Intense connection and love: The experiences of autistic mothers.


Journal

Autism : the international journal of research and practice
ISSN: 1461-7005
Titre abrégé: Autism
Pays: England
ID NLM: 9713494

Informations de publication

Date de publication:
10 2021
Historique:
pubmed: 13 4 2021
medline: 28 9 2021
entrez: 12 4 2021
Statut: ppublish

Résumé

For many women, adulthood involves becoming a mother. Knowledge of how motherhood is experienced by autistic women is currently poor. Poor knowledge has a range of negative consequences and can lead to inappropriate support. In this study, nine autistic women were interviewed about their experiences of motherhood. Seven of the nine mothers had an officially diagnosed autistic child, the final two mothers also suspected at least one of their children to be autistic. Systematic in-depth analysis of interview transcripts identified a range of common themes. Participants largely experienced motherhood as joyful, rewarding, and enjoyable, though managing children's needs had a profound personal impact. Participants reflected on the need for self-care and self-acceptance, resulting in personal growth and adaptation. Participants also spoke of strong bonds, feelings of intense connection, and a range of shared experiences with their children. It was also clear that autistic motherhood is associated with a series of challenges unlikely to be experienced by non-autistic mothers, including the necessity of negotiating misunderstandings from others. The findings demonstrate that, generally, professionals need to be better educated on how autism presents in adulthood, including the fact that autistic women often engage in behaviour to mask their true self. Professionals need to know that there is potential for mismatching between emotional experience and facial expression, that autistic women have sensory needs (especially in pregnancy). Professionals frequently struggle to effectively take the needs and perspectives of autistic mothers into account, resulting in profoundly negative consequences for the mother.

Identifiants

pubmed: 33840262
doi: 10.1177/13623613211005987
pmc: PMC8419292
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1973-1984

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Auteurs

Amber-Sophie Dugdale (AS)

University of Sheffield, UK.

Andrew R Thompson (AR)

University of Sheffield, UK.
Cardiff and Vale University Health Board & Cardiff University, UK.

Alexandra Leedham (A)

Chesterfield Royal Hospital NHS Foundation Trust, UK.

Nigel Beail (N)

University of Sheffield, UK.

Megan Freeth (M)

University of Sheffield, UK.

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Classifications MeSH