Priorities and preferences for care of people with multiple chronic conditions.
delivery of health care
health priorities
integrated
multiple chronic conditions
patient preference
primary health care
qualitative research
survey
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
08 2021
08 2021
Historique:
revised:
15
03
2021
received:
04
01
2021
accepted:
01
04
2021
pubmed:
4
5
2021
medline:
26
10
2021
entrez:
3
5
2021
Statut:
ppublish
Résumé
To guide the development of high-quality care for people with multiple chronic conditions, partners of the European Joint Action CHRODIS developed the Integrated Multimorbidity Care Model. To assess its suitability for improving care for people with multimorbidity in the Netherlands, the model was piloted in a primary care setting with both patients and care providers. This paper reports on the patient perspective, and aims to explore the priorities, underlying values and preferences for care of people with multimorbidity. Twenty persons with multimorbidity (selected from general practice registries) participated in a focus group or telephone interview. Subsequently, a questionnaire was completed by 863 persons with multimorbidity registered with 14 general practices. Qualitative data were thematically analysed and quantitative data by means of descriptive statistics. Frequently prioritized elements of care were the use of shared electronic health records, regular comprehensive assessments, self-management support and shared decision making, and care coordination. Preferences for how these elements should be specifically addressed differed according to individual values (eg weighing safety against privacy) and needs (eg ways of coping with multimorbidity). The JA-CHRODIS Integrated Multimorbidity Care Model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, which supports its relevance to guide the development of person-centred integrated care for people with multiple chronic conditions in the Netherlands. European patient experts contributed to the development and applicability assessment of the JA-CHRODIS Integrated Multimorbidity Care Model; Dutch patients participated in focus groups, interviews and a survey.
Sections du résumé
BACKGROUND
To guide the development of high-quality care for people with multiple chronic conditions, partners of the European Joint Action CHRODIS developed the Integrated Multimorbidity Care Model. To assess its suitability for improving care for people with multimorbidity in the Netherlands, the model was piloted in a primary care setting with both patients and care providers.
AIM
This paper reports on the patient perspective, and aims to explore the priorities, underlying values and preferences for care of people with multimorbidity.
PARTICIPANTS AND METHODS
Twenty persons with multimorbidity (selected from general practice registries) participated in a focus group or telephone interview. Subsequently, a questionnaire was completed by 863 persons with multimorbidity registered with 14 general practices. Qualitative data were thematically analysed and quantitative data by means of descriptive statistics.
RESULTS
Frequently prioritized elements of care were the use of shared electronic health records, regular comprehensive assessments, self-management support and shared decision making, and care coordination. Preferences for how these elements should be specifically addressed differed according to individual values (eg weighing safety against privacy) and needs (eg ways of coping with multimorbidity).
CONCLUSION
The JA-CHRODIS Integrated Multimorbidity Care Model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, which supports its relevance to guide the development of person-centred integrated care for people with multiple chronic conditions in the Netherlands.
PATIENT CONTRIBUTION
European patient experts contributed to the development and applicability assessment of the JA-CHRODIS Integrated Multimorbidity Care Model; Dutch patients participated in focus groups, interviews and a survey.
Identifiants
pubmed: 33938597
doi: 10.1111/hex.13262
pmc: PMC8369115
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1300-1311Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
Psychol Bull. 1997 May;121(3):417-36
pubmed: 9136643
BMC Fam Pract. 2020 Apr 29;21(1):75
pubmed: 32349683
Eur J Intern Med. 2016 Nov;35:44-50
pubmed: 27640914
J Prim Care Community Health. 2017 Oct;8(4):319-323
pubmed: 28434390
J Prim Health Care. 2015 Sep 01;7(3):228-35
pubmed: 26437047
Fam Pract. 2008 Aug;25(4):287-93
pubmed: 18628243
BMJ Open. 2015 Sep 25;5(9):e009287
pubmed: 26408832
BMC Fam Pract. 2012 May 29;13:45
pubmed: 22639848
Med Care. 1992 Jun;30(6):473-83
pubmed: 1593914
N Engl J Med. 2010 Dec 23;363(26):2477-81
pubmed: 21142528
BMC Geriatr. 2017 Jun 23;17(1):132
pubmed: 28645251
Health Expect. 2014 Oct;17(5):608-21
pubmed: 22712877
Health Expect. 2005 Mar;8(1):34-42
pubmed: 15713169
Lancet. 2012 Jul 7;380(9836):37-43
pubmed: 22579043
Fam Pract. 2004 Aug;21(4):381-6
pubmed: 15249526
BMJ Open. 2016 Jun 10;6(6):e010903
pubmed: 27288377
Manag Care Q. 1999 Summer;7(3):56-66
pubmed: 10620960
Patient Educ Couns. 2020 Oct;103(10):2078-2094
pubmed: 32345574
Qual Saf Health Care. 2004 Aug;13(4):299-305
pubmed: 15289634
Health Policy. 2016 Jul;120(7):818-32
pubmed: 27114104
BMJ Open. 2018 Mar 6;8(3):e019616
pubmed: 29511015
Cochrane Database Syst Rev. 2005 Apr 18;(2):CD001271
pubmed: 15846614
Qual Life Res. 2005 Feb;14(1):45-55
pubmed: 15789940
Int J Nurs Stud. 2017 Sep;74:15-23
pubmed: 28595110
Eff Clin Pract. 1998 Aug-Sep;1(1):2-4
pubmed: 10345255
Prim Health Care Res Dev. 2019 Sep 24;20:e134
pubmed: 31547898
Front Public Health. 2020 Nov 27;8:515469
pubmed: 33330299
Int J Environ Res Public Health. 2020 Jul 22;17(15):
pubmed: 32707791
Health Expect. 2021 Aug;24(4):1300-1311
pubmed: 33938597
Int J Integr Care. 2019 Jul 23;19(3):4
pubmed: 31367203
Patient Educ Couns. 2012 Apr;87(1):62-6
pubmed: 21873018
J Gerontol B Psychol Sci Soc Sci. 2011 May;66(3):380-6
pubmed: 21441387
Health Policy. 2018 Jan;122(1):4-11
pubmed: 28967492
Int J Environ Res Public Health. 2019 Dec 11;16(24):
pubmed: 31835691
PLoS One. 2014 Jul 21;9(7):e102149
pubmed: 25048354