Surviving and Thriving: Early Intervention for Neonatal Survivors With Developmental Disability in Uganda.
Uganda
cerebral palsy
developmental disability
early intervention
neonatal encephalopathy
neurodevelopment
Journal
Infants and young children
ISSN: 0896-3746
Titre abrégé: Infants Young Child
Pays: United States
ID NLM: 8915767
Informations de publication
Date de publication:
Jan 2021
Jan 2021
Historique:
entrez:
1
4
2021
pubmed:
2
4
2021
medline:
2
4
2021
Statut:
ppublish
Résumé
Global attention on early child development, inclusive of those with disability, has the potential to translate into improved action for the millions of children with developmental disability living in low- and middle-income countries. Nurturing care is crucial for all children, arguably even more so for children with developmental disability. A high proportion of survivors of neonatal conditions such as prematurity and neonatal encephalopathy are affected by early child developmental disability. The first thousand days of life is a critical period for neuroplasticity and an important window of opportunity for interventions, which maximize developmental potential and other outcomes. Since 2010, our group has been examining predictors, outcomes, and experiences of neonatal encephalopathy in Uganda. The need for an early child intervention program to maximize participation and improve the quality of life for children and families became apparent. In response, the "ABAaNA early intervention program," (now re-branding as 'Baby Ubuntu') a group participatory early intervention program for young children with developmental disability and their families, was developed and piloted. Piloting has provided early evidence of feasibility, acceptability, and impact and a feasibility trial is underway. Future research aims to develop programmatic capacity across diverse settings and evaluate its impact at scale.
Identifiants
pubmed: 33790497
doi: 10.1097/IYC.0000000000000182
pmc: PMC7983078
doi:
Types de publication
Journal Article
Langues
eng
Pagination
17-32Subventions
Organisme : Wellcome Trust
Pays : United Kingdom
Organisme : Medical Research Council
ID : MC_UP_1204/9
Pays : United Kingdom
Organisme : Medical Research Council
ID : MR/R010161/1
Pays : United Kingdom
Organisme : Medical Research Council
ID : MR/S004971/1
Pays : United Kingdom
Informations de copyright
© 2021 The Authors. Published by Wolters Kluwer Health, Inc.
Déclaration de conflit d'intérêts
The authors declare no conflict of interest.
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