Recruitment and retention of pregnant women in prospective birth cohort studies: A scoping review and content analysis of the literature.
Barriers
Birth cohort
Facilitators
Pregnant women
Recruitment
Retention
Journal
Neurotoxicology and teratology
ISSN: 1872-9738
Titre abrégé: Neurotoxicol Teratol
Pays: United States
ID NLM: 8709538
Informations de publication
Date de publication:
Historique:
received:
29
09
2020
revised:
16
03
2021
accepted:
16
03
2021
pubmed:
27
3
2021
medline:
25
12
2021
entrez:
26
3
2021
Statut:
ppublish
Résumé
Longitudinal cohort studies present unique methodological challenges, especially when they focus on vulnerable populations, such as pregnant women. The purpose of this review is to synthesize the existing knowledge on recruitment and retention (RR) of pregnant women in birth cohort studies and to make recommendations for researchers to improve research engagement of this population. A scoping review and content analysis were conducted to identify facilitators and barriers to the RR of pregnant women in cohort studies. The search retrieved 574 articles, with 38 meeting eligibility criteria and focused on RR among English-speaking, adult women, who are pregnant or in early postpartum period, enrolled in birth cohort studies. Selected studies were birth cohort (including longitudinal) (n = 20), feasibility (n = 14), and other (n = 4) non-interventional study designs. The majority were from low-risk populations. Abstracted data were coded according to emergent theme clusters. The majority of abstracted data (79%) focused on recruitment practices, with only 21% addressing retention strategies. Overall, facilitators were reported more often (75%) than barriers (25%). Building trusting relationships and employing diverse recruitment methods emerged as major recruitment facilitators; major barriers included heterogeneous participant reasons for refusal and cultural factors. Key retention facilitators included flexibility with scheduling, frequent communication, and culturally sensitive practices, whereas participant factors such as loss of interest, pregnancy loss, relocation, multiple caregiver shifts, and substance use/psychiatric problems were cited as major barriers. Better understanding of facilitators and barriers of RR can help enhance the internal and external validity of future birth/pre-birth cohorts. Strategies presented in this review can help inform investigators and funding agencies of best practices for RR of pregnant women in longitudinal studies.
Identifiants
pubmed: 33766723
pii: S0892-0362(21)00028-3
doi: 10.1016/j.ntt.2021.106974
pmc: PMC8137666
mid: NIHMS1685977
pii:
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
106974Subventions
Organisme : NIDA NIH HHS
ID : R34 DA050254
Pays : United States
Organisme : NIDA NIH HHS
ID : U01 DA055359
Pays : United States
Organisme : NIDA NIH HHS
ID : R34 DA050270
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002373
Pays : United States
Organisme : NIDA NIH HHS
ID : R34 DA050263
Pays : United States
Organisme : NIAAA NIH HHS
ID : R01 AA021771
Pays : United States
Organisme : NIDA NIH HHS
ID : R34 DA050341
Pays : United States
Organisme : NIDA NIH HHS
ID : R34 DA050237
Pays : United States
Informations de copyright
Copyright © 2021 Elsevier Inc. All rights reserved.
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