmed: 18541351
Br J Oral Maxillofac Surg. 2011 Apr;49(3):165-71
pubmed: 20708827
Cleft Palate Craniofac J. 2009 Sep;46(5):521-8
pubmed: 19929090
Eur Arch Paediatr Dent. 2014 Feb;15(1):1-9
pubmed: 24425528
Plast Reconstr Surg. 2009 Mar;123(3):1002-1006
pubmed: 19319066
Qual Health Res. 2012 Mar;22(3):346-59
pubmed: 21890716
Cleft Palate Craniofac J. 1999 Nov;36(6):486-98
pubmed: 10574667
J Craniofac Surg. 2011 Sep;22(5):1622-5
pubmed: 21959400
Plast Reconstr Surg. 1984 Jan;73(1):38-51
pubmed: 6691074
EPMA J. 2010 Dec;1(4):563-85
pubmed: 23199110
Cleft Palate Craniofac J. 2006 Nov;43(6):731-9
pubmed: 17105325
Health Psychol. 2016 May;35(5):474-82
pubmed: 26280177
Cleft Palate Craniofac J. 2012 May;49(3):270-5
pubmed: 21740168
Paediatr Perinat Epidemiol. 2011 Nov;25(6):519-27
pubmed: 21980941
Ann Plast Surg. 2007 Nov;59(5):489-94
pubmed: 17992140