Bibliotherapy for improving caregiving appraisal of informal caregivers of people with dementia: A pilot randomized controlled trial.
bibliotherapy
caregivers
caregiving appraisal
coping
dementia
Journal
Research in nursing & health
ISSN: 1098-240X
Titre abrégé: Res Nurs Health
Pays: United States
ID NLM: 7806136
Informations de publication
Date de publication:
08 2021
08 2021
Historique:
revised:
12
04
2021
received:
09
12
2020
accepted:
05
05
2021
pubmed:
19
5
2021
medline:
25
8
2021
entrez:
18
5
2021
Statut:
ppublish
Résumé
Caregiving appraisal is a key driver to moderating caregiving outcomes. The caregiving appraisal of informal caregivers of people with dementia requires increased attention. This study aimed to explore the feasibility and acceptability of an evidence-based bibliotherapy protocol, and test the efficacy on improving caregiving appraisal. A two-arm pilot randomized controlled trial was adopted. Sixty informal caregivers were randomized to either the intervention group, receiving eight weekly professional-guided bibliotherapy sessions in addition to usual care; or the usual care group. The professional-guided bibliotherapy sessions were weekly sessions in which caregivers self-read the designated chapter and then received telephone coaching. Caregiving appraisal, coping, psychological well-being, positive aspects of caregiving, knowledge of dementia, and attitude toward dementia were assessed both at baseline and immediately after the intervention. Assessors were blinded to group allocation. Individual interviews among 10 participants from the intervention group were conducted to explorecaregivers' acceptance of the intervention. Descriptive statistics, χ
Types de publication
Journal Article
Randomized Controlled Trial
Langues
eng
Sous-ensembles de citation
IM
Pagination
692-703Informations de copyright
© 2021 Wiley Periodicals LLC.
Références
Bjørge, H. , Kvaal, K. , Småstuen, M. C. , & Ulstein, I. (2017). Relationship quality and distress in caregivers of persons with dementia: A cross-sectional study. American Journal of Alzheimer's Disease & Other Dementias, 32(3), 157-165. https://doi.org/10.1177/1533317517691121
Carpenter, B. D. , Balsis, S. , Otilingam, P. G. , Hanson, P. K. , & Gatz, M. (2009). The Alzheimer's disease knowledge scale: Development and psychometric properties. The Gerontologist, 49(2), 236-247.
Chien, W. , Thompson, D. , Lubman, D. , & McCann, T. (2016). A randomized controlled trial of clinician-supported problem-solving bibliotherapy for family caregivers of people with first-episode psychosis. Schizophrenia Bulletin, 42(6), 1457-1466. https://doi.org/10.1093/schbul/sbw054
Chien, W. , Yip, A. , Liu, J. , & McMaster, T. (2016). The effectiveness of manual-guided, problem-solving-based self-learning programme for family caregivers of people with recent-onset psychosis: A randomised controlled trial with 6-month follow-up. International Journal of Nursing Studies, 59, 141-155. https://doi.org/10.1016/j.ijnurstu.2016.03.018
Elo, S. , Kääriäinen, M. , Kanste, O. , Pölkki, T. , Utriainen, K. , & Kyngäs, H. (2014). Qualitative content analysis: A focus on trustworthiness. SAGE Open, 4(1), 2158244014522633. https://doi.org/10.1177/2158244014522633
Glasgow, R. E. , & Rosen, G. M. (1978). Behavioral bibliotherapy: A review of self-help behavior therapy manuals. Psychological Bulletin, 85(1), 1-23. https://doi.org/10.1037/0033-2909.85.1.1
Gonzalez, C. , & Bakas, T. (2013). Factors associated with stroke survivor behaviors as identified by family caregivers. Rehabilitation Nursing, 38(4), 202-211.
Heo, M. (2014). Impact of subject attrition on sample size determinations for longitudinal cluster randomized clinical trials. Journal of Biopharmaceutical Statistics, 24(3), 507-522. https://doi.org/10.1080/10543406.2014.888442
La, I. S. , & Yun, E. K. (2017). Effects of stress appraisal on the quality of life of adult patients with multiple myeloma and their primary family caregivers in Korea. Psycho-Oncology, 26(10), 1640-1646. https://doi.org/10.1002/pon.4348
Lawton, M. P. , Kleban, M. H. , Moss, M. , Rovine, M. , & Glicksman, A. (1989). Measuring caregiving appraisal. Journal of Gerontology, 44(3), P61-P71. https://doi.org/10.1093/geronj/44.3.P61
Lawton, M. P. , Moss, M. , Kleban, M. H. , Glicksman, A. , & Rovine, M. (1991). A two-factor model of caregiving appraisal and psychological well-being. Journal of Gerontology, 46(4), P181-P189. https://doi.org/10.1093/geronj/46.4.P181
Lazarus, R. S. , & Folkman, S. (1986). Stress, appraisal, and coping.: Springer Publishing Company.
Lee, H. S. , Brennan, P. F. , & Daly, B. J. (2001). Relationship of empathy to appraisal, depression, life satisfaction, and physical health in informal caregivers of older adults. Research in Nursing & Health, 24(1), 44-56.
Leung, A. Y. , Leung, I. S. , Liu, J. Y. , Ting, S. , & Lo, S. (2018). Improving health literacy and medication compliance through comic books: A quasi-experimental study of Chinese community-dwelling older adults. Global Health Promotion, 25(4), 67-78. https://doi.org/10.1177/1757975918798364
Li, R.-H. (2014). Reliability and validity of a shorter Chinese version for Ryff's psychological well-being scale. Health Education Journal, 73(4), 446-452. https://doi.org/10.1177/0017896913485743
Liu, Y. , Insel, K. C. , Reed, P. G. , & Crist, J. D. (2012). Family caregiving of older Chinese people with dementia: Testing a model. Nursing Research, 61(1), 39-50. https://doi.org/10.1097/NNR.0b013e31823bc451
Lou, V. W. , Lau, B. H. , & Cheung, K. S. (2015). Positive aspects of caregiving (PAC): Scale validation among Chinese dementia caregivers (CG). Archives of Gerontology and Geriatrics, 60(2), 299-306. https://doi.org/10.1016/j.archger.2014.10.019
McKenna, G. , Hevey, D. , & Martin, E. (2010). Patients' and providers' perspectives on bibliotherapy in primary care. Clinical Psychology & Psychotherapy, 17(6), 497-509.
Newman, M. G. , Erickson, T. , Przeworski, A. , & Dzus, E. (2003). Self-help and minimal-contact therapies for anxiety disorders: Is human contact necessary for therapeutic efficacy? Journal of Clinical Psychology, 59(3), 251-274. https://doi.org/10.1002/jclp.10128
NHMRC Clinical Trials Centre. (2013). An Australian initiative to support clinical trials: Randomization. https://www.ctc.usyd.edu.au/media/600950/ctc-randomisation.pdf
O'Connor, M. L. , & McFadden, S. H. (2010). Development and psychometric validation of the Dementia Attitudes Scale. International Journal of Alzheimer's Disease, 2010, 1-10.
Pardeck, J. A. (2014). Using books in clinical social work practice: A guide to bibliotherapy. Routledge.
Park, M. , Choi, S. , Lee, S. J. , Kim, S. H. , Kim, J. , Go, Y. , & Lee, D. Y. (2018). The roles of unmet needs and formal support in the caregiving satisfaction and caregiving burden of family caregivers for persons with dementia. International Psychogeriatrics, 30(4), 557-567. https://doi.org/10.1017/S104161021700196X
Reisberg, B. , Ferris, S. H. , de Leon, M. J. , & Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia. The American Journal of Psychiatry, 139, 1136-1139.
Roseman, I. J. , & Smith, C. A. (2001). Appraisal theory: Overview, assumptions, varieties, controversies. In K. R. Scherer , A. Schorr , & T. Johnstone (Eds.), Series in affective science. Appraisal processes in emotion: Theory, methods, research (pp. 3-19). Oxford University Press.
Sekhon, M. , Cartwright, M. , & Francis, J. J. (2017). Acceptability of healthcare interventions: An overview of reviews and development of a theoretical framework. BMC Health Services Research, 17(1), 1-13. https://doi.org/10.1186/s12913-017-2031-8
Shrodes, C. (1949). Bibliotherapy: A theoretical and clinical-experimental study. (Doctoral), Universtiy of California, Berkeley, US.
Sinha, P. , Desai, N. G. , Prakash, O. , Kushwaha, S. , & Tripathi, C. B. (2017). Caregiver burden in Alzheimer-type dementia and psychosis: A comparative study from India. Asian Journal of Psychiatry, 26, 86-91. https://doi.org/10.1016/j.ajp.2017.01.002
Snyder, C. M. , Fauth, E. , Wanzek, J. , Piercy, K. W. , Norton, M. C. , Corcoran, C. , Rabins, P. V. , Lyketsos, C. G. , & Tschanz, J. T. (2015). Dementia caregivers' coping strategies and their relationship to health and well-being: The Cache County Study. Aging & Mental Health, 19(5), 390-399. https://doi.org/10.1080/13607863.2014.939610
Stolley, J. M. , Reed, D. , & Buckwalter, K. C. (2002). Caregiving appraisal and interventions based on the progressively lowered stress threshold model. American Journal of Alzheimer's Disease & Other Dementias®, 17(2), 110-120. https://doi.org/10.1177/153331750201700211
Vandepitte, S. , Van den Noortgate, N. , Putman, K. , Verhaeghe, S. , Faes, K. , & Annemans, L. (2016). Effectiveness of supporting informal caregivers of people with dementia: A systematic review of randomized and non-randomized controlled trials. Journal of Alzheimer's Disease, 52(3), 929-965. https://doi.org/10.3233/JAD-151011
Wang, L. (2005). Explore the related factors between caregivers' appraisal of care and quality of family care on older people with disabilities. (Master), Meiho Institute of Technology, Taiwan.
Wang, S. , Bressington, D. T. , Leung, A. Y. M. , Davidson, P. M. , & Cheung, D. S. K. (2020). The effects of bibliotherapy on the mental well-being of informal caregivers of people with neurocognitive disorder: A systematic review and meta-analysis. International Journal of Nursing Studies, 109, 103643. https://doi.org/10.1016/j.ijnurstu.2020.103643
Wang, S. , Cheung, D. S. K. , & Leung, A. Y. (2019). Overview of dementia care under the three-tier long-term care system of China. Public Health Nursing, 36(2), 199-206. https://doi.org/10.1111/phn.12573
Wang, S. , Cheung, D. S. K. , Leung, A. Y. M. , & Davidson, P. M. (2020). Factors associated with caregiving appraisal of informal caregivers: A systematic review. Journal of Clinical Nursing, 29, 3201-3221. https://doi.org/10.1111/jocn.15394
Whitehead, A. L. , Julious, S. A. , Cooper, C. L. , & Campbell, M. J. (2016). Estimating the sample size for a pilot randomised trial to minimise the overall trial sample size for the external pilot and main trial for a continuous outcome variable. Statistical Methods in Medical Research, 25(3), 1057-1073. https://doi.org/10.1177/0962280215588241
Wu, M.-H. , Lee, S. , Su, H.-Y. , & Pai, H.-C. (2015). The effect of cognitive appraisal in middle-aged women stroke survivors and the psychological health of their caregivers: A follow-up study. Journal of Clinical Nursing, 24(21-22), 3155-3164. https://doi.org/10.1111/jocn.12926
Xiao, L. D. , Wang, J. , He, G.-P. , De Bellis, A. , Verbeeck, J. , & Kyriazopoulos, H. (2014). Family caregiver challenges in dementia care in Australia and China: A critical perspective. BMC Geriatrics, 14(1), 6. https://doi.org/10.1186/1471-2318-14-6
Xie, Y. (1998). The reliability and validity test of ways of coping questionnaire. Chinese Journal of Clinical Psychology, 6(2), 114-115.
Zhang, T. , & Zhao, F. (2011). The relationship between caregiving appraisal, social support and mental health of the primay family caregivers of the disabled. Chinese Journal of Health Psychology, 19(5), 563-564.