Health literacy and eHealth literacy and their association with other caring concepts among carers of people with dementia: A descriptive correlational study.
Health literacy
carers
coping
dementia
eHealth
self-efficacy
Journal
Health & social care in the community
ISSN: 1365-2524
Titre abrégé: Health Soc Care Community
Pays: England
ID NLM: 9306359
Informations de publication
Date de publication:
05 2022
05 2022
Historique:
revised:
01
02
2021
received:
10
08
2020
accepted:
12
02
2021
pubmed:
7
5
2021
medline:
14
4
2022
entrez:
6
5
2021
Statut:
ppublish
Résumé
Health literacy (HL) and eHealth literacy (eHL) can facilitate carers of people with dementia (PwD) to search, find, assess and apply information related to dementia-specific issues from different resources. There is a lack of research with regard to HL and eHL among carers of PwD. The aim of this study is to identify the levels of HL and eHL among carers of PwD in Greece and Cyprus and to search for the associations with other caring concepts. This study followed a descriptive correlational design. In total, 174 primary informal carers of PwD, mostly women, over 45 years old and with more than 12 years of education and 67 secondary carers (family, friends or neighbours) participated in the study. Primary informal carers completed a face-to-face survey on the level of HL and eHL, internet use, dementia-specific internet use, care-giving self-efficacy, coping strategies, care-giving perceptions and social support. Primary informal carers reported a high level of eHL and HL. Carers with higher HL were more likely to report higher score of eHL, care-giving self-efficacy and lower score of problematic/dysfunctional coping. Higher score of eHeals-Carer "information seeking" was related with higher use of emotion-focused strategies. From this study, a positive message was received with regard to the role of HL and eHL in the everyday caring life. Non-for-profit organisations and healthcare professionals could integrate in their practice assessment tools and develop tailored training courses for carers enhancing low level of HL and eHL.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1109-1119Informations de copyright
© 2021 John Wiley & Sons Ltd.
Références
Bandura, A. (1978). Self-efficacy: Toward a Unifying Theory of Behavioral Change. Advances in Behaviour Research and Therapy, 1, 139-161. https://doi.org/10.1016/0146-6402(78)90002-4
Botelho, A., Correia, I., Tânia, D., Lígia, F., Pinto, M. C., & Veiga, P. (2019). Overestimation of health urgency as a cause for emergency services inappropriate use : Insights from an exploratory economics experiment in Portugal. Health and Social Care in the Community, 1031-1041. https://doi.org/10.1111/hsc.12720
Carver, C., Scheier, M., & Weintraub, J. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56(2), 257-283. https://doi.org/10.1037/0022-3514.56.2.267
Cheng, S. T., Lam, L. C. W., Kwok, T., Ng, N. S. S., & Fung, A. W. T. (2013). Self-efficacy is associated with less burden and more gains from behavioral problems of Alzheimer’s disease in Hong Kong Chinese caregivers. Gerontologist, 53(1), 71-80. https://doi.org/10.1093/geront/gns062
Colombo, F., Llena-Nozal, A., Mercier, J., & Tjadens, F. (2011). Help wanted?. OECD Publishing. https://doi.org/10.1787/9789264097759-en
Crellin, N. E., Orrell, M., McDermott, O., & Charlesworth, G. (2014). Self-efficacy and health-related quality of life in family carers of people with dementia: A systematic review. Aging and Mental Health, 18(8), 954-969. https://doi.org/10.1080/13607863.2014.915921
del-Pino-Casado, R., Frías-Osuna, A., Palomino-Moral, P. A., Ruzafa-Martínez, M., & Ramos-Morcillo, A. J. (2018). Social support and subjective burden in caregivers of adults and older adults: A meta-analysis. PLoS One, 13(1), 1-18. https://doi.org/10.1371/journal.pone.0189874
Efthymiou, A., Middleton, N., Charalambous, A., & Papastavrou, E. (2017). The association of health literacy and electronic health literacy with self-efficacy, coping, and caregiving perceptions among carers of people with dementia: Research protocol for a descriptive correlational study. JMIR Research Protocols, 6(11), e221. https://doi.org/10.2196/resprot.8080
Efthymiou, A., Middleton, N., Charalambous, A., & Papastavrou, E. (2019). Adapting the eHealth literacy scale for carers of people with chronic diseases (eHeals-Carer) in a sample of greek and cypriot carers of people with dementia: Reliability and validation study. Journal of Medical Internet Research, 21(11), e12504. https://doi.org/10.2196/12504
Efthymiou, A., Papastavrou, E., Middleton, N., Markatou, A., & Sakka, P. (2020). How caregivers of people with dementia search for dementia-specific information on the internet: Survey study. JMIR Aging, 3(1), 1-10. https://doi.org/10.2196/15480
European Commission. (2018). The ageing report economic & budgetary projections for the 28 EU member states (2016-2070) (Vol. 8014). https://doi.org/10.2765/615631
EUROSTAT. (2019). Ageing Europe. Looking at the lives of older people in the EU (2019th ed.). Publications Office of the European Union. Retrieved from https://ec.europa.eu/eurostat/documents/3217494/10166544/KS-02-19-681-EN-N.pdf/c701972f-6b4e-b432-57d2-91898ca94893
Galanis, P. (2015). Data analysis methodology for health sciences (in Greek). Medical Publications Paschalides. ISBN: 9789963258055.
García-Alberca, J. M., Cruz, B., Lara, J. P., Garrido, V., Lara, A., & Gris, E. (2012). Anxiety and depression are associated with coping strategies in caregivers of Alzheimer’s disease patients: Results from the MÁLAGA-AD study. International Psychogeriatrics / IPA, 24(8), 1325-1334. https://doi.org/10.1017/s1041610211002948
HLS-EU CONSORTIUM. (2012). Comparative report on health literacy in Eight EU member states (second revised and extended version, date July 22th, 2014). Retrieved from https://cdn1.sph.harvard.edu/wp-content/uploads/sites/135/2015/09/neu_rev_hls-eu_report_2015_05_13_lit.pdf
Kapsou, M., Panayiotou, G., Kokkinos, C. M., & Demetriou, A. G. (2010). Dimensionality of coping: An empirical contribution to the construct validation of the brief-COPE with a Greek-speaking sample. Journal of Health Psychology, 15(2), 215-229. https://doi.org/10.1177/1359105309346516
Leung, D. Y. P., Chan, H. Y. L., Chiu, P. K. C., Lo, R. S. K., & Lee, L. L. Y. (2020). Source of social support and caregiving self-efficacy on caregiver burden and patient’s quality of life: A path analysis on patients with palliative care needs and their caregivers. International Journal of Environmental Research and Public Health, 17(15), 1-13. https://doi.org/10.3390/ijerph17155457
Li, R., Cooper, C., Bradley, J., Shulman, A., & Livingston, G. (2012). Coping strategies and psychological morbidity in family carers of people with dementia: A systematic review and meta-analysis. Journal of Affective Disorders. https://doi.org/10.1016/j.jad.2011.05.055
Mark, R. E. (2016). Promote the health of dementia caregivers. American Journal of Alzheimer’s Disease and Other Dementias, 31(2), 181-183. https://doi.org/10.1177/1533317515588182
McKee, K. J., Philp, I., Lamura, G., Prouskas, C., Öberg, B., Krevers, B., Spazzafumo, L., Bien, B., Parker, C., Nolan, M. R., & Szczerbinska, K. (2003). The COPE index-a first stage assessment of negative impact, positive value and quality of support of caregiving in informal carers of older people. Aging Mental Health, 7(1), 39-52. https://doi.org/10.1080/1360786021000006956
Neville, C., Rpn, R. N., Beattie, E., Fielding, E., & Neville, C. (2015). Literature review: Use of respite by carers of people with dementia. Health and Social Care in the Community, 23, 51-63. https://doi.org/10.1111/hsc.12095
Norman, C. D., & Skinner, H. A. (2006a). eHEALS: The eHealth literacy scale. Journal of Medical Internet Research, 8(4), 1-7. https://doi.org/10.2196/jmir.8.4.e27
Norman, C. D., & Skinner, H. A. (2006b). eHealth literacy: Essential skills for consumer health in a networked world. Journal of Medical Internet Research, https://doi.org/10.2196/jmir.8.2.e9
OECD. (2017). Tacking wasteful spending on health. OECD Publishing. ISBN: 9789264266414 (PDF). https://read.oecd-ilibrary.org/social-issues-migration-health/tackling-wasteful-spending-on-health_9789264266414-en
Oliveira, D., Sousa, L., & Orrell, M. (2019). Improving health-promoting self-care in family carers of people with dementia: A review of interventions. Clinical Interventions in Aging, 14, 515-523. https://doi.org/10.2147/CIA.S190610
Palumbo, R., Annarumma, C., Adinolfi, P., & Musella, M. (2016). The missing link to patient engagement in Italy: The role of health literacy in enabling patients. Journal of Health Organization and Management, 30(8), 1183-1203. https://doi.org/10.1108/JHOM-01-2016-0011
Papastavrou, E., Andreou, P., Middleton, N., Tsangari, H., & Papacostas, S. (2015). Dementia caregiver burden association with community participation aspect of social capital. Journal of Advanced Nursing, 71(12), 2898-2910. https://doi.org/10.1111/jan.12762
Pearlin, L., Mullan, J., Sepmle, S., & Skaff, M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5). https://doi.org/10.1093/geront/30.5.583
Perlesz, A., Kinsella, G., & Crowe, S. (2000). Psychological distress and family satisfaction following traumatic brain injury: Injured individuals and their primary, secondary, and tertiary carers. The Journal of Head Trauma Rehabilitation, 15(3), 909-929. https://doi.org/10.1097/00001199-200006000-00005
Quaglio, G., Sørensen, K., Rübig, P., Bertinato, L., Brand, H., Karapiperis, T., Dinca, I., Peetso, T., Kadenbach, K., &Dario, C. (2016). Accelerating the health literacy agenda in Europe. Health Promotion International, 32(6), 1074-1080.https://doi.org/10.1093/heapro/daw028
Queluz, F. N. F. R., Kervin, E., Wozney, L., Fancey, P., McGrath, P. J., & Keefe, J. (2019). Understanding the needs of caregivers of persons with dementia: A scoping review. International Psychogeriatrics. https://doi.org/10.1017/S1041610219000243
Roche, L., MacCann, C., & Croot, K. (2016). Predictive factors for the uptake of coping strategies by spousal dementia caregivers. Alzheimer Disease & Associated Disorders, 30, 80-91. https://doi.org/10.1097/WAD.0000000000000105
Soleimaninejad, A., Valizadeh-Haghi, S., & Rahmatizadeh, S. (2019). Assessing the eHealth literacy skills of family caregivers of medically ill elderly. Online Journal of Public Health Informatics, 11(2), https://doi.org/10.5210/ojphi.v11i2.10149
Sørensen, K., Van den Broucke, S., Fullam, J., Doyle, G., Pelikan, J., & Slonska, Z. , & Brand, H. (2012). Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health, 12(8), 80. https://doi.org/10.1186/1471-2458-12-80
Sørensen, K., Koylyu, A., & Mikkelsen, B. (2020). WHO European health literacy action plan. European Journal of Public Health, 30(Suppl. 5). https://doi.org/10.1093/eurpub/ckaa165.151
Sørensen, K., Pelikan, J. M., Röthlin, F., Ganahl, K., Slonska, Z., Doyle, G., Fullam, J., Kondilis, B., Agrafiotis, D., Uiters, E., Falcon, M., Mensing, M., Tchamov, K., Broucke, S. V. D., & Brand, H. (2015). Health literacy in Europe: Comparative results of the European health literacy survey (HLS-EU). European Journal of Public Health, 25(6), 1053-1058. https://doi.org/10.1093/eurpub/ckv043
Steffen, A., McKibbin, C., Zeiss, A., Gallagher-Thompson, D., & Bandura, A. (2002). The revised self-efficacy for caregiving interview: Two reliability and validity studies. Journal of Gerontology: Psychological Sciences, 57(1), 74-86. https://doi.org/10.1093/geronb/57.1.p74
Stewart, A., Thrasher, A., Goldberg, J., & Shea, J. (2012). A framework for understanding modifications to measures for diverse populations. Journal of Aging and Health, 24(6), 992-1017. https://doi.org/10.1177/0898264312440321
Tsilika, E., Galanos, A., Polykandriotis, T., Parpa, E., & Mystakidou, K. (2019). Psychometric Properties of the Multidimensional Scale of Perceived Social Support in Greek Nurses. The Canadian Journal of Nursing Research, 51(1), 23-30. https://doi.org/10.1177/0844562118799903
Wang, K., Gao, X., Sun, F., & Bishop, N. J. (2020). eHealth literacy and caregiver burden among Chinese caregivers of older adults with cognitive impairment: Does education matter? Journal of Applied Gerontology. https://doi.org/10.1177/0733464820957151
World Health Organisation. (2015). Supporting informal caregivers of people living with dementia supporting informal caregivers of people living. World Health Organisation. Retrieved from https://www.who.int/mental_health/neurology/dementia/dementia_thematicbrief_informal_care.pdf
World Health Organization. (2013). Health literacy The solid facts. Publications World Health Organization Regional office for Europe. ISBN: 978 92 890 00154. Retrieved from https://apps.who.int/iris/bitstream/handle/10665/128703/e96854.pdf
Yang, Y., Zhang, B., Meng, H., Liu, D., & Sun, M. (2019). Mediating effect of social support on the associations between health literacy, productive aging, and self-rated health among elderly Chinese adults in a newly urbanized community. Medicine, 98(16), e15162. https://doi.org/10.1097/MD.0000000000015162
Yuen, E. Y. N., Knight, T., Ricciardelli, L. A., & Burney, S. (2018). Health literacy of caregivers of adult care recipients: A systematic scoping review. Health and Social Care in the Community, 26(2), e191-e206. https://doi.org/10.1111/hsc.12368
Zhang, S., Guo, Q., Edwards, H., Yates, P., & Li, C. (2014). Self-efficacy moderation and mediation roles on BPSD and social support influences on subjective caregiver burden in Chinese spouse caregivers of dementia patients. International Psychogeriatrics, 26(9), 1465-1473. https://doi.org/10.1017/S1041610214000994
Zimet, G. D., Powell, S. S., Farley, G. K., Werkman, S., & Berkoff, K. A. (1990). Psychometric characteristics of the multidimensional scale of perceived social support. Journal of Personality Assessment, 55(3/4), 610-617.Retrieved from http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=bth&AN=6392221