Effects of Teleassistance on the Quality of Life of People With Rare Neuromuscular Diseases According to Their Degree of Disability.
disability
psychosocial program
quality of life
rare neuromuscular diseases
teleassistance
videoconferencing
Journal
Frontiers in psychology
ISSN: 1664-1078
Titre abrégé: Front Psychol
Pays: Switzerland
ID NLM: 101550902
Informations de publication
Date de publication:
2021
2021
Historique:
received:
03
12
2020
accepted:
11
02
2021
entrez:
19
3
2021
pubmed:
20
3
2021
medline:
20
3
2021
Statut:
epublish
Résumé
Rare neuromuscular diseases (RNMDs) are a group of pathologies characterized by a progressive loss of muscular strength, atrophy, fatigue, and other muscle-related symptoms, which affect quality of life (QoL) levels. The low prevalence, high geographical dispersion and disability of these individuals involve difficulties in accessing health and social care services. Teleassistance is presented as a useful tool to perform psychosocial interventions in these situations. The main aim of this research is to assess the effects of a teleassistance psychosocial program on the QoL levels of people with RNMDs who have different levels of disability. A sample of 73 participants was divided into an experimental group (
Identifiants
pubmed: 33737897
doi: 10.3389/fpsyg.2021.637413
pmc: PMC7960659
doi:
Types de publication
Journal Article
Langues
eng
Pagination
637413Informations de copyright
Copyright © 2021 Martínez, Amayra, López-Paz, Lázaro, Caballero, García, Rodríguez, García, Luna, Pérez-Núñez, Barrera, Passi, Berrocoso, Pérez and Al-Rashaida.
Déclaration de conflit d'intérêts
The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
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