Best Practices for Using Telehealth in Hospice and Palliative Care.
Journal
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
ISSN: 1539-0705
Titre abrégé: J Hosp Palliat Nurs
Pays: United States
ID NLM: 100887419
Informations de publication
Date de publication:
01 06 2021
01 06 2021
Historique:
entrez:
29
4
2021
pubmed:
30
4
2021
medline:
4
5
2021
Statut:
ppublish
Résumé
Hospice and palliative care providers throughout the United States have continued to provide compassionate patient- and family-centered care during the COVID-19 (coronavirus disease 2019) pandemic while adapting to the need for scrupulous infection control measures and the accelerated use of telehealth. Prior to the pandemic, hospice and palliative care adopted telehealth slowly compared with other specialties, but its rapidly increasing utilization during the COVID-19 pandemic has long-term implications for access to primary and specialty palliative care, particularly for patients in rural communities and populations experiencing inequitable access to services. Telehealth also shows great promise for leveraging technology to provide care more effectively and efficiently. As more provider organizations become equipped with telehealth infrastructure, and as advocacy for broader reimbursement of these services grows, telehealth services for hospice and palliative care are expected to continue. This article highlights the work of expert clinicians from multiple hospice and palliative care organizations to develop best practices for conducting telehealth visits in inpatient and community settings. The authors propose that best practices be compiled and considered to ensure quality-driven, evidence-based clinical practice guidelines with interprofessional applicability.
Identifiants
pubmed: 33911060
doi: 10.1097/NJH.0000000000000753
pii: 00129191-202106000-00013
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
277-285Informations de copyright
Copyright © 2021 by The Hospice and Palliative Nurses Association. All rights reserved.
Déclaration de conflit d'intérêts
The authors have no conflicts of interest to disclose.
Références
Agency for Healthcare Research and Quality. Telehealth for Acute and Chronic Care Consultations . Rockville, MD: Agency for Healthcare Research and Quality; 2017:19. www.effectivehealthcare.ahrq.gov . Accessed July 25, 2020.
American Telemedicine Association. Telehealth basics: what is telehealth?. Published May 20, 2020. https://www.americantelemed.org/resource/why-telemedicine/ . Accessed May 20, 2020.
Center for Connected Telehealth Policy: The National Telehealth Policy Resource Center. About Telehealth CCHP Website. Published July 22, 2020. https://www.cchpca.org/about/about-telehealth . Accessed July 22, 2020.
Centers for Medicare & Medicaid Services. Telehealth. Published July 25, 2020. https://www.cms.gov/Medicare/Medicare-General-Information/Telehealth/index . Accessed July 25, 2020.
Oliver DP, Demiris G, Wittenberg-Lyles E, Washington K, Day T, Novak H. A systematic review of the evidence base for telehospice. Telemed J E Health . 2012;18(1):38–47. doi:10.1089/tmj.2011.0061.
doi: 10.1089/tmj.2011.0061
Calton BA, Rabow MW, Branagan L, et al. Top ten tips palliative care clinicians should know about telepalliative care. J Palliat Med . 2019;22(8):981–985. doi:10.1089/jpm.2019.0278.
doi: 10.1089/jpm.2019.0278
McGrail KM, Ahuja MA, Leaver CA. Virtual visits and patient-centered care: results of a patient survey and observational study. J Med Internet Res . 2017;19(5):e177. doi:10.2196/jmir.7374.
doi: 10.2196/jmir.7374
Bonsignore L, Bloom N, Steinhauser K, et al. Evaluating the feasibility and acceptability of a telehealth program in a rural palliative care population: TapCloud for Palliative Care. J Pain Symptom Manage . 2018;56(1):7–14. doi:10.1016/j.jpainsymman.2018.03.013.
doi: 10.1016/j.jpainsymman.2018.03.013
Read Paul L, Salmon C, Sinnarajah A, Spice R. Web-based videoconferencing for rural palliative care consultation with elderly patients at home. Support Care Cancer . 2019;27(9):3321–3330. doi:10.1007/s00520-018-4580-8.
doi: 10.1007/s00520-018-4580-8
Hubley S, Lynch SB, Schneck C, Thomas M, Shore J. Review of key telepsychiatry outcomes. World J Psychiatry . 2016;6(2):269–282. doi:10.5498/wjp.v6.i2.269.
doi: 10.5498/wjp.v6.i2.269
Kruse CS, Krowski N, Rodriguez B, Tran L, Vela J, Brooks M. Telehealth and patient satisfaction: a systematic review and narrative analysis. BMJ Open . 2017;7(8):e016242. doi:10.1136/bmjopen-2017-016242.
doi: 10.1136/bmjopen-2017-016242
Shigekawa E, Fix M, Corbett G, Roby DH, Coffman J. The current state of telehealth evidence: a rapid review. Health Aff (Millwood) . 2018;37(12):1975–1982. doi:10.1377/hlthaff.2018.05132.
doi: 10.1377/hlthaff.2018.05132
Zheng Y, Head BA, Schapmire TJ. A systematic review of telehealth in palliative care: caregiver outcomes. Telemed J E Health . 2016;22(4):288–294. doi:10.1089/tmj.2015.0090.
doi: 10.1089/tmj.2015.0090
Steindal SA, Nes AAG, Godskesen TE, et al. Patients’ experiences of telehealth in palliative home care: scoping review. J Med Internet Res . 2020;22(5):e16218. doi:10.2196/16218.
doi: 10.2196/16218
Hancock S, Preston N, Jones H, Gadoud A. Telehealth in palliative care is being described but not evaluated: a systematic review. BMC Palliat Care . 2019;18(1):114. doi:10.1186/s12904-019-0495-5.
doi: 10.1186/s12904-019-0495-5
Weaver MS, Robinson JE, Shostrom VK, Hinds PS. Telehealth acceptability for children, family, and adult hospice nurses when integrating the pediatric palliative inpatient provider during sequential rural home hospice visits [published online December 5, 2019]. J Palliat Med . 2020;23(5):641–649. doi:10.1089/jpm.2019.0450.
doi: 10.1089/jpm.2019.0450
Funderskov KF, Boe Danbjørg D, Jess M, Munk L, Olsen Zwisler AD, Dieperink KB. Telemedicine in specialised palliative care: healthcare professionals’ and their perspectives on video consultations-a qualitative study. J Clin Nurs . 2019;28(21–22):3966–3976. doi:10.1111/jocn.15004.
doi: 10.1111/jocn.15004
Baldwin PK, McAuley WJ, Van Nostrand J. Organizational factors associated with the use of telehospice. J Telemed Telecare . 2012;18(2):90–93. doi:10.1258/jtt.2011.110803.
doi: 10.1258/jtt.2011.110803
CMS finalizes permanent changes for certain telehealth services modified during COVID-19 public health emergency. https://react.ropesgray.com/reaction/Link/Click?ct=5A85681D9BEB43E5C5DC86AB9E4FF377BB8B6CB7CD820ADD59E263747B6 . Accessed January 6, 2021.
Weigel G, Ramaswamy, Sobel L, Salfanicoff, Cubanski J. Opportunities and barriers for telemedicine in the US during the COVID-19 emergency and beyond. Published May 11, 2020. https://www.kff.org/womens-health-policy/issue-brief/opportunities-and-barriers-for-telemedicine-in-the-u-s-during-the-covid-19-emergency-and-beyond/ . Accessed August 23, 2020.
Whitten P, Holtz B, Meyer E, Nazione S. Telehospice: reasons for slow adoption in home hospice care. J Telemed Telecare . 2009;15(4):187–190. doi:10.1258/jtt.2009.080911.
doi: 10.1258/jtt.2009.080911
Anderson M. For 24% of rural Americans, high-speed internet is a major problem. Pew Research Center Published April 8, 2020. https://www.pewresearch.org/fact-tank/2018/09/10/about-a-quarter-of-rural-americans-say-access-to-high-speed-internet-is-a-major-problem/ . Accessed April 8, 2020.
Roberts ET, Mehrotra A. Assessment of disparities in digital access among Medicare beneficiaries and implications for telemedicine [published online August 3, 2020]. JAMA Intern Med . 2020;180(10):1386–1389. doi:10.1001/jamainternmed.2020.2666.
doi: 10.1001/jamainternmed.2020.2666
Watanabe SM, Fairchild A, Pituskin E, Borgersen P, Hanson J, Fassbender K. Improving access to specialist multidisciplinary palliative care consultation for rural cancer patients by videoconferencing: report of a pilot project. Support Care Cancer . 2013;21(4):1201–1207. doi:10.1007/s00520-012-1649-7.
doi: 10.1007/s00520-012-1649-7
Parker Oliver D, Demiris G, Wittenberg-Lyles E, Porock D, Collier J, Arthur A. Caregiver participation in hospice interdisciplinary team meetings via videophone technology: a pilot study to improve pain management. Am J Hosp Palliat Care . 2010;27(7):465–473. doi:10.1177/104990911036240233.
doi: 10.1177/104990911036240233
National Association for Home Care & Hospice. Hospice in the time of COVID-19: findings from the NAHC National Survey. https://www.nahc.org/2020/05/27/hospice-in-the-time-of-covid-19-findings-from-the-nahc-national-survey/ . Accessed January 18, 2021.
Centers for Medicare & Medicaid Services. CMS announces new measures to protect nursing home residents from COVID-19 | CMS. https://www.cms.gov/newsroom/press-releases/cms-announces-new-measures-protect-nursing-home-residents-covid-19 . Accessed August 14, 2020.
Hado E, Friss Feinberg L. Amid the COVID-19 pandemic, meaningful communication between family caregivers and residents of long-term care facilities is imperative. J Aging Soc Policy . 2020;32(4–5):410–415. doi:10.1080/08959420.2020.1765684.
doi: 10.1080/08959420.2020.1765684
Calton B, Abedini N, Fratkin M. Telemedicine in the time of coronavirus [published online March 31, 2020]. J Pain Symptom Manage . 2020;60(1):e12–e14. doi:10.1016/j.jpainsymman.2020.03.019.
doi: 10.1016/j.jpainsymman.2020.03.019
National Hospice and Palliative Care Association. Palliative Care Needs Survey 2020 Report Shows Growth in the Field . Rockville, MD: National Hospice and Palliative Care Organization; 2020:7–10.
Kyruus. Patient perspectives on virtual care report. kyruus.com . Published 2020. https://www.kyruus.com/patient-perspectives-on-virtual-care . Accessed July 25, 2020.
Ng E, de Colombani P. Framework for selecting best practices in public health: a systematic literature review. J Public Health Res . 2015;4(3). doi:10.4081/jphr.2015.577.
doi: 10.4081/jphr.2015.577
Center to Advance Palliative Care. COVID-19 and telehealth development. COVID-19 Response Resources Hub. https://www.capc.org/covid-19/telehealth/development/ . Accessed August 16, 2020.
Bishop L, Flick T, Wildman V. Best practices for using telehealth in palliative care. 2015:10. https://www.nhpco.org/wp-content/uploads/2019/04/PALLIATIVECARE_Telehealth.pdf . Accessed August 16, 2020.
Hatcher T. Telehealth in hospice: providing care, comfort, and counseling from afar. Relias . Published June 17, 2020. https://www.relias.com/blog/telehealth-hospice-providing-care-from-afar . Accessed August 16, 2020.
Jiménez-Rodríguez D, Ruiz-Salvador D, Rodríguez Salvador MDM, Pérez-Heredia M, Muñoz Ronda FJ, Arrogante O. Consensus on criteria for good practices in video consultation: a Delphi study. Int J Environ Res Public Health . 2020;17(15):5396.
Stickley T. From SOLER to SURETY for effective non-verbal communication. Nurse Educ Pract . 2011;11(6):395–398. doi:10.1016/j.nepr.2011.03.021.
doi: 10.1016/j.nepr.2011.03.021
Tuxbury JS. The experience of presence among telehealth nurses. J Nurs Res . 2013;21(3):155–161. doi:10.1097/jnr.0b013e3182a0b028.
doi: 10.1097/jnr.0b013e3182a0b028
Weaver MS, Neumann ML, Navaneethan H, Robinson JE, Hinds PS. Human touch via touchscreen: rural nurses’ experiential perspectives on telehealth use in pediatric hospice care [published online June 7, 2020]. J Pain Symptom Manage . 2020;60(5):1027–1033. doi:10.1016/j.jpainsymman.2020.06.003.
doi: 10.1016/j.jpainsymman.2020.06.003
Chua IS, Jackson V, Kamdar M. Webside manner during the COVID-19 pandemic: maintaining human connection during virtual visits [published online June 11, 2020]. J Palliat Med . 2020;23(11):1507–1509. doi:10.1089/jpm.2020.0298.
doi: 10.1089/jpm.2020.0298
American Geriatrics Society Expert Panel on Person-Centered Care. Person-centered care: a definition and essential elements. J Am Geriatr Soc . 2016;64(1):15–18. doi:10.1111/jgs.13866.
doi: 10.1111/jgs.13866
Schellinger SE, Anderson EW, Frazer MS, Cain CL. Patient self-defined goals: essentials of person-centered care for serious illness. Am J Hosp Palliat Care . 2018;35(1):159–165. doi:10.1177/1049909117699600.
doi: 10.1177/1049909117699600
Phongtankuel V, Shalev A, Adelman RD, et al. Mobile health technology is here—but are hospice informal caregivers receptive? Am J Hosp Palliat Med . 2018;35(12):1547–1552. doi:10.1177/1049909118779018.
doi: 10.1177/1049909118779018
van Galen LS, Car J. Telephone consultations. BMJ . 2018;360:k1047. doi:10.1136/bmj.k1047.
doi: 10.1136/bmj.k1047
Middleton-Green L, Gadoud A, Norris B, et al. ‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation-an evaluation. BMJ Support Palliat Care . 2019;9(4):e26. doi:10.1136/bmjspcare-2015-001016.
doi: 10.1136/bmjspcare-2015-001016
Parker J. CMS expands telehealth for hospice, other providers during COVID-19 outbreak. Hospice News . Published March 17, 2020. https://hospicenews.com/2020/03/17/cms-expands-telehealth-during-covid-19-outbreak/ . Accessed July 22, 2020.