Development of an Online Reproductive Health Intervention for Individuals with Sickle Cell Disease or Trait.
child health
decision making
infant health
intervention
Journal
Women's health reports (New Rochelle, N.Y.)
ISSN: 2688-4844
Titre abrégé: Womens Health Rep (New Rochelle)
Pays: United States
ID NLM: 101768931
Informations de publication
Date de publication:
2021
2021
Historique:
accepted:
23
01
2021
entrez:
26
5
2021
pubmed:
27
5
2021
medline:
27
5
2021
Statut:
epublish
Résumé
The purpose of this article is to describe the method of developing an internet-based reproductive options intervention to increase informed reproductive decision-making among individuals with sickle cell disease (SCD) or sickle cell trait (SCT). An interprofessional team of graphics and media specialist, nurses, physicians, and researchers collaborated to develop the intervention. Individuals from the community served as advisory board members who reviewed and advised on webpage design, content, delivery, and media. The intervention was theory based, delivered online, and experientially oriented for young adults of reproductive age with SCD or SCT. The intervention was culturally specific, supporting individuals with SCD or SCT in making informed reproductive decisions about transmission of SCD or SCT to their offspring. The intervention could be strengthened to include content on implementing behaviors concordant with informed reproductive decisions. Health care providers can use the result of this study to enhance their knowledge about the complexity of parenting options.
Identifiants
pubmed: 34036297
doi: 10.1089/whr.2020.0098
pii: 10.1089/whr.2020.0098
pmc: PMC8140351
doi:
Types de publication
Journal Article
Langues
eng
Pagination
142-148Subventions
Organisme : NHLBI NIH HHS
ID : R01 HL114404
Pays : United States
Organisme : NHLBI NIH HHS
ID : U54 HL090513
Pays : United States
Informations de copyright
© Versie Johnson-Mallard et al., 2021; Published by Mary Ann Liebert, Inc.
Déclaration de conflit d'intérêts
No competing financial interests exist.
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