A Real-World Rheumatology Registry and Research Consortium: The German RheumaDatenRhePort (RHADAR) Registry.
patient-reported outcomes
real-world data
registry
rheumatology
symptom checker
Journal
Journal of medical Internet research
ISSN: 1438-8871
Titre abrégé: J Med Internet Res
Pays: Canada
ID NLM: 100959882
Informations de publication
Date de publication:
20 05 2021
20 05 2021
Historique:
received:
23
02
2021
accepted:
30
04
2021
revised:
19
03
2021
entrez:
20
5
2021
pubmed:
21
5
2021
medline:
2
10
2021
Statut:
epublish
Résumé
Real-world data are crucial to continuously improve the management of patients with rheumatic and musculoskeletal diseases (RMDs). The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. The RHADAR modules allow automated anamnesis and adaptive coordination of appointments regarding individual urgency levels. Further modules focus on the collection and integration of electronic patient-reported outcomes in between consultations. The digital RHADAR modules ultimately allow a patient-centered adaptive approach to integrated medical care starting as early as possible in the disease course. Such a closed-loop system consisting of various modules along the whole patient pathway enables comprehensive and timely patient management in an unprecedented manner.
Identifiants
pubmed: 34014170
pii: v23i5e28164
doi: 10.2196/28164
pmc: PMC8176344
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e28164Informations de copyright
©Stefan Kleinert, Peter Bartz-Bazzanella, Cay von der Decken, Johannes Knitza, Torsten Witte, Sándor P Fekete, Matthias Konitzny, Alexander Zink, Georg Gauler, Patrick Wurth, Peer Aries, Kirsten Karberg, Christoph Kuhn, Florian Schuch, Susanna Späthling-Mestekemper, Wolfgang Vorbrüggen, Matthias Englbrecht, Martin Welcker, RHADAR Group. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 20.05.2021.
Références
Ann Rheum Dis. 2020 Sep;79(9):1139-1140
pubmed: 32527863
Rheumatol Int. 2021 Apr;41(4):771-779
pubmed: 33074346
Ann Rheum Dis. 2017 Jun;76(6):948-959
pubmed: 27979873
Arthritis Care Res (Hoboken). 2018 Mar;70(3):353-360
pubmed: 28511288
RMD Open. 2019 Sep 13;5(2):e001014
pubmed: 31565245
Semin Arthritis Rheum. 2020 Oct;50(5):1015-1021
pubmed: 32911279
Z Rheumatol. 2019 Nov;78(9):839-846
pubmed: 30542914
RMD Open. 2021 Feb;7(1):
pubmed: 33622673
JMIR Mhealth Uhealth. 2020 May 15;8(5):e17507
pubmed: 32348258
Ann Rheum Dis. 2018 Jan;77(1):30-39
pubmed: 28855174
Z Rheumatol. 2019 Oct;78(8):692-697
pubmed: 31468164
Dtsch Arztebl Int. 2018 Feb 16;115(7):112
pubmed: 29510821
Arthritis Res Ther. 2021 Feb 10;23(1):53
pubmed: 33568191
Z Rheumatol. 2020 Oct;79(8):770-779
pubmed: 32926218
Reumatologia. 2017;55(4):169-176
pubmed: 29056771
JMIR Mhealth Uhealth. 2020 Aug 12;8(8):e19661
pubmed: 32678796
JMIR Mhealth Uhealth. 2019 Aug 05;7(8):e14991
pubmed: 31381501
Rheumatol Int. 2021 Feb;41(2):329-334
pubmed: 33070255
Arthritis Care Res (Hoboken). 2019 Oct;71(10):1336-1343
pubmed: 30242992
Rheumatology (Oxford). 2018 Sep 1;57(9):1592-1601
pubmed: 29850885
BMC Musculoskelet Disord. 2016 Aug 24;17(1):362
pubmed: 27553253
Arthritis Rheum. 2010 Dec;62(12):3537-46
pubmed: 20722031
Ann Rheum Dis. 2020 Jun;79(6):740-743
pubmed: 32209541
FASEB J. 2014 Mar;28(3):1049-58
pubmed: 24297696
Dtsch Med Wochenschr. 2014 Sep;139(37):1817-20
pubmed: 25180996
Z Rheumatol. 2020 Aug;79(6):562-569
pubmed: 32651681
JMIR Mhealth Uhealth. 2020 Jul 20;8(7):e18117
pubmed: 32390592