It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism.
Adaptation, Psychological
Adolescent
Adult
Autism Spectrum Disorder
Autistic Disorder
COVID-19
Caregivers
/ psychology
Child
Child, Preschool
Emotional Regulation
Female
Health Services Accessibility
Humans
Male
Middle Aged
Parents
/ psychology
Resilience, Psychological
SARS-CoV-2
Stress, Psychological
/ psychology
Telemedicine
United States
Young Adult
Autism
COVID-19
Pandemic
Stress
Telehealth
Journal
Research in developmental disabilities
ISSN: 1873-3379
Titre abrégé: Res Dev Disabil
Pays: United States
ID NLM: 8709782
Informations de publication
Date de publication:
Jun 2021
Jun 2021
Historique:
received:
08
11
2020
revised:
07
03
2021
accepted:
10
03
2021
pubmed:
18
3
2021
medline:
8
5
2021
entrez:
17
3
2021
Statut:
ppublish
Résumé
Shelter in place mandates due to the COVID-19 pandemic left caregivers to determine how to best meet the therapeutic requirements of their children with autism spectrum disorder (ASD). Understanding the challenges faced by families, and their experiences using telehealth for the first time, may help make services sustainable in future public health emergencies. A sample of 70 caregivers of people with ASD from across the US completed an anonymous online survey. Results indicate that impaired emotion regulation was a primary contributor of parent-reported stress for persons with ASD during the pandemic, while loss of established structure and routine contributed to parental stress. Nearly half the sample reported using telehealth for the first time. Many caregivers were appreciative that telehealth permitted continuation of services, but expressed concerns about limited effectiveness due in part to their children's social communication problems.
Identifiants
pubmed: 33730684
pii: S0891-4222(21)00087-1
doi: 10.1016/j.ridd.2021.103938
pmc: PMC9758058
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
103938Informations de copyright
Copyright © 2021 Elsevier Ltd. All rights reserved.
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