User involvement in the making: Positions and types of knowledge enacted in the interaction between service users and researchers in user panel meetings.
health and social care research
panel meetings
patient and public involvement
positioning theory
types of knowledge
user involvement
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
08 2021
08 2021
Historique:
revised:
18
03
2021
received:
04
02
2021
accepted:
29
04
2021
pubmed:
29
5
2021
medline:
26
10
2021
entrez:
28
5
2021
Statut:
ppublish
Résumé
Numerous studies of user involvement in research have been conducted. However, there is a lack of studies applying observational methods and addressing the concrete practice of involvement. To determine what knowledge types and competences users apply when involved in the research process through user panel meetings. User panel meetings in a qualitative project in rehabilitation were sound-recorded and transcribed verbatim. Data analysis applied an abductive approach framed by positioning theory. Six rehabilitation service users and a similar number of researchers met 20 times during a six-year project period. They discussed various issues in the research process such as interview guides, analysis and dissemination of results. The service users combined their respective knowledge and competence into six positions enacted in the panel interactions. They engaged as co-researchers, based their contributions on their respective personal histories, represented an NGO and peers, applied their respective professional and educational backgrounds and, finally, engaged as concerned citizens. The findings add to the discussion of professionalization of user involvement by introducing a wider array of positions enacted than do the findings of previous studies. Researchers recruiting user panel members, as well as NGOs appointing candidates for user panels, are advised to consider a wide competence profile for possible candidates. A panel is also considered as a resource in confirming and elaborating on a study's findings. A service user panel contributed to the study.
Sections du résumé
BACKGROUND
Numerous studies of user involvement in research have been conducted. However, there is a lack of studies applying observational methods and addressing the concrete practice of involvement.
OBJECTIVE
To determine what knowledge types and competences users apply when involved in the research process through user panel meetings.
DESIGN
User panel meetings in a qualitative project in rehabilitation were sound-recorded and transcribed verbatim. Data analysis applied an abductive approach framed by positioning theory.
SETTING AND PARTICIPANTS
Six rehabilitation service users and a similar number of researchers met 20 times during a six-year project period. They discussed various issues in the research process such as interview guides, analysis and dissemination of results.
FINDINGS
The service users combined their respective knowledge and competence into six positions enacted in the panel interactions. They engaged as co-researchers, based their contributions on their respective personal histories, represented an NGO and peers, applied their respective professional and educational backgrounds and, finally, engaged as concerned citizens.
DISCUSSION AND CONCLUSION
The findings add to the discussion of professionalization of user involvement by introducing a wider array of positions enacted than do the findings of previous studies. Researchers recruiting user panel members, as well as NGOs appointing candidates for user panels, are advised to consider a wide competence profile for possible candidates. A panel is also considered as a resource in confirming and elaborating on a study's findings.
PATIENT AND PUBLIC CONTRIBUTION
A service user panel contributed to the study.
Identifiants
pubmed: 34048617
doi: 10.1111/hex.13281
pmc: PMC8369089
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1424-1432Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
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