Migrants' involvement in health policy, service development and research in the WHO European Region: A narrative review of policy and practice.
health policy
implementation science
migrant health
participatory research
Journal
Tropical medicine & international health : TM & IH
ISSN: 1365-3156
Titre abrégé: Trop Med Int Health
Pays: England
ID NLM: 9610576
Informations de publication
Date de publication:
10 2021
10 2021
Historique:
pubmed:
26
6
2021
medline:
28
12
2021
entrez:
25
6
2021
Statut:
ppublish
Résumé
The involvement of individuals and communities in health decision-making is enshrined in WHO policies. However, migrant groups are under-represented in health decision-making processes. Our aim was to explore migrants' involvement in health policy, service development and research in the WHO European Region to identify levers for inclusive and meaningful practice. We conducted a narrative review of grey literature and peer-reviewed research on migrants' involvement in health decision-making across the 53 countries in WHO Europe. We searched for articles published in English between 2010 and the present in two electronic databases (PubMed, Scopus), IOM MIPEX Health Strand country reports, the EU SOPHIE project and using a Google advanced search. Findings were analysed descriptively and using Normalisation Process Theory to investigate levers and barriers to implementation of policy into practice. Of 1,444 articles retrieved, 79 met the inclusion criteria. We identified 20 policies promoting migrants' involvement, but national-level policies were present in only two countries. We identified 59 examples of migrants' involvement in practice from half of the WHO Europe countries (n = 27). Our Normalisation Process Theory (NPT) analysis of 14 peer-reviewed empirical papers found that participatory research approaches are a lever to putting policy into practice in a meaningful way. Migrants' involvement in health decision-making requires explicit national policies that are implemented evenly across policymaking, service provider and research activities in all countries in the WHO European Region. Participatory approaches to involvement activities are encouraged because they are a lever to perceived barriers to migrants' involvement.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
1164-1176Subventions
Organisme : World Health Organization
ID : 001
Pays : International
Informations de copyright
© 2021 The Authors Tropical Medicine & International Health Published by John Wiley & Sons Ltd.
Références
WHO. Primary Health Care. Report of the International Conference on Primary Health Care. Geneva: WHO; 1978.
WHO. Primary health care: now more than ever. Geneva: WHO; 2008.
WHO. Declaration of Astana. Global conference on primary care. Geneva: WHO; 2018.
WHO. Promoting the health of refugees and migrants draft global action plan, 2019-2023. Geneva: WHO; 2019.
UNHCR. The global compact on refugees. Geneva: UNHCR; 2019. https://www.unhcr.org/en-ie/the-global-compact-on-refugees.html. Accessed 16 March 2021.
Serapioni M, Duxbury N. Citizens’ participation in the Italian health-care system: the experience of the Mixed Advisory Committees. Health Expect. 2014;17(4):488-99.
Tierney E, McEvoy R, Hannigan A, MacFarlane A. Implementing community participation via interdisciplinary teams in primary care: an Irish case study in practice. Health Expect. 2018;21(6):990-1001.
O’Shea A, Chambers M, Boaz A. Whose voices? Patient and public involvement in clinical commissioning. Health Expect. 2016;20:484-94.
Pollard L, Agarwal S, Harrad F, Lester L, Cross A, Wray P, et al. The impact of patient participation direct enhanced service on patient reference groups in primary care: a qualitative study. Qual Prim Care. 2014;22(4):189-99.
Christiaens W, Kohn L, Leonard C, Denis A, Daue F, Cleemput I. Models for citizen and patient involvement in health care policy - Part I: exploration of their feasibility and acceptability. Brussels: Health Services Research (HSR); 2012. Contract No.: KCE Reports 195C. D/2012/10.273/105.
Scientific Panel for Health. Building the Future of Health Research: Proposal for a European Council of Health: A consensus document of the H2020 Scientific panel. 2020. https://ec.europa.eu/programmes/horizon2020/sites/horizon2020/files/building_the_future_of_health_research_sph_22052018_final.pdf. Accessed 16 March 2021.
European Patients Academy. Patient education! The A to Z of medicines. https://www.eupati.eu. Accessed 16 March 2021.
NIHR. Going the Extra Mile: Improving the nation’s health and well-being through public involvement in health research (2015-2025). London: National Institute for Health Research; 2014.
Health Research Board. Research Evidence Action Strategy 2016-2020. Dublin: Health Research Board; 2016.
Sarrami-Foroushani P, Travaglia J, Debono D, Braithwaite J. Implementing strategies in consumer and community engagement in healthcare: results of a large-scale, scoping meta-review. BMC Health Serv Res. 2014;14:402.
Gibson A, Britten N, Lynch J. Theoretical directions for an emancipatory concept of patient and public involvement. Health (London). 2012;16(5):531-47.
Tritter J, McCallum A. The snakes and ladders of user involvement: Moving beyond Arnstein. Health Policy. 2006;76(2):156-68.
Wright M. Position Paper 1. What is Participatory Health Research?. Berlin: International Collaboration for Participatory Health Research; 2013.
Popay J, Williams G. Public health research and lay knowledge. Soc Sci Med. 1996;42(5):759-68.
O’Mara-Eves A, Brunton G, McDaid D, Oliver S, Kavanagh J, Jamal F, et al. Community engagement to reduce inequalities in health: a systematic review, meta-analysis and economic analysis. Public Health Res Pract. 2013;1(1):1-526.
Jull J, Graham ID, Kristjansson E, Moher D, Petkovic J, Yoganathan M, et al. Taking an integrated knowledge translation approach in research to develop the CONSORT-Equity 2017 reporting guideline: an observational study. BMJ Open. 2019;9:e026866.
Arnstein SR. Ladder of citizen participation. J Am Inst Plann. 1969;35(4):216-24.
Jagosh J, Macaulay AC, Pluye P, Salsberg J, Bush PL, Henderson J, et al. Uncovering the benefits of participatory research: implications of a realist review for health research and practice. Milbank Q. 2012;90(2):311-46.
Cook T, Boote J, Buckley N, Vougioukalou S, Wright M. Accessing participatory research impact and legacy: developing the evidence base for participatory approaches in health research. Educational Action Res. 2017;25(4):473-88.
de Brún T, O’Reilly-de Brún M, Van Weel-Baumgarten E, Burns N, Dowrick C, Lionis C, et al. Using Participatory Learning & Action (PLA) research techniques for inter-stakeholder dialogue in primary healthcare: an analysis of stakeholders’ experiences. Res Involv Engagem. 2017;6(3):28.
Tierney E, McEvoy R, O'Reilly-de Brún M, de Brún T, Okonkwo E, Rooney M, et al. A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory. Health Expect. 2016;19:501-15.
Taylor J, Carlisle K, Farmer J, Larkins S, Dickson-Swift V, Kenny A. Implementation of oral health initiatives by Australian rural communities: factors for success. Health Soc Care Community. 2018;26:e102-e110.
Draper A, Hewitt G, Rifkin S. Chasing the dragon: developing indicators for the assessment of community participation in health programmes. Soc Sci Med. 2010;71(6):1102-9.
Meier B, Pardue C, London L. Implementing community participation through legislative reform: a study of the policy framework for community participation in the Western Cape province of South Africa. BMC Int Health Human Rights. 2012;12(15). https://doi.org/10.1186/1472-698X-12-15.
Domecq JP, Prutsky G, Elraiyah T, Wang Z, Nabhan M, Shippee N, et al. Patient engagement in research: a systematic review. BMC Health Serv ices. Research. 2014;14(89). https://doi.org/10.1186/1472-6963-14-89.
MacFarlane A. The Helen Lester Memorial Lecture 2018: the leper squint: spaces for participation in primary health care. Br J Gen Pract. 2019;69:682.
de Freitas C, Martin G. Inclusive public participation in health: policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare. Soc Sci Med. 2015;135:31-9.
Lightbody R. ‘Hard to reach’ or ‘easy to ignore’? Promoting equality in community engagement. Edinburgh: What Works Scotland; 2017.
Hannigan A, O’Donnell P, O’Keeffe M, MacFarlane A. How do variations in definitions of ‘migrant’ and their application influence the access of migrants to health care services?. Copenhagen: WHO Regional Office for Europe; 2016.
International Organization for Migration. Glossary on Migration, IML Series, No. 34. Geneva: IOM; 2019. https://publications.iom.int/system/files/pdf/iml_34_glossary.pdf. Accessed 16 March 2021.
United Nations. International Migrants Stock 2019 New York. UN: Department of Economic and Social Affairs Population Division; 2019. https://www.un.org/en/development/desa/population/migration/data/estimates2/estimates19.asp. Accessed 16 March 2021.
International Organization for Migration. World Migration Report 2020, UN. New York: IOM; 2019.
Roura M. Unravelling migrants’ health paradoxes: a transdisciplinary research agenda. J Epidemiol Community Health. 2017;71:870-3.
van den Muijsenbergh M, Teunissen E, van Weel-Baumgarten E, van Weel C. Giving voice to the voiceless: how to involve vulnerable migrants in healthcare research. Br J Gen Pract. 2016;66(647):284-5.
van Loenen T, van den Muijsenbergh M, Hofmeester M, Dowrick C, van Ginneken N, Mechili EA, et al. Primary care for refugees and newly arrived migrants in Europe: a qualitative study on health needs, barriers and wishes. Eur J Pub Health. 2018;28(1):82-7.
WHO. No public health without refugee and migrant health-Summary. Geneva: WHO Regional Office for Europe; 2018.
Kluge H, Jakab Z, Bartovic J, D’Anna V, Severoni S. Refugee and migrant health in the COVID-19 response. Lancet. 2020;395(10232):1238-9.
Cheng I, Drillich A, Schattner P. Refugee experiences of general practice in countries of resettlement: a literature review. Br J Gen Pract. 2015;65(632):e171-e176.
van den Muijsenbergh M, van Weel-Baumgarten E, Burns N, O'Donnell C, Mair F, Spiegel W, et al. Communication in cross-cultural consultations in primary care in Europe: the case for improvement. The rationale for the RESTORE FP 7 project. Primary Health Care Research & Development. 2014;15(2):122-33.
De Freitas C, Massag J, Amorim M, Fraga S. Involvement in maternal care by migrants and ethnic minorities: a narrative review. Public Health Rev. 2020;41(5). https://doi.org/10.1186/s40985-020-00121-w.
McGarry O, Hannigan A, De Almeida MM, Severoni S, Puthoopparambil SJ, MacFarlane A. What strategies to address communication barriers for refugees and migrants in health care settings have been implemented and evaluated across the WHO European Region?. Copenhagen: WHO Regional Office for Europe; 2018. Health Evidence Network synthesis report 62.
Verrupt H. What are the roles of intercultural mediators in health care and what is the evidence on their contributions and effectiveness in improving accessibility and quality of care for refugees and migrants in the WHO European Region?. Copenhagen: WHO Regional Office for Europe; 2019. Health Evidence Network synthesis report 64.
MacFarlane A, Lionis C. In: Kumar B, Diaz E, editors. Community participation in primary health care: meaningful involvement of migrants. London: CRC Press; 2019.
De Freitas C, García-Ramirez M, Aambø A, Buttigieg SC. Transforming health policies through migrant user involvement: lessons learnt from three European countries. Psychosocial Intervention. 2014;23(2):105-13.
WHO. Strategy and action plan for refugee and migrant health in the WHO European Region. Copenhagen: WHO Regional Office for Europe; 2016. Report EUR/RC66/8.
Mladovsky P, Rechel B, Ingleby D, McKee M. Responding to diversity: an exploratory study of migrant health policies in Europe. Health Policy. 2012;105(1):1-9.
IOM. International Organisation for Migration Summary report on the MIPEX Health Strand and Country Reports. Geneva: IOM; 2016.
O'Reilly-de Brún M, MacFarlane A, de Brún T, Okonkwo E, Bonsenge Bokanga JS, Manuela De Almeida Silva M, et al. Involving migrants in the development of guidelines for communication in cross-cultural general practice consultations: a participatory learning and action research project. BMJ Open. 2015;5:e007092.
Baethge C, Goldbeck-Wood S, Mertens S. SANRA-a scale for the quality assessment of narrative review articles. Research Integrity and Peer. Review. 2019;4(5). https://doi.org/10.1186/s41073-019-0064-8.
Buse K, Mays N, Walt G. Making health policy. Maidenhead: Open University Press; 2005.
Crinson I. Health policy: a critical perspective. Los Angeles: Sage; 2009.
May C, Finc T. Implementing, embedding, and integrating practices: an outline of normalization process theory. Sociology. 2009;43:535-54.
McEvoy R, Ballini L, Maltoni S, O’Donnell CA, Mair FS, MacFarlane A. A qualitative systematic review of studies using the normalization process theory to research implementation processes. Implement Sci. 2014;9(2). https://doi.org/10.1186/1748-5908-9-2.
May CR, Cummings A, Girling M, Bracher M, Mair FS, May CM, et al. Using Normalization Process Theory in feasibility studies and process evaluations of complex healthcare interventions: a systematic review. Implement Sci. 2018;13(1):80.
International Organisation for Migration. Empowerment of migrants by ensuring their health and wellbeing. Geneva: IOM; 2010.
UNHCR. Ukraine 2019 participatory assessment. Geneva: UNHCR; 2019.
UNHCR. Integration of refugees in Latvia: participation and empowerment. Geneva: UNHCR; 2014.
Hickin N. Service user involvement in the British Red Cross: experience and factors affecting willingness to participate. 2016.
Red Cross bitim. AVAIL Project. 2018.
UNHCR. Ukraine 2017 participatory assessment. Geneva: UNHCR; 2016.
Abdulkadir J, Azzudin A, Buick A, Curtice L, Dzingisai M, Easton D, et al. What do you mean, I have a right to health? Participatory action research on health and human rights. Glasgow: International Public Policy Institute; 2015.
CAN. Report on community health research in the North East Inner City using a Participatory Research Action programme. 2010.
Fassil Y, Burnett A. Commissioning mental health services for vulnerable adult migrants. Guidance for commissioners. London: Mind; 2014.
Women Political Leaders Global Forum (WPL). Improving maternal healthcare for vulnerable women in EU28: What can you do?. Brussels: WPL; 2018.
Feldman R. Guidance for commissioning health services for vulnerable migrant women. London: Women’s Health and Equality Consortium and Maternity Action; 2012.
Pillinger J. Formative evaluation of the Joint Community Participation in Primary Care Initiative. Dublin: HSE; 2010.
UNHCR. Hearing refugee voices: a journey towards empowerment. Geneva: UNHCR; 2014.
Akidwa. Shaping the future: Annual Report. 2017. https://akidwa.ie/wp-content/uploads/2019/03/AkiDwA_2017_Annual_Report_FINAL_MAIN.pdf. Accessed 16 March 2021.
MacFarlane A. Report of HSE working group to develop a model for the implementation of trained interpreters in the Irish healthcare system. Dublin: Health Service Executive; 2018.
Stegeman I, Otte-Trojel T, Costongs C, Considine J. Healthy and active ageing. Brussels: EuroHealthNet; 2011.
Psoinos M, Karamanidou C, Ioannidis E, Papamichail D, Koulierakis G, Sočan M, et al. Recommendations for strategic public health planning regarding migrant and refugee populations and the role of civil society organisations. Care Project; 2017. Ref. Ares(2017)1301632.
Mental Health Reform. Ethnic minorities and mental health: a position paper. Dublin: Mental Health Reform; 2014.
Kolehmainen-Aitken R-L, Usategui JIO. Training packages for health professionals to improve access and quality of health services for migrants and ethnic minorities, including the Roma (MEM-TP project). 2015.
Escuela Andaluza de Salud Pública. Resource package for ensuring access to health care of refugees, asylum seekers and other migrants in the European Union (EU) countries; 2016.
Istituto Superiore di Sanità. Meeting the health literacy needs of immigrant populations. 2015.
Khanom A, Alanazy W, Ellis L, Evans BA, Fagan L, Glendenning A, et al. The health experiences of refugees and asylum seekers in Wales. Swansea: Public Health Wales NHS Trust; 2019.
Kennedy P, Curran S, Muntaen G, Munteanu T, Caldaras E, Caldaras E, et al. Roma in Ireland - a national needs assessment. Dublin: Pavee Point Traveller and Roma Centre; 2018.
IOM. MIPEX health strand country report: bosnia and herzegovina. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Austria. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report. Czech Republic. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Denmark. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: Estonia. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Finland. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Germany. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Hungary. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: Ireland. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Italy. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: Lithuania. Geneva: IOM; 2016.
Ingleby D. (personal communication) Mipex Health Strand Country Report: Macedonia. 2016.
IOM. MIPEX Health Strand Country Report: Malta. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: Netherlands. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: Norway. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: Portugal. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Romania. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Slovakia. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Spain. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Sweden. Geneva: IOM; 2016.
IOM. Mipex Health Strand Country Report: Switzerland. Geneva: IOM; 2016.
IOM. MIPEX Health Strand Country Report: United Kingdom. Geneva: IOM; 2016.
Welsh Government. Health and wellbeing provision for refugees and asylum seekers. Cardiff: Welsh Government; 2018.
WHO. Promoting the health of refugees and migrants: framework of priorities and guiding principles to promote the health of refugees and migrants. Geneva: WHO; 2018.
Department of Justice & Equality Ireland. National Traveller and Roma Inclusion Strategy 2017-2021. Dublin: Department of Justice and Equality Ireland; 2016.
WHO. Health promotion for improved refugee and migrant health: technical guidance. Geneva: WHO; 2018.
HSE. Second National Intercultural Health Strategy 2018-2023. Dublin: Health Service Executive; 2018.
European Health Policy Forum. EU Health Policy Platform: Call to action on migration and health. Brussels: 2018.
International Labour Organization. Promoting a rights-based approach to migration, health, and HIV and AIDS: a framework for action. Geneva: ILO; 2017.
WHO. Report on the health of refugees and migrants in the WHO European Region. Geneva: WHO; 2018.
Matlin S, Depoux A, Schütte S, Flahault A, Saso L. Charting an agenda of solutions on the health of migrants and refugees. 2017.
WHO. Health of older refugees and migrants: policy brief. Geneva: WHO; 2018.
Grover A. Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. New York: UN; 2013.
Keane E. Migrant health - the health of asylum seekers, refugees and relocated individuals. Dublin: Royal College of Physicians of Ireland; 2016.
Nickerson A, Liddell B, Asnaani A, Carlsson J, Fazel M, Knaelvelsrud C, et al. Trauma and mental health in forcibly displaced populations. Chicago: International Society for Traumatic Stress Studies; 2017.
Mental Health Reform. Ethnic minorities and mental health: guidelines for mental health services and staff on working with people from ethnic minority communities. Dublin: Mental Health Reform; 2016.
Iglesias S, Narandran A, Bueno R, editors. 1st Research Exchange Workshop on Social Determinants of Migrants’ Health. Asia-Europe Foundation: Singapore; 2012.
Negro F, Pasta L, Puoti C, Godfrey F, Craxi A. EASL position statement on liver disease and migrant health. Geneva: EASL; 2018.
WHO. Stepping up action on refugee and migrant health. Towards a WHO European framework for collaborative action. Geneva: WHO; 2015.
UNHCR. A guidance note on health insurance schemes for refugees and other persons of concern to UNHCR. Geneva: UNHCR; 2012.
Rape Crisis Network Ireland. Asylum seekers and refugees surviving on hold. Dublin: Rape Crisis Network Ireland; 2014.
O’Donnell P, Tierney E, O’Carroll A, Nurse D, MacFarlane A. Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision: a participatory learning and action research study. Int J Equity Health. 2016;15(1):197.
Gottlieb N, Weinstein T, Mink J, Ghebrezghiabher HM, Sultan Z, Reichlin R. Applying a community-based participatory research approach to improve access to healthcare for Eritrean asylum-seekers in Israel: a pilot study. Isr J Health Policy Res. 2017;6(1):61.
Kim H, Shon S, Shin H. Exploring the unmet needs for creating an enabling environment for nurturing care to promote migrant child health in Bishkek, Kyrgyzstan: a theory-guided community-based participatory action research. Eval Program Plann. 2020;80:101802.
Muijsenbergh METC, LeMaster JW, Shahiri P, Brouwer M, Hussain M, Dowrick C, et al. Participatory implementation research in the field of migrant health: sustainable changes and ripple effects over time. Health Expect. 2020;23(2):306-17.
O'Reilly-de Brún M, de Brún T, O'Donnell CA, Papadakaki M, Saridaki A, Lionis C, et al. Material practices for meaningful engagement: an analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership. Health Expect. 2018;21(1):159-70.
Lionis C, Papadakaki M, Saridaki A, Dowrick C, O'Donnell CA, Mair FS, et al. Engaging migrants and other stakeholders to improve communication in cross-cultural consultation in primary care: a theoretically informed participatory study. BMJ Open. 2016;6:e010822.
Keygnaert I, Vettenburg N, Temmerman M. Hidden violence is silent rape: sexual and gender-based violence in refugees, asylum seekers and undocumented migrants in Belgium and the Netherlands. Culture, Health & Sexuality. 2012;14(5):505-20.
Clini C, Thomson LJM, Chatterjee HJ. Assessing the impact of artistic and cultural activities on the health and well-being of forcibly displaced people using participatory action research. BMJ Open. 2019;9:e025465.
O’Reilly-de Brún M, de Brún T, Okonkwo E, Bonsenge-Bokanga JS, De Almeida Silva MM, Ogbebor F, et al. Using Participatory Learning & Action research to access and engage with ‘hard to reach’ migrants in primary healthcare research. BMC Health Serv Res. 2016;20(16):25.
Quinn N. PAR with refugees and asylum seekers experiencing stigma and discrimination: the experience from Scotland. Disability Soc. 2014;29(1):58-70.
Teunissen E, Gravenhorst K, Dowrick C, Van Weel-Baumgarten E, Van den Driessen Mareeuw F, de Brún T, et al. Implementing guidelines and training initiatives to improve cross-cultural communication in primary care consultations: a qualitative participatory European study. Int J Equity Health. 2017;16(1):32.
Ingleby D. Changes between Health strand scores in the 2015 and 2020 rounds. 2020. https://www.mipex.eu/sites/default/files/downloads/files/health_summary_of_the_changes.pdf. Accessed 16 March 2021.
Roura M, Dias S, leMaster JW, MacFarlane A. Participatory health research with migrants: opportunities, challenges, and way forwards. Health Expect. 2021;24(2):188-197. https://doi.org/10.1111/hex.13201
MacFarlane A. Optimising individual and community involvement in health decision-making in general practice consultations and primary care settings: a way forward. Eur J General Pract. 2021;26(1):196-201.