Cancer Patient Experience of Uncertainty While Waiting for Genome Sequencing Results.

anxiety cancer genetic testing genome sequecing genomic psychosocial uncertainty

Journal

Frontiers in psychology
ISSN: 1664-1078
Titre abrégé: Front Psychol
Pays: Switzerland
ID NLM: 101550902

Informations de publication

Date de publication:
2021
Historique:
received: 30 12 2020
accepted: 26 03 2021
entrez: 10 5 2021
pubmed: 11 5 2021
medline: 11 5 2021
Statut: epublish

Résumé

There is limited knowledge about cancer patients' experiences of uncertainty while waiting for genome sequencing results, and whether prolonged uncertainty contributes to psychological factors in this context. To investigate uncertainty in patients with a cancer of likely hereditary origin while waiting for genome sequencing results, we collected questionnaire and interview data at baseline, and at three and 12 months follow up (prior to receiving results). Participants (

Identifiants

pubmed: 33967906
doi: 10.3389/fpsyg.2021.647502
pmc: PMC8100530
doi:

Types de publication

Journal Article

Langues

eng

Pagination

647502

Informations de copyright

Copyright © 2021 Bartley, Napier, Butt, Schlub, Best, Biesecker, Ballinger and Butow.

Déclaration de conflit d'intérêts

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

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Auteurs

Nicci Bartley (N)

Psycho-Oncology Co-operative Research Group, Faculty of Science, School of Psychology, The University of Sydney, Sydney, NSW, Australia.

Christine E Napier (CE)

Cancer Theme, Garvan Institute of Medical Research, Sydney, NSW, Australia.

Zoe Butt (Z)

Psycho-Oncology Co-operative Research Group, Faculty of Science, School of Psychology, The University of Sydney, Sydney, NSW, Australia.

Timothy E Schlub (TE)

Faculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.

Megan C Best (MC)

Psycho-Oncology Co-operative Research Group, Faculty of Science, School of Psychology, The University of Sydney, Sydney, NSW, Australia.
Institute for Ethics & Society, The University of Notre Dame Australia, Sydney, NSW, Australia.

Barbara B Biesecker (BB)

Research Triangle Institute International, Bethesda, MD, United States.

Mandy L Ballinger (ML)

Cancer Theme, Garvan Institute of Medical Research, Sydney, NSW, Australia.
St Vincent's Clinical School, University of NSW, Sydney, NSW, Australia.

Phyllis Butow (P)

Psycho-Oncology Co-operative Research Group, Faculty of Science, School of Psychology, The University of Sydney, Sydney, NSW, Australia.

Classifications MeSH