Cost considerations for adoption of diabetes technology are pervasive: A qualitative study of persons living with type 1 diabetes and their families.


Journal

Diabetic medicine : a journal of the British Diabetic Association
ISSN: 1464-5491
Titre abrégé: Diabet Med
Pays: England
ID NLM: 8500858

Informations de publication

Date de publication:
10 2021
Historique:
revised: 11 03 2021
received: 13 11 2020
accepted: 18 03 2021
pubmed: 2 4 2021
medline: 25 3 2022
entrez: 1 4 2021
Statut: ppublish

Résumé

Cost is a major consideration in the uptake and continued use of diabetes technology. With increasing use of automated insulin delivery systems, it is important to understand the specific cost-related barriers to technology adoption. In this qualitative analysis, we were interested in understanding and examining the decision-making process around cost and diabetes technology use. Four raters coded transcripts of four stakeholder groups using inductive coding for each stakeholder group to establish relevant themes/nodes. We applied the Social Ecological Model in the interpretation of five thematic levels of cost. We identified five thematic levels of cost: policy, organizational, insurance, interpersonal and individual. Equitable diabetes technology access was an important policy-level theme. The insurance-level theme had multiple subthemes which predominantly carried a negative valence. Participants also emphasized the psychosocial burden of cost specifically identifying diabetes costs to their families, the guilt of diabetes related costs, and frustration in the time and involvement required to ensure insurance coverage. We found broad consensus in how cost is experienced by stakeholder groups. Cost considerations for diabetes technology uptake extended beyond finances to include time, cost to society, morality and interpersonal relationships. Cost also reflected an important moral principle tied to the shared desire for equitable access to diabetes technology. Knowledge of these considerations can help clinicians and researchers promote equitable device uptake while anticipating barriers for all persons living with type 1 diabetes and their families.

Sections du résumé

BACKGROUND
Cost is a major consideration in the uptake and continued use of diabetes technology. With increasing use of automated insulin delivery systems, it is important to understand the specific cost-related barriers to technology adoption. In this qualitative analysis, we were interested in understanding and examining the decision-making process around cost and diabetes technology use.
MATERIALS AND METHODS
Four raters coded transcripts of four stakeholder groups using inductive coding for each stakeholder group to establish relevant themes/nodes. We applied the Social Ecological Model in the interpretation of five thematic levels of cost.
RESULTS
We identified five thematic levels of cost: policy, organizational, insurance, interpersonal and individual. Equitable diabetes technology access was an important policy-level theme. The insurance-level theme had multiple subthemes which predominantly carried a negative valence. Participants also emphasized the psychosocial burden of cost specifically identifying diabetes costs to their families, the guilt of diabetes related costs, and frustration in the time and involvement required to ensure insurance coverage.
CONCLUSION
We found broad consensus in how cost is experienced by stakeholder groups. Cost considerations for diabetes technology uptake extended beyond finances to include time, cost to society, morality and interpersonal relationships. Cost also reflected an important moral principle tied to the shared desire for equitable access to diabetes technology. Knowledge of these considerations can help clinicians and researchers promote equitable device uptake while anticipating barriers for all persons living with type 1 diabetes and their families.

Identifiants

pubmed: 33794006
doi: 10.1111/dme.14575
pmc: PMC9088880
mid: NIHMS1792125
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e14575

Subventions

Organisme : NIDDK NIH HHS
ID : K12 DK122550
Pays : United States
Organisme : NIDDK NIH HHS
ID : P30 DK036836
Pays : United States
Organisme : NIDDK NIH HHS
ID : P30 DK092949
Pays : United States

Informations de copyright

© 2021 Diabetes UK.

Références

Pediatrics. 2015 Mar;135(3):424-34
pubmed: 25687140
J Diabetes Sci Technol. 2017 May;11(3):484-492
pubmed: 28745093
J Adolesc Health. 2018 Jun;62(6):641-642
pubmed: 29784107
Diabetes Technol Ther. 2019 Feb;21(2):66-72
pubmed: 30657336
Am J Community Psychol. 2006 Mar;37(1-2):141-54
pubmed: 16680542
Diabetes Care. 2013 Sep;36(9):2551-8
pubmed: 23735726
Acta Diabetol. 2021 Jan;58(1):93-105
pubmed: 32862261
Diabetes Care. 2018 Aug;41(8):1623-1630
pubmed: 29921624
N Engl J Med. 2019 Oct 31;381(18):1707-1717
pubmed: 31618560
Diabet Med. 2016 Jul;33(7):877-85
pubmed: 26414087
J Consult Clin Psychol. 2006 Aug;74(4):785-9
pubmed: 16881786
Lancet Diabetes Endocrinol. 2017 Jul;5(7):501-512
pubmed: 28533136
Diabetes Technol Ther. 2020 Sep;22(9):645-650
pubmed: 31905008
JAMA. 2016 Oct 4;316(13):1407-1408
pubmed: 27629148
Pediatr Diabetes. 2020 Nov;21(7):1301-1309
pubmed: 32681582
Diabetes Technol Ther. 2018 Oct;20(10):648-653
pubmed: 30239219
Diabetes Technol Ther. 2020 Mar;22(3):169-173
pubmed: 31596132
J Diabetes Sci Technol. 2018 Nov;12(6):1227-1230
pubmed: 30035611
Biometrics. 1977 Mar;33(1):159-74
pubmed: 843571

Auteurs

Ananta Addala (A)

Department of Pediatrics, Division of Endocrinology, Stanford University, Stanford, CA, USA.

Sakinah C Suttiratana (SC)

Department of Chronic Disease Epidemiology, Yale School of Public Health, New Haven, CT, USA.

Jessie J Wong (JJ)

Department of Pediatrics, Division of Endocrinology, Stanford University, Stanford, CA, USA.

Monica S Lanning (MS)

Department of Pediatrics, Division of Endocrinology, Stanford University, Stanford, CA, USA.

Katharine D Barnard (KD)

Bournemouth University, Bournemouth, UK.

Jill Weissberg-Benchell (J)

Department of Psychiatry and Behavioral Sciences, Ann & Robert H. Lurie Children's Hospital, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.

Lori M Laffel (LM)

Harvard Medical School, Boston, MA, USA.
Joslin Diabetes Center, Boston, MA, USA.

Korey K Hood (KK)

Department of Pediatrics, Division of Endocrinology, Stanford University, Stanford, CA, USA.

Diana Naranjo (D)

Department of Pediatrics, Division of Endocrinology, Stanford University, Stanford, CA, USA.

Articles similaires

Humans Blindness Male Female Cross-Sectional Studies
Humans Neoplasms Male Female Middle Aged
Humans Medical Futility Turkey Qualitative Research Terminal Care
Primary Health Care Electronic Health Records Humans Tanzania Surveys and Questionnaires

Classifications MeSH