Guideline Adherence and Registry Recruitment of Congenital Primary Hypothyroidism: Data from the German Registry for Congenital Hypothyroidism (HypoDok).
longitudinal comparison
multicenter database
quality assurance
standardized documentation
Journal
International journal of neonatal screening
ISSN: 2409-515X
Titre abrégé: Int J Neonatal Screen
Pays: Switzerland
ID NLM: 101665400
Informations de publication
Date de publication:
12 Feb 2021
12 Feb 2021
Historique:
received:
16
01
2021
revised:
02
02
2021
accepted:
07
02
2021
entrez:
6
3
2021
pubmed:
7
3
2021
medline:
7
3
2021
Statut:
epublish
Résumé
Neonatal screening for congenital primary hypothyroidism (CH) is mandatory in Germany but medical care thereafter remains inconsistent. Therefore, the registry HypoDok of the German Society of Pediatric Endocrinology and Diabetology (DGKED) was analyzed to evaluate the implementation of evidence-based guidelines and to assess the number of included patients. Inclusion criteria were (i) date of birth between 10/2001 and 05/2020 and (ii) increased thyroid-stimulating hormone (TSH) at screening and/or confirmation. The cohort was divided into before (A) and after (B) guideline publication in 02/2011, to assess the guideline's influence on medical care. A total of 659 patients were analyzed as group A (
Identifiants
pubmed: 33673307
pii: ijns7010010
doi: 10.3390/ijns7010010
pmc: PMC8006240
pii:
doi:
Types de publication
Journal Article
Langues
eng
Déclaration de conflit d'intérêts
The authors declare no conflict of interest.
Références
Int J Environ Res Public Health. 2020 Nov 25;17(23):
pubmed: 33255540
Arch Dis Child Educ Pract Ed. 2008 Dec;93(6):190-8
pubmed: 19028929
Klin Padiatr. 2015 Jul;227(4):199-205
pubmed: 26038964
J Antimicrob Chemother. 2020 Mar 1;75(3):738-746
pubmed: 31697335
Endocr Pract. 2018 May;24(5):419-428
pubmed: 29847168
Arch Pathol Lab Med. 2000 Jul;124(7):1001-3
pubmed: 10888775
J Clin Endocrinol Metab. 2014 Feb;99(2):363-84
pubmed: 24446653
Clin Pediatr (Phila). 2019 Oct;58(11-12):1302-1308
pubmed: 31165627
Endocrine. 2021 Jan;71(1):122-129
pubmed: 32507964
Pediatrics. 2012 Mar;129(3):e597-604
pubmed: 22351891
Clin Chem Lab Med. 2016 Jul 1;54(7):1133-9
pubmed: 26650076
Eur J Nucl Med Mol Imaging. 2002 Aug;29 Suppl 2:S439-46
pubmed: 12192543
J Pediatr Endocrinol Metab. 2018 Sep 25;31(9):987-994
pubmed: 30030963
J Clin Endocrinol Metab. 2018 Apr 1;103(4):1459-1469
pubmed: 29325045
J Pediatr. 2005 Dec;147(6):768-74
pubmed: 16356429
BMJ Qual Saf. 2014 Apr;23 Suppl 1:i9-14
pubmed: 24443584
Eur J Endocrinol. 2020 Aug;183(2):141-148
pubmed: 32413847
Mil Med. 2005 Mar;170(3):243-6
pubmed: 15828703
Front Endocrinol (Lausanne). 2020 Jul 14;11:413
pubmed: 32765423
Eur J Endocrinol. 2019 Jan 1;180(1):89-98
pubmed: 30407922
Nat Rev Endocrinol. 2011 Oct 18;8(2):104-13
pubmed: 22009163
Pediatrics. 2006 Jun;117(6):2290-303
pubmed: 16740880
Pediatrics. 2003 Oct;112(4):923-30
pubmed: 14523187
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2020 Jun;63(6):761-770
pubmed: 32424556
Eur J Endocrinol. 2018 Sep 24;179(6):R297-R317
pubmed: 30324792