Involving an individual with lived-experience in a co-analysis of qualitative data.
Patient and public involvement
forensic
qualitative
thematic analysis
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
06 2021
06 2021
Historique:
revised:
18
11
2020
received:
30
09
2020
accepted:
10
12
2020
pubmed:
1
4
2021
medline:
26
10
2021
entrez:
31
3
2021
Statut:
ppublish
Résumé
People with lived-experience of the phenomenon under investigation are seldom involved in the analysis of qualitative data, and there exists little guidance for those wishing to involve contributors at this stage of research. To critically reflect on the process of involving people with lived-experience in a thematic analysis and to offer direction to other researchers. An individual with lived-experience of residing in prison contributed to a co-analysis of qualitative data using thematic analysis. This paper reports on involvement at each stage of a thematic analysis and follows an established reporting checklist. A number of challenges and benefits were encountered in the process of co-analysing the data. These are discussed in relation to previous research and how to overcome the challenges encountered. The paper concludes by giving recommendations and guidance for future researchers wishing to involve people with lived-experience in qualitative data analysis.
Sections du résumé
BACKGROUND
People with lived-experience of the phenomenon under investigation are seldom involved in the analysis of qualitative data, and there exists little guidance for those wishing to involve contributors at this stage of research.
AIMS
To critically reflect on the process of involving people with lived-experience in a thematic analysis and to offer direction to other researchers.
METHODS
An individual with lived-experience of residing in prison contributed to a co-analysis of qualitative data using thematic analysis. This paper reports on involvement at each stage of a thematic analysis and follows an established reporting checklist.
RESULTS
A number of challenges and benefits were encountered in the process of co-analysing the data. These are discussed in relation to previous research and how to overcome the challenges encountered.
CONCLUSIONS
The paper concludes by giving recommendations and guidance for future researchers wishing to involve people with lived-experience in qualitative data analysis.
Identifiants
pubmed: 33788373
doi: 10.1111/hex.13188
pmc: PMC8235892
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
766-775Subventions
Organisme : Medical Research Council
ID : MR/N013751/1
Pays : United Kingdom
Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
J Eval Clin Pract. 2018 Feb;24(1):240-253
pubmed: 29076631
Curationis. 1997 Jul;20(2):53-6
pubmed: 9418416
Res Involv Engagem. 2019 Aug 16;5:23
pubmed: 31428458
Health Expect. 2019 Aug;22(4):617-631
pubmed: 31131529
Front Psychiatry. 2019 Apr 11;10:203
pubmed: 31031655
Psychother Psychosom. 1973;22(2):255-62
pubmed: 4770536
Res Involv Engagem. 2016 Aug 20;2:29
pubmed: 29507764
Health Expect. 2009 Jun;12(2):209-20
pubmed: 19392833
Health Soc Care Community. 2005 May;13(3):268-75
pubmed: 15819748
Res Involv Engagem. 2019 Aug 14;5:22
pubmed: 31428457
Health Expect. 2018 Dec;21(6):1183-1190
pubmed: 30159960
Front Sociol. 2019 Jul 16;4:57
pubmed: 33869380
J Ment Health. 2010 Jun;19(3):272-81
pubmed: 20441491
Health Soc Care Community. 2006 Nov;14(6):465-73
pubmed: 17059488
Health Expect. 2021 Jun;24(3):766-775
pubmed: 33788373
Qual Health Res. 2006 Oct;16(8):1145-57
pubmed: 16954531
Health Expect. 2013 Dec;16(4):e89-99
pubmed: 22958162
J Psychosom Res. 1994 Jan;38(1):23-32
pubmed: 8126686
Health Soc Care Community. 2002 Sep;10(5):402-9
pubmed: 12390226
Public Health Rep. 2001 Nov-Dec;116(6):548-57
pubmed: 12196614
Attach Hum Dev. 2009 Mar;11(2):165-82
pubmed: 19266364
Qual Health Res. 1999 Jan;9(1):26-44
pubmed: 10558357
Soc Sci Med. 1996 May;42(10):1391-400
pubmed: 8735895
Health Expect. 2021 May;24 Suppl 1:47-53
pubmed: 31808266
Br J Psychiatry. 2002 Dec;181:468-72
pubmed: 12456515
J Affect Disord. 2019 Jul 1;254:34-48
pubmed: 31103905
Arthritis Rheum. 2006 Aug 15;55(4):676-80
pubmed: 16874772
Epidemiol Psichiatr Soc. 2005 Jan-Mar;14(1):4-9
pubmed: 15792288
Health Expect. 2008 Dec;11(4):409-17
pubmed: 19076669
Health Expect. 2014 Oct;17(5):637-50
pubmed: 22809132
Health Expect. 2004 Sep;7(3):209-20
pubmed: 15327460
Am J Public Health. 2008 Aug;98(8):1407-17
pubmed: 18556617
Res Involv Engagem. 2019 Apr 29;5:16
pubmed: 31164992
Front Psychiatry. 2020 Dec 10;11:581390
pubmed: 33362602
JMIR Ment Health. 2020 May 11;7(5):e17520
pubmed: 32391800