Caring for patients with end-stage renal disease during COVID-19 lockdown: What (additional) challenges to family caregivers?
COVID-19
coronavirus
end-stage renal disease
family caregivers
haemodialysis
qualitative study
Journal
Scandinavian journal of caring sciences
ISSN: 1471-6712
Titre abrégé: Scand J Caring Sci
Pays: Sweden
ID NLM: 8804206
Informations de publication
Date de publication:
Mar 2022
Mar 2022
Historique:
revised:
19
01
2021
received:
02
12
2020
accepted:
21
02
2021
pubmed:
30
3
2021
medline:
11
2
2022
entrez:
29
3
2021
Statut:
ppublish
Résumé
Caring for a patient with end-stage renal disease undergoing in-centre haemodialysis can be a stressful experience, likely to involve significant burden. Within the context of the new coronavirus pandemic, these patients are highly vulnerable to infection by COVID-19, which might increase the care demands and burden of family caregivers. This study aimed to explore the subjective experiences of family caregivers of non-COVID-19 patients with end-stage renal disease undergoing in-centre haemodialysis during the COVID-19 lockdown. A qualitative study was performed with a purposive sample. Semi-structured telephone interviews were conducted with 19 family caregivers (50.7 ± 14 years old) of patients undergoing in-centre haemodialysis in April 2020. Four major themes were identified: (1) emotional distress; (2) changes in caregiving responsibilities; (3) educational and supportive needs; and (4) coping strategies to deal with the outbreak and with the lockdown. The findings suggest that family caregivers of patients undergoing in-centre haemodialysis have to manage several additional care responsibilities due to COVID-19 lockdown. The dialysis team should consider the development of educational and supportive interventions to meet family caregivers' needs, mitigate emotional distress, fears and concerns, and prevent caregiver burden during the COVID-19 pandemic.
Identifiants
pubmed: 33778978
doi: 10.1111/scs.12980
pmc: PMC8251279
doi:
Types de publication
Journal Article
Langues
eng
Pagination
215-224Subventions
Organisme : This work was financially supported by the project POCI-01-0145- FEDER-030228, funded by FEDER, through COMPETE2020 - Programa Operacional Competitividade e Internacionalização (POCI), and by national funds (OE), through FCT/MCTES. It was also supported by National Funds through Fundação para a Ciência e a Tecnologia (FCT) within the CINTESIS R&D Unit (reference UIDB/4255/2020)
Informations de copyright
© 2021 Nordic College of Caring Science.
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