Effectiveness of a multidisciplinary clinical pathway for women with systemic lupus erythematosus and/or antiphospholipid syndrome.


Journal

Lupus science & medicine
ISSN: 2053-8790
Titre abrégé: Lupus Sci Med
Pays: England
ID NLM: 101633705

Informations de publication

Date de publication:
05 2021
Historique:
received: 22 12 2020
revised: 05 03 2021
accepted: 18 04 2021
entrez: 6 5 2021
pubmed: 7 5 2021
medline: 28 9 2021
Statut: ppublish

Résumé

SLE and/or antiphospholipid syndrome (SLE/APS) are complex and rare systemic autoimmune diseases that predominantly affect women of childbearing age. Women with SLE/APS are at high risk of developing complications during pregnancy. Therefore, clinical practice guidelines recommend that patients with SLE/APS should receive multidisciplinary counselling before getting pregnant. We investigated the clinical effectiveness of implementing a multidisciplinary clinical pathway including prepregnancy counselling of patients with SLE/APS. A clinical pathway with specific evaluation and prepregnancy counselling for patients with SLE/APS was developed and implemented in a tertiary, academic hospital setting. Patients were prospectively managed within the clinical pathway from 2014 onwards and compared with a retrospective cohort of patients that was not managed in a clinical pathway. Primary outcome was a combined outcome of disease flares for SLE and thromboembolic events for APS. Secondary outcomes were maternal and fetal pregnancy complications. Seventy-eight patients with 112 pregnancies were included in this study. The primary combined outcome was significantly lower in the pathway cohort (adjusted OR (aOR) 0.20 (95% CI 0.06 to 0.75)) which was predominantly determined by a fivefold risk reduction of SLE flares (aOR 0.22 (95% CI 0.04 to 1.09)). Maternal and fetal pregnancy complications were not different between the cohorts (respectively, aOR 0.91 (95% CI 0.38 to 2.17) and aOR 1.26 (95% CI 0.55 to 2.88)). The outcomes of this study suggest that patients with SLE/APS with a pregnancy wish benefit from a multidisciplinary clinical pathway including prepregnancy counselling.

Identifiants

pubmed: 33952625
pii: 8/1/e000472
doi: 10.1136/lupus-2020-000472
pmc: PMC8103373
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Merlijn Wind (M)

Department of Obstetrics, Leiden University Medical Center, Leiden, The Netherlands m.wind@lumc.nl.

Maike Hendriks (M)

Department of Obstetrics, Leiden University Medical Center, Leiden, The Netherlands.

Bernadette T J van Brussel (BTJ)

Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.

Jeroen Eikenboom (J)

Department of Internal Medicine, Leiden University Medical Center, Leiden, The Netherlands.

Cornelia F Allaart (CF)

Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.

Hildo J Lamb (HJ)

Department of Radiology, Leiden University Medical Center, Leiden, The Netherlands.

Hans-Marc J Siebelink (HJ)

Department of Cardiology, Leiden University Medical Center, Leiden, The Netherlands.

Maarten K Ninaber (MK)

Department of Pulmonology, Leiden University Medical Center, Leiden, The Netherlands.

Nan van Geloven (N)

Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.

Jan M M van Lith (JMM)

Department of Obstetrics, Leiden University Medical Center, Leiden, The Netherlands.

Tom W J Huizinga (TWJ)

Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.

Ton J Rabelink (TJ)

Nephrology, Leiden University Medical Center, Leiden, The Netherlands.

Marieke Sueters (M)

Department of Obstetrics, Leiden University Medical Center, Leiden, The Netherlands.

Y K Onno Teng (YKO)

Nephrology, Leiden University Medical Center, Leiden, The Netherlands.

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