Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.


Journal

Autism : the international journal of research and practice
ISSN: 1461-7005
Titre abrégé: Autism
Pays: England
ID NLM: 9713494

Informations de publication

Date de publication:
01 2022
Historique:
pubmed: 9 6 2021
medline: 14 1 2022
entrez: 8 6 2021
Statut: ppublish

Résumé

COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world.

Identifiants

pubmed: 34098745
doi: 10.1177/13623613211022585
pmc: PMC8651809
mid: NIHMS1706186
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Pagination

270-275

Subventions

Organisme : NIMH NIH HHS
ID : K01 MH104370
Pays : United States
Organisme : NICHD NIH HHS
ID : P50 HD093074
Pays : United States
Organisme : NIMH NIH HHS
ID : R21 MH120696
Pays : United States

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Auteurs

Lauren Franz (L)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.
Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.

Jill Howard (J)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

Marisa Viljoen (M)

Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.

Linmarie Sikich (L)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

Tara Chandrasekhar (T)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

Scott H Kollins (SH)

Duke University, USA.

Lawrence Lee (L)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

Minkateko Ndlovu (M)

Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.

Maura Sabatos-DeVito (M)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

Noleen Seris (N)

Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.

Nokuthula Shabalala (N)

Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.

Marina Spanos (M)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

Petrus J de Vries (PJ)

Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry, University of Cape Town, South Africa.

Geraldine Dawson (G)

Duke University, USA.
Duke Center for Autism and Brain Development, USA.

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Classifications MeSH