Conceptualizing patient participation in psychiatry: A survey describing the voice of patients in outpatient care.
concept
outpatient
patient participation
person-centred care
psychiatry
questionnaire
survey
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
08 2021
08 2021
Historique:
revised:
13
04
2021
received:
10
11
2020
accepted:
13
05
2021
pubmed:
1
6
2021
medline:
26
10
2021
entrez:
31
5
2021
Statut:
ppublish
Résumé
While increasingly discussed in somatic care, the concept of patient participation remains unsettled in psychiatric care, potentially impeding person-centred experiences. To describe outpatient psychiatric care patients' conceptualization of patient participation. An exploratory survey. Patients in four psychiatric outpatient care units. Patients conceptualized patient participation by completing a semi-structured questionnaire, including optional attributes and free text. Data were analysed using statistics for ordinal data and content analysis for free text. In total, 137 patients (69% of potential respondents) completed the questionnaire. The discrete items were favoured for conceptualizing patient participation, indicating a primary connotation that participation means being listened to, being in a reciprocal dialogue, learning about one's health care and managing one's symptoms. Additional free-text responses acknowledged the attributes previously recognized, and provided supplementary notions, including that patient participation is about mutual respect and shared trust. What patient participation is and how it can be facilitated needs to be agreed in order to enable preference-based patient participation. Patients in outpatient psychiatric care conceptualize participation in terms of both sharing of and sharing in, including taking part in joint and solo activities, such as a reciprocal dialogue and managing symptoms by yourself. While being a patient in psychiatric care has been associated with a lack of voice, an increased understanding of patient participation enables person-centred care, with the benefits of collaboration, co-production and enhanced quality of care. Patients provided their conceptualization of patient participation in accordance with their lived experience.
Sections du résumé
BACKGROUND
While increasingly discussed in somatic care, the concept of patient participation remains unsettled in psychiatric care, potentially impeding person-centred experiences.
OBJECTIVE
To describe outpatient psychiatric care patients' conceptualization of patient participation.
DESIGN
An exploratory survey.
SETTING AND PARTICIPANTS
Patients in four psychiatric outpatient care units.
VARIABLES
Patients conceptualized patient participation by completing a semi-structured questionnaire, including optional attributes and free text. Data were analysed using statistics for ordinal data and content analysis for free text.
RESULTS
In total, 137 patients (69% of potential respondents) completed the questionnaire. The discrete items were favoured for conceptualizing patient participation, indicating a primary connotation that participation means being listened to, being in a reciprocal dialogue, learning about one's health care and managing one's symptoms. Additional free-text responses acknowledged the attributes previously recognized, and provided supplementary notions, including that patient participation is about mutual respect and shared trust.
DISCUSSION
What patient participation is and how it can be facilitated needs to be agreed in order to enable preference-based patient participation. Patients in outpatient psychiatric care conceptualize participation in terms of both sharing of and sharing in, including taking part in joint and solo activities, such as a reciprocal dialogue and managing symptoms by yourself.
CONCLUSION
While being a patient in psychiatric care has been associated with a lack of voice, an increased understanding of patient participation enables person-centred care, with the benefits of collaboration, co-production and enhanced quality of care.
PATIENT CONTRIBUTION
Patients provided their conceptualization of patient participation in accordance with their lived experience.
Identifiants
pubmed: 34058044
doi: 10.1111/hex.13285
pmc: PMC8369099
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1443-1449Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
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